Fresh air does not smell of fragrance

Frisk luft lukter ikke av parfyme.


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Kromosomer og autoimmune sjukdommer

“Kvinner er mindre utsatt for infeksjonssykdommer enn menn, men blir oftere rammet av autoimmune sykdommer. Noe av denne overhyppigheten er knyttet til X-kromosomet, som har mange immunrelaterte gener. Det er en fordel for kvinner å ha to X-kromosomer, men prisen er en økt tendens til utvikling av autoimmunitet.

Kvinner er friskere og lever lenger enn menn, de blir sjeldnere rammet av infeksjonssykdommer, men til gjengjeld er 80% av individene med autoimmune sykdommer kvinner.”

http://tidsskriftet.no/2017/06/kronikk/hvorfor-er-autoimmune-sykdommer-hyppigere-hos-kvinner

Det er altså ingen tilfeldighet at der er fler kvinner ned allergiske besvær og fysiske sensitivitetssjukdom enn menn.

Hva er autoimmune sjukdom?

“Autoimmune sykdommer utgjør en stor gruppe sykdommer som har det til felles at kroppens immunsystem feilaktig angriper friske celler, ødelegger disse og det vevet de tilhører.

Autoimmune sykdommer oppstår som følge av at kroppen feilaktig starter å produsere antistoff som angriper kroppens egne friske celler og vev – om igjen og om igjen. Det finnes mer enn 80 sykdommer som er av autoimmun karakter, mange av dem med overlappende symptome.

Et fellestrekk for autoimmune sykdommer er at de forårsaker inflammasjon, betennelsesreaksjoner i vevet, som ikke har noe med infeksjoner med bakterier og virus å gjøre.

Autoimmune sykdommer kan angripe nesten enhver del av kroppen, som hjertet, hjernen, nervene, musklene, huden, leddene, lungene, nyrene, kjertlene, fordøyelseskanalen og blodkarene.

For autoimmune sykdommer finnes det ikke behandlinger som helbreder sykdommen, som gjør det mulig å bli kvitt sykdommen. Det finnes derimot medisiner som kan dempe immunsystemet slik at inflammasjonen minskes og tar vekk de verste symptomene.”

https://nhi.no/sykdommer/allergi/diverse/autoimmune-sykdommer/

“Kortikosteroider er en hyppig brukt legemiddelgruppe.

Kortison tilhører en medikamentgruppe som kalles steroider eller kortikosteroider. Det er medikamenter som demper kroppens immunreaksjoner.

Hva er kortison?
Kortison tilhører en medikamentgruppe som kalles steroider eller kortikosteroider. Det er medikamenter som demper kroppens immunreaksjoner.

Immunsystemet er vårt forsvarssystemmot betennelser, enten det er inntrengere som bakterier og virus eller det er betennelsesreaksjoner (inflammasjoner) som oppstår innenifra i kroppen. Binyrene lager kortisol, som er et tilsvarende stoff som kortison, men det produseres i mye mindre mengder enn det man kan tilføre som medisin.

Kortison brukes i behandlingen av mange tilstander. Det brukes i behandlingen av hormonforstyrrelser når kroppen ikke klarer å produsere nok av sitt eget kortison i binyrene. Det brukes også til å behandle mange immunsykdommer og allergiske tilstander som leddbetennelser, lupus, alvorlig psoriasis, alvorlig astma, ulcerøs kolitt og Crohns sykdom. Kortison brukes også i mange andre sammenhenger.”

https://nhi.no/sykdommer/allergi/diverse/kortison/

Eksempel på kortison som brukes mot astma og allergi er f.eks Prednisolon og inhalasjonsmedisiner.

Hva er astma?
Astma er en kronisk betennelse i lungene som ikke er forårsaket av virus- eller bakterieinfeksjon og som forverres av allergi eller irriterende stoffer i luften, s.k. irritanter, og bronkitt luftveisinfeksjon. Luftveiene er delt inn i to deler, de øvre luftveiene (munn, nese, og øvre luftrør), og nedre luftveiene som består av bronkiene, bronkiolene, alveolene o.l. Astma sitter i de nedre luftveiene, dvs i bronkiene / bronkiolene. Har du bronkitt, altså luftveisinfeksjon, vil det kunne være med på å forverre astma da bronkitt også sitter i bronkiene.

https://nhi.no/sok?q=astma


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Åpent brev

Nå har det skjedd igjen. Jeg måtte på doen, og jeg sprang inn på bensinstasjonen like ved, det var krise. Da jeg kommer inn på toalettet ser jeg denne duftmaskinen henger på veggen og med astma er dette en helsefare, man får tette lunger og vansker med å puste og får ikke luft, men jeg hadde å velge på dette og gjøre i buksen. Ingen vil gjøre på seg så jeg måtte gå, det forstår du også, men det er kjipt å måtte velge mellom å få gå på do og astmaanfall. Samme gjelder jo for øvrig også i andre lokaler, man skal ikke måtte unngå å gå steder, og på den måten bli utelukket fra å delta.

wp-image-1973377767jpg.jpg

Bildet er tatt under mitt astmaanfall, dette er ekte.

 

I flere timer etterpå hadde jeg vanskelig å puste og måtte bruke mye medisin.

Dette handler om tilgjengelighet, et toalett som er til for publikum skal alle kunne bruke, det skal ikke være slik at kun personer uten funksjonsnedsettelse kan bruke toalettet.

Dere som produserer, selger og bruker disse produktene støtter dere gjerne på at det er godkjent av IFRA, International Fragrance Association, som hevder dette er greit og ikke gir allergi og sjukdom. Det dere må forstå er at IFRA er en interesseorganisasjon for parfymeindustrien og de går industriens ærend, de er ikke interesseorganisasjon for oss med astma og andre lungesjukdommer, allergi, mcs, shr og andre sensitiviteter. Uansett hva de påstår så er ikke dette trygge produkter for oss. Jeg er et levende bevis for dette og jeg er bare en av veldig mange. WHO anslår at der er 300 millioner personer med astma i verdenen (tall fra 2011 slik at det er sikkert fler i dag) og i Europa er det anslått å være ca 30 millioner personer med astma (tall fra WHO og Ginasthma og The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA), da er ikke alle andre lungesjukdommer og sensitiviteter medregnet i de tallene, ikke heller mcs og shr og øvrige sensitiviteter. I Norge teller man at ca 20-25% av befolkningen, ca 1 – 1,2 millioner mennesker har astma og allergi. I følge tall fra Norges Astma og Allergiforbund (NAAF) er 1,4 millioner personer i Norge sjuke av parfyme, og 0,5 % blir så sjuke av parfyme at de ikke kan deltake som alle andre gjør i samfunnet.

Jeg ga beskjed til stasjonsinnehaver om å ta den ned, alle skal kunne bruke toalettet. Ingen skal måtte velge mellom å bli sjuk og gå på toalettet, eller noen andre rom heller. For oss med astma er Ventoline en nødline og vi må dope oss med Ventolinne hele døgnet for å leve, mens andre ikke skjønner bæret og forurenser luften med parfymestoffer. I dag pga et dobesøk hos Circle K fikk jeg et kraftig astmaanfall fordi jeg måtte bruke toalettet på Circle K, det var først lite men etter 4 minutter slo det ut i full blomst og jeg hostet kraftig, trange luftrør, pipelyder da jeg FORSØKTE puste, det var ikke lett å få luft, øynene ble blodsprengte, jeg ble kraftløs og hadde oxygenbrist.  Det var problemer å få medisinen ned i nebulizern (inhalatoren du ser på bildet over) fordi jeg var i så dårlig stand, jeg var meget plaget. Da var jeg komt til kontoret og kollegene spurte masse, de visste vel ikke hva å gjøre. Etter hvert fikk jeg i meg medisinen likevel og etterpå kunne jeg snakke og forklare hvorfor det var så ille.  Skylden denne gangen var en duftmaskin på  veggen  på toalettet.

Nå vil jeg oppfordre deg som har slike på veggen i dine lokaler om å ta den ned uansett i hvilken bedrift eller sted, uansett hvor den sitter, om den er på toalettet eller annet lokale. Har produsenten fortalt deg at det ikke utløser allergi? Da er du blitt løyet til.  Den duften du sprer i rommet inneholder en masse stoffer som irriterer luftveiene i lungene og aktiviserer allergisk reaksjon, det gjør at dine kunder og besøkere blir sjuke av besøket og det henger i fra noen timer til flere dager avhengig av hvor sensitive personen er som ikke tåler det. Da man har fått et slik stort astmaanfall av et besøk hos deg da er man også mer sensitive for alt i flere dager etterpå.

Jeg vil gjøre det klinkende klart: Det har ikke betydning hvem som har satt det opp, eller hvem som leverer til hvem, det at det i hele tatt er produsert og tatt i bruk er det som er problemet. Vi er konstruert å puste luft, ikke kjemisk forurensning, det som er relevant her er at luften blir utjenlig å puste.

Jeg vil også opplyse om at det er et lovbrudd å utestenge dem som ikke tåler det i henhold til Likestillings og Diskrimineringsloven §9.

LHLorg-parfyme-diskriminering-§9-Skjermbilde

Skjermbilde av nettsiden til LHL Astma og Allergi:

“LHL mener at det må presiseres at kravet til universell utforming i diskriminerings- og tilgjengelighetsloven § 9 også omfatter tiltak for å forebygge eksponering av ulike irritanter, herunder parfymerte produkter.

LHL mener også at det bør settes av midler til forebyggende opplysningsvirksomhet slik at flere vil ta hensyn til at parfymerte produkter kan påføre andre helseskader.

LHL oppfordrer til at:

  • offentlige virksomheter innfører parfymefritt arbeidsmiljø av hensyn til brukere og de ansatte.
  • privat næringsliv og arbeidsgivere gjør det samme.
  • privatpersoner tar hensyn ved å unngå parfymerte produkter i situasjoner der man kommer tett på andre mennesker.

LHL Astma og allergi har laget en plakat som opplyser om parfymefri sone. Plakaten kan lastes ned og henges opp der det er behov for det.” LHL Astma og Allergi

FN har vedtatt tilgjengelighet og rettigheter for personer med funksjonsnedsettelse, blant annet:

“e) Recognizing that disability is an evolving concept and that disability results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others,
h) Recognizing also that discrimination against any person on the basis of disability is a violation of the inherent dignity and worth of the human person,
j) Recognizing the need to promote and protect the human rights of all persons with disabilities, including those who require more intensive support,
l) Recognizing the importance of international cooperation for improving the living conditions of persons with disabilities in every country,
n) Recognizing the importance for persons with disabilities of their individual autonomy and independence, including the freedom to make their own choices,” UN.org

Du finner informasjon om Tilgjengelighet og Universell utforming i FNs deklarasjoner om funksjonsnedsettelser her

Hva er en funksjonsnedsettelse?
Lungesjukdommer som astma m.fl, allergi, og andre sensitiviteter er en funksjonsnedsettelse,  et handikap. Hvordan det?  Definisjonen på et handikap er:

Ifølge norske offentlige utredninger,
NOU 2005: 8 om likeverd og tilgjengelighet. Rettslig vern mot diskriminering på grunnlag av nedsatt funksjonsevne. Definert funksjonsnedsettelse som:
“Funksjonshemming oppstår når det er et gap mellom individets evner og design eller funksjon i omgivelser / miljø / bygg.”

Merk deg at det ikke står angitt spesifikt hva som er handikap, det står for eksempel ikke bevegelseshemmet, blind, døv osv, det står kun angitt hvordan noe er en funksjonsnedsettelse, et handikap. Dette er samme definisjon som er vedtatt av FN, dok er FNs versjon noe mer utvidet og gjelder alle land.

Jeg har mottatt relevant informasjon om Tilgjengelighetsloven fra Regjeringen ved FRP som var en av de partiene som svarte på min henvendelse om retten til frisk luft.

sitat “«Diskriminerings- og tilgjengelighetsloven» fast følgende; § 9. Plikt til generell tilrettelegging (universell utforming) «Offentlig virksomhet skal arbeide aktivt og målrettet for å fremme universell utforming innenfor virksomheten. Tilsvarende gjelder for privat virksomhet rettet mot allmennheten» Gjennom diskriminerings- og tilgjengelighetsloven får mennesker med nedsatt funksjonsevne et diskrimineringsvern. Alle virksomheter rettet mot allmennheten blir pliktige til å arbeide for universell utforming og individuell tilrettelegging. Krav om universell utforming trekkes inn i stadig flere forskrifter og lovverk. Finnes også omtalt i «Plan – og bygningsloven. Brudd på plikten til å sikre universell utforming etter tredje ledd regnes som diskriminering.»” Regjeringen ved FRP. Sitat slutt

Den samme loven er også i Sverige, se nedenfor for mer informasjon om det.

Publikasjon av NAAF og Husbanken:

Universell-utforming-NAAF-Skjermbilde2

Husbanken publikasjon Skjermbilde

”Universell utforming er utforming av produkter og omgivelser på en slik måte at de kan brukes av alle mennesker, i så stor utstrekning som mulig, uten behov for tilpassing og en spesiell utforming.”
Krav om universell utforming trekkes inn i stadig flere forskrifter og lovverk. Gjennom diskriminerings- og tilgjengelighetsloven får mennesker med nedsatt funksjonsevne et diskrimineringsvern. Alle virksomheter rettet mot allmennheten blir pliktige til å arbeide for universell utforming og individuell tilrettelegging. ” Husbanken.no

Les Publikasjonen her:
http://biblioteket.husbanken.no/arkiv/dok/Komp/Uu_bygg.pdf

Jeg forstår at du kanskje ikke visste dette, derfor vil jeg fortelle deg det at parfymer og slike doftmaskiner gjør 1 av 4 sjuke. Du vil nok ikke dine kunder, besøkere, klienter, kolleger, elever eller venner noe vondt?

Skru opp ventilasjonen istedenfor og vask oftere med parfymefrie rengjøringsmidler, parfymefri oppvask, parfymefri håndsåpe og bruk ellers parfymefrie produkter, lufte ut og gi oss alle frisk luft å puste, da vil vi som er de 1 av 4 av dine kunder / besøkere kunne benytte dine tjenester og lokaler på likt med alle andre og uten å måtte gå der fra med tette lunger og pustevansker. I verste fall kan det bety at vi ender opp på sjukehuset, og at vi unngår å besøke dine lokaler eller å bruke bedriften din og andre lokaler, og bruker pengene og tiden vår et annet sted. Det er ingen hyggelig handel og besøk om man må bli sjuk av luften. Nå har jeg forklart deg det, og jeg håper og ber at du hører på og gjør som jeg ber om. Jeg er trøtt på å ikke kunne benytte meg av lokalene dine.

Oppdatering søndag 4. september 2016

Jeg måtte akutt til sjukehuset.

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Dag 3: Søndag nå  Jeg har hatt pustevansker siden fredag pga av den duftmaskinen som var aktiv på Circle K stasjonen, nå siden fredag har jeg hatt gjentatte pustevansker og svie helt fra øvre luftveiene og ned i lungene, min egen medisin har ikke gjort nytten så jeg måtte dra akutt til legevakta på sjukehuset hvor de har sterkere medisiner. CRP var under 5, ingen bakterieinfeksjon eller virus. Jeg må også på økt medisinering med Prednisolon nå 60 mg og mer astmamedisin for å få bort betennelsen som er blitt av den kjemiske påvirkning av parfymekjemikaliene i rommet fra duftmaskinen. Når er det at folk skal skjønne at parfyme ikke er en harmløs nusselig ting til glede for alle? Det finns ikke velvære med kjemisk forurenset luft.

Hvorfor skal jeg måtte lide for dine vaner? Hvorfor skal jeg måtte gå på et slik medisin regime og på sjukehuset fordi du parfymerer?

Ikke bare at jeg må ta medisiner, men det betyr stor lidelse i hverdagen, og for å være dønn ærlig man kan dø av astma, et alvorlig astmaanfall kveler.

“4.4 Advarsler og forsiktighetsregler
Dersom pasienten må øke forbruket av β2-agonister med kort virketid for å kontrollere astma-symptomene, tyder dette på en forverrelse av sykdommen.  Plutselig og tiltagende forverring av astma-symptomene er potensielt livstruende, ” Statens Legemiddelverk Slv.no

Les mer om det her Astma dreper og Astma er potensielt livstruende

Hva er astma?

Astma er en sjukdom i lungenes luftveier bronkiene og bronkiolene, det er en kronisk betennelse i disse,  det er styrt av sensitivitet eller allergi (immunologisk) og forverring kommer av å bli utsatt enten av allergener (stoffer man ikke tåler) eller irritanter  (stoffer som irriterer luftveiene), og da dette skjer tettes lungenes luftveier av slim samtidig som musklene rundt disse luftveiene kramper og gjør luftrøret meget trangt, disse begge tingene bidrar til liten passasje for luft å passere og man får problemer med å puste. Forskjellen ved astma og KOLS er at astmabesvær oppstår kun ved negative påvirkning av ting personen ikke tåler, mens KOLS betyr pustevansker 24/7 men med forverring av irritanter, det betyr at sjukdomstilstander og symptomer ved astma og andre lungesjukdommer kan unngås ved å verne den sjuke for disse emnene og situasjonene.

Parfyme er en av de tingene som provoserer og utløser astmaanfall – og også andre lungesjukdommer, allergi og sensitiviteter.

Dere må revurdere deres bruk av parfymer der offentligheten ferdes, enten det er parfymerte produkter, doftmaskiner, scent marketing, så kalte luftoppfriskere, parfyme på deg selv, i dine kle, håndsåper osv, eg. kjemisk luftforurensning.

Jeg er oppriktig drittlei av å måtte lide for andres dumskap. 😠

Besøk også LHL sin side og Renere uten kjemikalier og Parfyme – Luftforurensning

Oppdatering mandag 5. september 2016

Dag 4: Jeg hadde håpet det ville gi seg nå etter at jeg var  på sjukehuset i går, men ikke, slimdannelser i lungene og hoster opp slim, fullt uslag på allergisk rhinitt så nesen renner konstant, svært lettirriterte lunger, hoste, tungt å puste da jeg skal gå en lengre strekning, og har måttet ta 60 mg Prednisolon i dag, og 6-8 doser 2 mg/ml Ventoline inhalasjonsvæske for å roe lungene og jeg er ikke ferdig ennå. Flere timer til før dagen er omme. Alt pga en  doftmaskin som spruter ut parfyme i et rom. Skal til legen i morgen igjen så da skal jeg ta dette opp.

Oppdatering tirsdag 6. september 2016

Dag 5: I dag morges kl 0400 våknet jeg av å være tett i lungene og hostet meget kraftig og hostet opp sikkert en kopp med slim, alt fra lungene. Min allergiske Rhinitt lar nesen renne ustoppelig. Var til fastlegen, CRP var under 5 igjen så altså var der ingen bakterieinfeksjon eller virus. Etter at jeg kom fra legen i dag traff jeg naboen utenfor huset som spurte om jeg var sjuk? De hadde våknet av min hoste da jeg hostet opp slim som tettet bronkiolene og bronkiene i lungene for å rense luftveiene for å få pust. Ja sa jeg, og forklarte hva som hadde skjedd. Oppvåknet var før frokost, og frokost var full dose medisiner: 60 mg Prednisolon, 10 mg Singulair, 10 mg Ceterizin, 2 doser Symbicort Forte 320/9, og en ampull Ventoline 2 mg / ml inhalasjon. Så noe frukt. Jeg var til fastlegen og tok opp astman. Jeg har vært på 60 mg Prednisolon  i tre dager og legen sier jeg må ned på 40 mg i morgen fordi ellers vil binyrene kunne ta skade, man skal ikke gå på så høy dose Prednisolon i mange dager da det er farlig. Så må jeg sakte trappe ned over flere dager for å ikke ta skade av medisinen. Jeg må ta inhalasjon med 2,5 ml 2 mg / ml Ventoline inhalasjon så fort jeg kjenner at astman begynner å reise seg igjen for å holde luftveiene frie, det blir et kart om 10-15 kapsler per dag, ca en i timen eller oftere. Legen tok som sagt også CRP som ikke viste noe som helst, altså ingen luftveisinfeksjon av bakterier eller virus, dette er ren astma. Legen sa at om vi ikke får bukt med astman din nå da må vi legge deg inn på sjukehuset. All denne medisinen gjør også at jeg får bivirkninger i form av hjertebank, og skjelving på hendene. Nå er jeg sjukmeldt ut uken. Og alt dette fordi det parfymeres i lokaler der offentligheten ferdes.

Jeg har et spørsmål til Norges Astma og Allergiforbund NAAF. Dere sier dere vil aldri forby parfymering i det offentlige rom til tross for at dere vet at ca 20-25 % av befolkningen, dvs 1,4 millioner personer i Norge er sensitive for parfymer, og at 0,5 % personer av disse er så ille rammet at de ikke kan deltake i samfunnet. Der er mennesker som er på trygd fordi de ikke kan deltake i samfunnet fordi der er så mye parfymekjemikalier i luften. Og dere har satt en NAAF på lederplass i FKMI og de går på samme linje nå. Når er det at dere skal ta oss som er hart rammet på alvor? Nå har dere lest hva som er skjedd meg. Skal dere noen gang ta ansvaret og forbedre levekårene for oss som har astma og andre lungesjukdommer, allergi, mcs, shr, og annen sensitiviet, målgruppen dere er satt å jobbe for? Jeg bare spør?

Dette er ikke et enkelt tilfelle at jeg har blitt utsatt for slik som dette, slike maskiner finnes overalt i samfunnet, på toaletter, i foajeer, i entreer, på hotell, restauranter,  i kjøpesentra, i butikker, på kontorer, og mange andre steder. Når er det at vi skal få frisk luft å puste?

I frisk luft er jeg frisk, i forurenset luft er jeg sjuk, det er såre enkelt så hva har dere tenkt å gjøre med saken? Jeg er målgruppen deres!

Oppdatering onsdag 7. september 2016

Dag 6: Jeg ble altså sjukemeldt fra i går av. Jeg er av den sorten at jeg forsøker å  stå på og gjøre mitt beste i lengden men i går sa kroppen altså nei. Jeg hadde gjentakende pustevansker som jeg måtte dempe med sterke medisiner, hostet opp slim, var trøtt og slapp, følte meg svak og svettet, jeg måtte gi opp og la kroppe leges, det fungerer ikke å jobbe da.

I dag våknet jeg også veldig tidlig og hostet opp slim, jeg har fortsatt pusteproblemer og må ta medisin. Kroppen har roet seg noe da jeg kan være hjemme i mitt allergitrygge hjem og hvile meg. Ellers har jeg samme medisinregime som tidligere bortsett fra en noe senket dose Prednisolon til 40 mg som jeg skal trappe ned til 20 mg om tre dager. Jeg sovnet igjen etter 4 timer og sov lenge. Pusten min høres ut som en gammel sko som knarrer da jeg trekker været ut og in. Jeg har slim i de nedre luftveiene i lungene 0g slimet er seigt og det er vanskelig å hoste det opp. Å ha dårlig pust påvirker også tale og allmentilstand da man må ha god pust for å snakke, og god pust for å ha det bra. Jeg må altså være hjemme fra jobben.

Klokken er nå 19,30 på den 6. dagen med alvorlig astma og all hosting og pustevansker har gjort at jeg har meget vondt i torso, jeg har vondt i musklene i overkroppen i brystkassen. Kroppen er overanstrengt. Det er så vondt å hoste at jeg nesten ikke klarer det. Og også om jeg er hjemme nå så tar det lang tid å bryte ned den betennelsen som er bygget seg opp i lungene pga den kjemiske forurensningen.

Jeg er frisk i frisk ren luft og sjuk i forurenset luft.

Oppdatering torsdag 8. september 2016

Dag 7: Jeg våknet igjen ca kl 0600 av tette lunger og hostet opp slim, jeg er fortsatt låk i brystkassen pga all hosting så å hoste opp slimet er vanskelig. Jeg føler meg sliten, og kraftløs i brystet, og det er vondt. Medisinering var i dag morges som vanlig 40 mg Prednisolon, 10 mg Singulair, 10 mg Ceterizin, 2 doser Symbicort Forte 320/9 (også til kvelds alle dager), en ampull om 2,5 ml 2 mg/ml Ventoline. Jeg hoster litt mindre i dag men er fortsatt tett og har slimdannelse. Det er slitsomt.

Opplevde i dag igjen følelsen av å utmattet sovne på sofaen for å senere våkne av å ikke få pust, og da jeg forsøker å hoste opp slimet er muskulaturen i brystkassen for sliten til å klare jobben. Hoster i 20 minutter og tar inhalasjon for å få det til.

Ellers har dagen gått i roens tegn med film og surf, og medisin, hosting, slim osv hele dagen. Hostet så jeg holdt på å kaste opp. Ja, det var så galet.

Oppdatering fredag 9. september 2016

Dag 8: Det er fredag en uke etter at jeg var inne i det rommet med doftmaskinen. Jeg våknet kl 0600 av hoste igjen og har vært våken siden, hoster opp slim med jevne mellomrom. Jeg har tatt medisin 40 mg Prednisolon, 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9, Acetylcystein Sandoz 200 mg og en 2,5 ml 2 mg/ml Ventoline inhalasjon. Må ta alt dette før jeg engang får spist, kan ikke spise med sånn hoste og slim. Normalt sett tar jeg bare 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9 om morgenen (og 2 om kvelden), og jeg kan ta det etter frokost. Jeg har fæle bivirkninger av den sterke Ventolinen, jeg er skjelven til de grader på hendene, holder jeg hånden opp så rister fingrene som ved tremor.

Jeg var til butikken for å kjøpe mat i dag, det var første gangen jeg var ute blant folk siden onsdag den 7. september, jeg hadde preparert meg skikkelig med medisin før jeg for men etter 10 minutter i butikken fikk jeg forverring av astman igjen, tung pust, heshet, vanskelig tjukk slim og begynte å svette som en følge av det. Astma er anstrengende for kroppen og et stressmoment.

Jeg er sliten, jeg er drittlei, men det går heldigvis rett vei nå, ja bortsett fra forverringen i dag. Jeg er mye bedre enn jeg var sist lørdag, men nå er det tyngre å puste igjen, jeg er ikke helt frisk ennå og fortsatt mer sensitive enn ellers. En allerede irritert lunge reagerer mer og lettere på alt man ikke tåler.

Oppdatering lørdag 10. september 2016

Dag 9: Til sjukehuset akutt midt i natta

Låg i sengen og gråt, trøtt sliten, hoste, slim og tung pust. Ringte sjukehuset for å få hjelp. Var der klokken 0320. CRP var 5, ingen bakterieinfeksjon eller virus. Fikk inhalasjon. Syresetning bedre. Sjukesøster var fantastisk snill og omtenksom, jeg er så sliten at jeg begynte å strigråte på sjukehuset, og sjukesøsteren var så snill og strøk armen og skulderen min og trøstet mig.  Hjemme igjen klokken 0450. Har ikke sovet i natt.

Nå er det litt utover på dagen og jeg har litt svie i luftveiene, pustevansker er små, men jeg må fortsatt bruke den sterke Ventolinen 2,5 ml 2 mg/ml inhalasjonsvæske med nebuliseren for å ha det bra. Da medisinen avtar i virkning, da kommer hosten tilbake, og jeg hoster opp slim, og i tillegg kjenner jeg en brennende følelse i lungen, og det er vippepunktet for om det går galet eller ikke. Bare litt så tipper det over feil vei. Det er vanskelig å forklare for noen som ikke har opplevde det selv, men det føles omtrent som; tenk det at du har en ild du vil tenne, der er et lite glor, og det er enten så brenner gloret eller så dør det ut, og det er akkurat sånn det er nå at minste lille kan få astman å forverres eller så blir det ikke så ille, så jeg må ta medisin for å ikke rammes verre. Normalt sett klarer jeg meg en vanlig inhalator for å ta bort små problemer og har god pust med PEF 500, men altså ikke nå pga denne parfymeringen. Tung medisinering og sjukemeldt.

Oppdatering søndag 11. september 2016

Dag 10: Våknet i dag morges med meget tette lunger, for å forklare det hørtes ut som en bil med startproblemer, den der tette hese lyden som da bilen ikke får luft og følelsen er som om lungene var fylte med Glava. Jeg har fått forverring igjen. Medisinene jeg har gjør ikke nytten så jeg må til legen igjen i morgen.

Dere må forstå at astma er ikke som en lett hodepine du bare kan ta et piller for så går det over. Den betennelsen som blir i lungene av allergener og irritanter man ikke tåler det sitter i flere dager. Det er en betennelse i lungenes luftveier og som bekant så tar betennelser lang tid å gå bort. Så vær så snill og vis hensyn!

Oppdatering mandag 12. september 2016

Dag 11: Var til fastlegen og ble ordinert sterkere og mer medisin pluss lungerøntgen på sjukehuset. Så nå har jeg Atrovent 2,0 ml 0,25 mg / ml som skal blandes med min Ventoline 2,5 ml 2 mg / ml  og inhaleres – og lungene er røntget.

I tillegg ble jeg sjukemeldt ut uken.

Noe positive jeg så på sjukehuset var dette.

Oppslaget sier:

“Hallo!!
Tror du sneiper (du kaster) forsvinner av seg selv??!! RØYKFRITT!!!”

Flott med et sjukehus med bein i nesen. 👍👏👏👏👏👏👏

Oppdatering tirsdag 13. september 2016

Dag 12: I natt fikk jeg faktisk sove hele natten gjennom, endelig! Jeg tror det er den nye medisinen som hjelper. Jeg hoster fortsatt og hoster opp slim men jeg tror den nye medisinen er mye bedre. Den hjelper!

Dagens medisindoser er som følger: 20 mg Prednisolon, 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9, Acetylcystein Sandoz 200 mg, 2,5 ml 2 mg / ml Ventoline blandet med Atrovent 2,0 ml 0,25 mg / ml inhalasjon hver fjerde time og i tillegg Ventolinen igjen ved behov. Slik skal jeg ha framover.

Men pga pustevanskene så har jeg et seriøst problem å snakke. Det er helt vanlig at ha taleproblemer da man har astma og pusteproblemer fordi for å klare å snakke må du ha god pust, luften er med på å lage lyd i stemmebåndene. Og da jeg fortsatt har pustevansker og betennelse i lungene da påvirker det røsten. Denne videoen under ble tatt opp i dag. Om du vil ha teksting da trykker du på tekstkortet nede til høyre i videoen (på engelsk)  Lær om astma, pust og røsten her:

Oppdatering onsdag 14. september 2016

Dag 13: Jeg har kunnet trappe ned litt på Ventoline, jeg tror det er takket være den nye Atrovent som jeg har fått, den har lengre varighet enn kun Ventoline. Astman har roet seg litt, dok er jeg ikke frisk ennå (eg. symtomfri da astma er kronisk).

Jeg har ikke sovit godt i natt, den økte medisindosen har gitt meg bivirkninger med tørr munn, jeg har våknet flere ganger i natt og vært tør som en ørken i munnen og har måttet stå opp for å drikke og spise noe for å hjelpe på det hele.

Jeg må øke Symbicort Forte 320/9 til 3 x 2 doser for dag. Symbicort Forte er forebyggende medisin.

Stemmen er fortsatt ikke helt god da jeg fortsatt sliter, men jeg hoster ikke like mye og ille lengre, i hvert fall ikke så lenge som jeg tar medisinen. Jeg såg meg selv i speilet i dag, jeg er blå under øynene og blek, det har vært en vanskelig tid.

Kanskje det går riktig vei nå?

Oppdatering torsdag 15. september 2016

Dag 14: Jeg tar fortsatt de samme medisinene, men jeg tok en ekstra dose Atrovent + Ventoline i natt (altså totalt 5 doser istedenfor 4), og det virker som om det fungerer. I morges da jeg våknet hostet jeg bare lett, men var meget tør i munnen pga bivirkninger. Dok da medisinen avtar i styrke da får jeg en brennende opplevelse i lungene og tyngre pust, for å forklare hvordan den brennende følelsen kjennes ut så er det som om jeg har halsbrenne i lungene, det brennende følelsen minsker i styrke og blir nummen bort da jeg tar medisinen. Jeg får i mellom medisindosene tung pust, og da jeg var på butikken i dag var det ille, og røsten min bar ikke og det var vanskelig å prate. I kveld har jeg altså “halsbrenne” i lungene, hoster lite, og jeg har nettopp tatt mer medisin. Men det virker som om medisinen gjør jobben sin da jeg sakte blir bedre enn jeg var, så jeg skal ta en ekstra i dag også. 5 ganger for dag er egentlig mer enn legen sa jeg skal ta, men 4 er for lite kjenner jeg så for å hjelpe meg selv så tar jeg 5. Den ekstra dosen tar jeg på natten fordi ellers blir det for mange timer uten inhalasjon i løpet av natten. Jeg skal til legen i morgen igjen. Jeg er ikke bra ennå.

Oppdatering fredag 16. september 2016

Dag 15: I dag var jeg til legen, han lyttet til lungene, det ble gjort spirometri, og jeg bli remittert til en spesialist. Er fortsatt meget følsom på astman for minste lille. Pga at det er farlig å gå for lenge på Prednisolon er denne tatt ut. Jeg fortsetter som vanlig med de andre medisinene. Sjukemeldt til og med 26.9.

Oppdatering lørdag 17. september 2016

Dag 16: Jeg våknet kl 0600 og tok medisiner. La meg og sovnet igjen. Våknet med tung pust og måtte ta inhalasjon.

Før dette skjedde har jeg normalt kunnet bare ta litt Symbicort Forte 320/9 og astma- og allergipillene mine om morgenen, jeg hadde det bra. Nå må jeg starte morgenen med sterk akuttmedisin. Jeg har begynt å uroe meg over at jeg har fått en kronisk forverring av de kjemikaliestoffene som ble sprøytet ut i luften. Skal jeg måtte ha det slik i framtiden?

Oppdatering mandag 19. september 2016

Dag 18: Jeg sto over å oppdatere i går, det skjer ikke så mye. Jeg tar fortsatt Ventoline + Atrovent i tillegg til den vanlige dosen, fordi om jeg lar være så får jeg lett forverring. Så lenge som jeg tar medisinen så greier jeg meg. Dok er jeg fortsatt meget lett påvirket av irritanter og allergener i luften, mye mer enn før, så legen har bestemt at jeg skal være hjemme til det har stabilisert seg. Slik har jeg ikke hatt det før dette skjedde, jeg var veldig sensitive, men det er verre nå. Jeg ble jo også remittert av min lege til en lungespesialist i byen, de ringte fra lungespesialisten i dag, jeg har fått time på fredag.

Om jeg har fått varige men, hvem skal jeg melde og stemme? Jeg kan ikke la dette gå upåaktet hen. Sånn som dette får det ikke være i samfunnet, og hva om jeg får nedsatt arbeidsevne? Jeg tenker på dette.

Oppdatering fredag 23. september 2016

Dag 22: I dag var jeg til lungespesialisten som min fastlege remitterte meg til, og det var et givende møte på flere måter. For det første så fikk jeg gjøre flere pustetester, faktisk mer grundig enn det ble gjort på lungepoliklinikken da jeg var der for noen år siden, totalt gjorde det nye lungelegekontoret hele 3 forskjellige pustetester, Spirometri og to andre: en for vanlig rolig pust hvor jeg også skulle holde pusten i 7 sekunder,  og et annet test som simulerte gåing i trapper med tung pust og pustestopp (maskinen gjorde pustestoppet og meg måtte puste mot det). Deretter traff jeg legen som viste seg å være samme legen som remitterte meg til Arbeidsskadeavdelingen ved Trondheim Sjukehus ca 2008/2009, det det var gammel kjenning.

Det var mye prating om astma og det som skjedde meg den 2. september som var grunnen til at jeg ble sendt til ham. Siden jeg blogget sist mandag den 19. september  har pusten min bedret seg betraktelig og jeg har kunnet kutte ut inhalasjonen av den sterke Ventolinen og Atrovent på fast basis, nå er det bare en gang inn i mellom. Pusteprøvene jeg gjorde viste at jeg har fått tilbake pusteevnen. Den ligger på ca 95% av 100% nå, og det er bra, og jeg håper det blir enda bedre. Det skal nok gå om jeg holder meg unna alt, og det betyr alle situasjoner, som betyr kontakt med det jeg ikke tåler, det betyr også å unngå personer som bruker parfyme og parfymerte produkter. Nå tar jeg bare mine vanlige medisiner Symbicort Forte 320/9, Singulair, Ceterizin og en liten dash med den vanlige inhalatoren, slik som jeg gjorde før jeg ble sjuk den 2.september. Siden onsdag har jeg bare brukt de sterke medisinene 2-3 ganger, noe som er et stort framskritt.

Vi kom også i samtale legen og jeg om Symbicort Forte, han sa det innholder et langtidsvikende Ventoline som er en av virkestoffene i Symbicort Forte. Det var nytt for meg. Jeg leste også tidligere på Legemiddelverket om Ventoline at om man må ta for mye av Ventoline da kan kroppen venne seg til medisinen og da mister den effekt. Jeg fant ut at da jeg også tar en stor dose av Symbicort Forte som innholder langtidsvirkende Ventoline pluss måtte ta så store mengder av den sterke inhalasjonsaerosolen Ventoline, så måtte kroppen sikkert ha fått for mye og kuttet ut effekten av det, og det var derfor jeg måtte få Atrovent. Atrovent har hjelpt meg veldig. Takket være Atrovent har jeg fått orden på det, og jeg kunne kutte ned på mengden Ventoline. Nå sliter jeg ikke mer med bivirkninger. Astma og den medisinske verden er mer komplisertenn man tror. I dag har jeg bare tatt en dose Ventoline + Atrovent. Fortsetter det så bra som nå de neste dagene da skal jeg jobbe på tirsdag. :)

 Oppdatering fredag 7. oktober 2016

Nå har jeg jobbet siden 27. september. Den er ikke helt okej den astman, jeg må ta mer medisin i hverdagen enn jeg gjorde før jeg ble utsatt for den kjemikaliepumpen på doen den 2. september, men det går. Jeg må ta Ventoline inhalasjon på både inhalator og nebuliseren oftere, før 2. september klarte jeg med bare forebyggende medisin og inhalatoren av og til, så jeg er redd at jeg har tatt permanent skade av den forurensningen den luftparfymeringen. Slik gjør luften utjenlig å puste. 

Jeg ba jo stasjonsinnehaver om å ta pumpen ned. Jeg har fått gledelige nyheter.

Den ble tatt ned for ca 3 – 4 uker siden. Dette gleder meg veldig at eier av bensinstasjonen tar sine kunders helse seriøst. Jeg håper inderlig at alle andre bedrifter og andre som har lokaler der offentligheten ferdes at de tar etter hans eksempel og tar ned alle slike apparater og begynner å bruke parfymefrie rengjøringsmidler og håndsåper.

Tusen takk kjære deg før at du lytter! ❤❤❤❤

Hva er parfyme?

Lær av Professor Anne Steinemann ved Melbourne University (klikke på linken for mer info om henne). Det er lett å tro at reglene er bedre i Europa og Skandinavia, men faktum er at industrien er ikke pålagt å fortelle deg innholdet i det som skjuler seg i ordet parfyme. Det får du vite her:

Jeg ønsker et forbud

Jeg ønsker at det skal bli forbudt å parfymere inneluften, og at det skal bli forbudt å vaske med parfymerte rengjøringsmidler og å bruke sprayflaske ved rengjøring der offentligheten ferdes og oppholder seg. Viser til at et forbud vil kun styrke rettighetene til oss med astma og andre lungesjukdommer, allergi, mcs, shr og andre sensititeter. I henhold til universell utforming og Tilgjengelighetsloven §9, og FNs deklarasjon om Tilgjengelighet og Universell Utforming, er det jo i grunn allerede forbudt å bruke slik at et forbud i praksis mot parfymerte produkter vil kun styrke de lover som allerede er på plass. Det er et strev å måtte kjempe aleine og melde til LDO hver eneste gang parfymerte produkter er brukt eller brukt en slik doftmaskin, sånn skal vi ikke måtte ha det, det skal være tilgjengelighet også for oss og vi skal ikke måtte bli sjuke.  Les også:

” Kjent helserisiko – Det er allerede kjent at det er en kobling mellom bruk av rengjøringssprayer og økt risiko for astma.”
Til denne artikkelen kan jeg tilføye egne erfaringer:
Jeg brukte JIF produkter i jobben som renholder fra 2005 -2007 og det blir mye på 8 timer for dag på heltid, jeg var frisk da jeg begynte i den jobben, etter to år hadde jeg utviklet astma. Jeg leste så HMS Produktdatabladene for JIF som LiIleborg AS produserer og selger og der sto at det inneholder stoffer som kan utløse allergi, så Lilleborg AS lyger i artikkelen, de vet meget godt at det ikke er ufarlig. Der var annet som var aerosolt også som vi brukte og så var der folk som røykte også (jeg har aldri vært røyker det var passivrøyk). Det ble for mye for min helse. Så kjære dere som leser, tenkt på helsen, jeg kan signere på at om du blir sjuk i astma så er det noe som vedvarer hele livet ut, og du vil bli sensitive for veldig mye. Så kjære deg, ta dette på alvor.

Og jeg viser igjen til Husbankens informasjon som er utviklet i samarbeid med NAAF.

Og hvorfor deler jeg nå denne personlige informasjonen? Fordi jeg vil at du skal forstå alvoret.

I frisk luft er jeg frisk, og i forurenset luft er jeg syk, det er så såre enkelt.

Å tilsette parfyme til inneluften er et brudd på Tilgjengelighetsloven.

Annelie Molin

For den svenske loven les her:

Det finns en lag mot sådant som luftparfymering i Sverige också.

Bristande tillgänglighet är en form av diskriminering. Från och med 1 januari 2015 införs bristande tillgänglighet som en ny form av diskriminering i diskrimineringslagen. Bristande tillgänglighet innebär att en person med en funktionsnedsättning missgynnas genom att man inte har vidtagit skäliga åtgärder för tillgänglighet för att personen i fråga ska komma i en jämförbar situation med personer utan denna funktionsnedsättning.
Det finns vissa undantag från förbudet. I arbetslivet gäller förbudet inte den som gör en förfrågan om arbete. Att tillhandahålla bostäder är också undantaget från förbudet. När det gäller att erbjuda varor och tjänster gäller förbudet inte för privatpersoner eller för företag som vid det senaste kalenderårsskiftet sysselsatte färre än tio arbetstagare. I fråga om tillhandahållande av varor och tjänster gäller förbudet inte om det krävs åtgärder i fastigheter och byggnadsverk som går utöver de krav på tillgänglighet och användbarhet som har ställts i bygglov eller startbesked för den aktuella fastigheten eller byggnadsverket.
Ordet funktionshinder ersätts med funktionsnedsättning i diskrimineringslagen, lagen om Diskrimineringsombudsmannen, skollagen och lagen om uthyrning av arbetstagare.

(Prop. 2013/14:198)

Lag (2014:958) om ändring i diskrimineringslagen (2008:567)

Lag (2014:959) om ändring i lagen (2008:568) om Diskrimineringsombudsmannen

Lag (2014:960) om ändring i skollagen (2010:800)

Lag (2014:961) om ändring i lagen (2012:854) om uthyrning av arbetstagare

Källa: https://www.notisum.se/News.aspx?itemid=11999

Att inte montera en doftmaskin är inte något som påverkar

“…om det krävs åtgärder i fastigheter och byggnadsverk som går utöver de krav på tillgänglighet och användbarhet som har ställts i bygglov eller startbesked för den aktuella fastigheten eller byggnadsverket.” Notisum.se

Jag kan därför inte se at ett förbud mot eller krav om att inte sätta upp doftmaskiner kan vara undantaget från lagen.

Vad är universell utformning, tillgänglighet och skäliga åtgärder?

Sverige och EU har tillsammans med 160 andra stater ratificerat FN konventionen om rättigheter för personer med funktionsnedsättning. Åtagandet innebär att staterna ansvarar för att genomföra universell utformning, tillgänglighet och skäliga åtgärder.

Tillämpningen av universell utformning innebär att alla nya produkter, tjänster, miljöer och program utformas så att de kan användas av alla i största möjliga utsträckning utan behov av anpassning eller specialutformning. När man utvecklar nya varor, tjänster, miljöer och program är målgruppen alla människor.

Utgångspunkten är att vi som användare har olika funktionsförmåga och egenskaper. På så sätt skapar vi ett samhälle där alla kan delta jämlikt. Producenter, myndigheter och företag kan också nå långt fler. Tillgänglighet för personer med funktionsnedsättning som grupp är en rättighet. För att skapa fullständig tillgänglighet är det en ovillkorlig skyldighet för staterna att gradvis undanröja befintliga hinder i byggnader, transport, information och kommunikation, inklusive IT samt varor och tjänster som riktar sig till allmänheten. Kostnader får inte användas som argument mot detta, Staten har ansvar för att säkerställa diskrimineringsskyddet” HSO.se

Annelie Molin

In English

Visit with trouble

Open letter

Now it has happened again. I had to go to the toilet, there was crisis and I ran into at the gas station close by. When I come into the toilet I see this fragrance machine hangs on the wall and with asthma, this is a health hazard, one gets lung congestion and difficulty breathing and can not get enough air, but I had to choose at this and do in the pants. Nobody want to do in their pants so I had to go, it is easy to understand, but it sucks to have to choose between go to the bathroom and asthma attacks. Same actually goes for all localities, one should not have to avoid going there and in that sense be locked out.

wp-image-1973377767jpg.jpg

A scent machine on the wall, cause breathing difficulties all day, and more.

For several hours afterwards I had difficulty breathing and had to use a lot of medicine. This is about accessibility, a toilet to the public should all be able to use, it should not be such that only people without disabilities can use the toilet.

You who produce, sell and use these products you support happily that it has been approved by IFRA, the International Fragrance Association, which claims this is fine and not causing allergy or other illnesses. What you must understand is that IFRA is an organization for the perfume industry and they go industry errands, they are not any interest organization for us with asthma and other lung diseases, allergies, mcs, shr and other sensitivities. Whatever they say this is not safe products for us. I am living proof of this and I’m just one of very many. WHO estimates that there are 300 million people with asthma in the world (figures from 2011 so it is certainly many more today) and in Europe it is estimated to be approximately 30 million people with asthma (figures by WHO and Ginasthma and The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA), then not all other lung diseases and sensitivities are included in the figures, nor mcs and shr and other sensitivities. in Norway counts that around 20-25% of the population, about 1 to 1.2 million people have asthma and allergies. For example stated by The Norwegian Asthma and Allergy Association (NAAF) is that about 1,4 million people in Norway get health issues from fragrance (regardless of source), and 0,5% can not participate in the society of that cause.

I notified the station owner to take it down, everyone should be able to use the toilet. No one should have to choose between being sick and going to the toilet, or any other rooms either for that matter. For us with asthma Ventoline is a necessary lifeline and we must medicate with Ventoline 24/7 the whole life, while others do not realize a thing and pollute the air with fragrance substances. Today because of a trip to the toilet at Circle K I got a really bad powerful asthma attack because I had to use the toilet at the Circle K, first it was only little but after 4 minutes it struck out in full bloom and I coughed powerfully, narrowed windpipe in the lungs, wheesing heavily when I TRIED breathing, it was not easy to get air, the eyes were bloodshot, I was out of strength because I had lack of oxygen. There were problems getting the medication into the nebulizer (inhaler in image above) because I was in such a bad shape, I was very sick. Then I had came into the office and colleagues asked lots, they surely did not know what to do, and why I was so ill. It was problem medicating. Eventually I got in me medicine anyway and afterwards I could talk and explain why it was so bad. Blame this time was a scent machine on the wall in the toilet.

Now I urge you who have such on the wall of your premises to take it down in whatever business or place, wherever it is located, if it is in the toilet or other facilities. If the manufacturer has told you that it does not trigger allergies? Then you have been lied to. The scent you spread in the room contains a lot of substances that irritate the airways in the lungs and activates allergic reactions, it makes your customers and visitors will be sick by the visit and it hangs in from a few hours to several days depending on how sensitive the person is being unable to tolerate the. When you have received such a large asthma attack by a visit with you then one is also more sensitive to everything for days afterwards.

I want to make it very clear: It’s not important who is using it, who has installed it, or who delivers to whom, what is the problem is that it is produced and put into use. We are designed to breathe air, not chemical pollution, what is relevant here is that the air becomes unfit to breathe when fragranced.

I would also like inform you that it is an offense to disclose those who do not tolerate it in accordance with the Norwegian Equality and Anti-Discrimination Act § 9.

LHL website screenshot, in English below:

LHLorg-parfyme-diskriminering-§9-Skjermbilde

“LHL say that it must be emphasized that the requirement for universal design in Discrimination and Accessibility Act § 9 also includes measures to prevent exposure to various allergens and irritants, including scented products. LHL also believe that it should be allocated for preventive educational activities so that more people will pay attention to that scented products can inflict injury. LHL urges that:
◾public enterprises and government services adopt perfume-free working environment in the interests of users and employees.
◾privat businesses and employers are doing the same.
◾private persons do take into account sensitive persons by avoiding scented products in situations where you get close to other people.

LHL Asthma and allergies have made a poster stating fragrance free zone. The poster can be downloaded and posted where it is needed. ” LHL Asthma and Allergy

The United Nations (UN) has adopted accessibility and rights for people with disabilities, including:

“e) Recognizing that disability is an evolving concept and that disability results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in society on an equal basis with others,
h) Recognizing also that discrimination against any person on the basis of disability is a violation of the inherent dignity and worth of the human person,
j) Recognizing the need to promote and protect the human rights of all persons with disabilities, including those who require more intensive support,
l) Recognizing the importance of international cooperation for improving the living conditions of persons with disabilities in every country,
n) Recognizing the importance for persons with disabilities of their individual autonomy and independence, including the freedom to make their own choices,” UN.org

For information on Accessibility and Universal Design in the United Nations declarations on disabilities here.

What is a disability?
Lung diseases such as asthma and others, allergies and other sensitivities is a disability, a handicap. How? The definition of a disability is:

According to Norwegian public reports,
NOU 2005: 8 of equality and accessibility. Legal protection against discrimination on grounds of disability. Defined disability as:

“Disability arises when there is a gap between the individual’s capabilities and design or function in an environment / environmental / construction.” Norwegian public reports NOU 2005: 8 of equality and accessibility

Note that it is not stated specifically what is handicap, it says for example not mobility impaired, blind, deaf, etc., it is only indicated how something is a disability, a handicap. The same statement you find in the United Nation (UN) definition of the accessibility act, so it is demanded of all countries.

I have received relevant information about the Accessibility Act of The Norwegian Government at FRP which was one of the parties that responded to my inquiry about the right to fresh air.

Quote

” Discrimination and Accessibility Act “establish the following: § 9 Obligation to ensure general accommodation (universal design) “Public Sector shall work actively and purposefully to promote universal design within the undertaking. The same applies to private business to the general public “Through Discrimination and Accessibility Act give people with disabilities protection against discrimination. All businesses geared toward the general public are obliged to work for universal design and individual accommodation. Requirements for universal design is drawn into ever more regulations and laws. Also featured in “Plan – and Building Act. Breach of the obligation to ensure universal design pursuant to the public and workforce is regarded as discrimination. ” Norwegian Government FRP

Quote end

The same law is also in Sweden, see below for more information about this.

Publication of NAAF and Husbanken (Housing Bank), translation below:

Universell-utforming-NAAF-Skjermbilde2

” “Universal design is the design of products and environments in such a way that they can be used by all people, to the greatest extent possible, without the need for adaptation or specialized design.”
Requirements for universal design drawn into ever more regulations and laws. Through discrimination and accessibility law gives people with disabilities protection against discrimination. All businesses geared toward the general public are obliged to work for universal design and individual accommodation. “ Husbanken.no

Please read the publication here (in Norwegian):
biblioteket.husbanken.no/arkiv/dok/Komp/Uu_bygg.pdf

I understand that you might not know this, so I will tell you that fragrance products and such fragrance equipment makes 1 of 4 ill. You will probably not your customers, visitors, clients, colleagues, students or friends any harm?

Turn up the ventilation instead and wash frequently with fragrance-free detergents, fragrance free washing, fragrance free hand soap and use otherwise perfume free products, air out and give us fresh air to breathe, then we which are the one of 4 of your customers / attendants could use your services and premises on equally with all others and without having to go from there with lung congestion and difficulty breathing. At worst, it could mean that we end up at the hospital and that we avoid using your business or premises and spend our money and interests somewhere else. There is no pleasant shopping or visit to your localities if one must become sick from the experience inhaling the polluted air, no matter what source of the fragrance. Now I have told you that, and I hope and pray that you listen and do as I ask. I’m tired of not being able to avail myself of your premises.

Update Sunday 4 September 2016

I had to go acute to the hospital.

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3th day: Sunday now. I have had difficulty breathing since Friday because of the fragrance that was active at the Circle K station, now since Friday I’ve had repeated difficulty breathing and burning sensation from the upper respiratory tract and down into the lungs, my own medicine has not been enough so I had to take to the emergency room at the hospital. CRP was below 5, no bacterial infection or virus. I also have increased medication with Prednisolone now 60 mg and more asthma medicine to get rid of the inflammation that’s been caused on me by the chemical influence of perfume chemicals in the room. When is it that people will understand that perfume is not a harmless cozy thing for the benefit of all? There is no wellness in chemically polluted air.

Why should I have to suffer for your habits? Why should I have to go on such a medicine regime and at the hospital because you perfume?

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Not only that I have to take medication, but it does mean great suffering in everyday life, and to be totally honest one can die of asthma, a severe asthma attack suffocates the person having it.

“4.4 Special warnings and precautions
If the patient must increase the use of β2-agonists with short duration to control asthma symptoms, it indicates a worsening of the disease. Sudden and progressive deterioration of asthma symptoms are potentially life-threatening,” Norwegian Medicines Agency Slv.no

Read about  Asthma kills and Asthma potentially life threatening

What is asthma?

Asthma is a disease in the lung’s airways called bronchi and bronchioles, it is a chronic inflammation of these tiny airways, it is caused by sensitivity or allergy (immunological reactions) and aggravation comes from being exposed either to allergens (substances not tolerated) or irritants (substances irritating the airways), and when this happens the lung airways are constricted of mucus while the muscles surrounding these airways spasms and makes airways very cramped, these two things helps narrow and block the passage for air to pass and one gets trouble breathing. The difference in asthma and COPD is that asthma symptoms occur only at the negative impact of things the persons health can not tolerate, while COPD means difficulty breathing 24/7 and with worsening by irritants, it means that the disease conditions and symptoms of asthma can be avoided by protecting the sick from these substances and situations.

Perfume is one of those things that provoke and trigger asthma attacks – and other lung diseases, allergies and sensitivities. You have to rethink Your use of perfumes where the public go, whether scented products, scent machines, scent marketing, perfume on yourself, in your clothes, hair products, lotions, hand soaps etc.

I’m frankly sick of having to suffer for someone else’s stupidity. 😠

Also visit LHL site (in Norwegian) and Cleaner without chemicals (in Swedish) and Perfume – Air pollution

Update Monday, 5 September 2016

Day 4: I had hoped the asthma would get better now after I was in the hospital yesterday, but not, I have mucus build up in the lungs and I am coughing up mucus, full scale of allergic rhinitis as nose runs constantly, very easily irritated lungs, cough, heavy breath and hard to breathe when I walk a longer distance, and I have had to take 60 mg Prednisolone today, and 6-8 doses 2,5 ml 2 mg  / ml Ventoline inhaler to calm the lungs and I’m not done yet, it is several hours before the day is over. All because of one scent machine that spreads perfume in a room. Going to the doctor tomorrow again so I shall take this up with my doctor.

Update Tuesday, 6 September 2016

Day 5: This morning at 0400 I woke up by constriction of the lungs, coughing very powerful and coughed up surely a cup of mucus, coming from the lungs. My allergic Rhinitis lets nose drain unstoppable. I was at my doctor’s office, CRP was below 5 again so therefore there was no bacterial infection or virus. After I got from the doctor today, I met the neighbor outside the house who asked if I was sick? They were awakened by my cough when I coughed up mucus that clogged the bronchioles and bronchi of the lungs to clear the airways to get breath. This was before breakfast, and breakfast was full dose of medicines: 60 mg Prednisolone, 10 mg Singulair, 10 mg Ceterizin, 2 doses of Symbicort Forte 320/9, and a vial Ventoline 2,5 ml 2 mg / ml inhalation. So some fruit. I was to the family doctor and addressed the asthma. I’ve been on 60 mg Prednisolone for three days and the doctor says I have to reduce to 40 mg in the morning because otherwise the adrenal glands may be harmed, one should not go on such a high dose Prednisolone for many days as it is dangerous. Then I have to slowly decrease the dozage down over several days to not get damage by the medicine. I must take inhalation with 2.5 ml 2 mg / ml Ventoline inhaled as soon as I feel the asthma starts to rise again to keep airways free, there will be dosages about 10 to 15 capsules per day, about every hour or more often. The doctor took, as I said CRP that did not show anything, no respiratory infection by bacteria or viruses, this is pure asthma. The doctor said that if we do not prevail against the asthma of yours now then we need to admit you in to the hospital. All this medication also makes sure I get side effects in the form of racing heart beat and trembling of the hands. Now I’m on sick leave to the end of the week, and all this because of the perfumed premises where the public go.

I have a question to the Norwegian Asthma and Allergy Association NAAF. You say you will never forbid perfume to ring in public room despite knowing that about 20-25% of the population, ie 1.4 million people in Norway are sensitive to perfumes, and that 0.5% ie 5000 people are so bad hit that they can not participate in society. There are people who are on welfare because they can not participate in society because there is so much perfume chemicals in the air. And you put a NAAF editorialized in FKMI and they go on the same line now. When is it that you will take us that is hard hit by this seriously? Now you have read what has happened to me. Will you ever take responsibility and improve the living conditions of us who have asthma, and other lung diseases, allergies, mcs, shr, and other sensitivities, the group you are put to work for? I am just asking?

This is not an individual case that I have suffered like this, such machines are found everywhere in society, in restrooms, lobbies, entrance halls, hotels, restaurants, in shopping centers, in shops, offices and many other places. When is it that we should get fresh air to breathe?

In non-polluted air I am healthy, in polluted air I am sick, it is straightforward: so what do you plan to do about it? I am in your target group NAAF!

Update Wednesday, 7 September 2016

Day 6: I was set on sick leave by my doctor notified yesterday. I’m the kind of person that I try to carry on and do my best in length but yesterday my body said no. I had recurring breathing difficulties which I had to curb with strong medication, coughing up mucus, was tired and limp, felt weak and sweating. I had to give up and let my body heal, it does not work going to work like this.

Today I woke very early and coughed up mucus, I still have breathing problems and must take medicine. The body has calmed down somewhat when I could be at home in my allergy safe home and rest. Otherwise, I have the same medicine regime as previously except for a slightly lowered dose of Prednisolone to 40 mg which I shall step down to 20 mg after three days. I fell asleep again after 4 hours and slept long. To explain; my breath sounds kind of like an old shoe when walking when I breathe out and in. I have mucus in the lower airways of the lungs and mucus is sticky and difficult to cough up. Having difficulty breathing also affects speech and general condition then you have to have good breathing to talk. Because of asthma I must therefore be home from work.

The time is now 19.30 o’clock on the 6th day with severe asthma and all coughing and difficulty breathing have done that I have a very sore torso, I have pain in the upper body muscles in the chest. The body is overworked. It is so painful to cough that I can hardly do it.

I am healthy in the fresh clean air and sick in polluted air, simple as that. And even if I am at home an asthma attack like this takes time to curb since it is an active inflammation in the bronchi and bronchioles.

 Update Thursday, 8 September 2016

Day 7: I woke up again approximately at 0600 of lung congestion and coughing up mucus, I am still hurting in the chest because of all the coughing so to cough up mucus is difficult. I feel tired and weak in the chest, and it hurts. Medication was this morning as usual 40mg Prednisolone, 10 mg Singulair, 10 mg Ceterizin, 2 doses of Symbicort Forte 320/9 (also for evening every day), one vial of 2.5 ml 2 mg / ml Ventoline. I cough a little less today but remains tight in the lungs and mucus formation. It is tiresome.

Today I experienced falling asleep exhausted on the couch to later be waken up by not getting breath, and when I try to cough up mucus the muscles in the chest are too tired to do the job. I coughed for 20 minutes and took inhalation to finally achieve it.

Otherwise, the day passed in a calm character with film and surf, and medicine, coughing, phlegm, etc. throughout the day. Coughed so I kept on throwing up. Yes, it was that bad.

Update Friday, 9 September 2016

Day 8: It’s Friday, a week after that I was in that room with this fragrance machine. I woke up at 0600 by coughing again and have been awake since, coughing up mucus regularly. I have taken medicine 40 mg Prednisolone, 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9, Acetylcysteine Sandoz 200 mg and 2.5 mL 2 mg / ml Ventoline inhalation. I must take all of this before I even get to eat, I can not eat with this ongoing cough and phlegm. Normally I take only 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9 in the morning (and 2 in the evening), and I can take it after breakfast. Now I have ugly side effects of the strong Ventoline, I’m shaky to the point on my hands, when I hold my hand up fingers are shaking by tremor.

I was to the store to buy food today, it was the first time I was out in public since Wednesday, September 7th, I had prepared myself properly with medicine before I went but after 10 minutes in the store I got worsening of the asthma again, wheezing, hoarseness, hard thick mucus and began to sweat as a result of it. Fragrance is in the store too. Asthma is tiring for the body and a stress factor.

I’m tired, I’m fed up, but it is maybe hopefully on right path now, yes except for deterioration today. I’m much better than I was last Saturday, but now it’s harder to breathe again, I’m not fully recovered yet and still more sensitive than usual. An already irritated lungs react more and easier on everything my lungs can not tolerate (like for everyone else with this issue).

Update Saturday, 10th September 2016

Day 9: To the hospital emergency room in the middle of the night

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Lay in bed and crying, sleepy and tired, cough, phlegm, difficulty breathing and wheezing. Called the hospital for help. Was there at 0320 at night. CRP was 5, no bacterial infection or virus. Got inhalation. Oxygen level better. Nursing Sister was wonderfully kind and thoughtful, I am so tired and stressed by all this that I started to cry like a waterfall at the hospital, and nursing sister was so kind and stroked my arm and my shoulder and comforted me. Home again at 0450. Did not sleep this night.

Now it’s a little beyond the day and I have a little burning in the airways, breathing difficulties are right now small because of the medicine, but I still need to use the strong Ventoline 2.5 ml 2 mg / ml solution for inhalation with nebulizer to thrive. When medication decreases in effect, as will cough grow back, and I cough up phlegm, and besides that I feel a burning sensation in the lungs, and it is the tipping point for whether it goes wrong or not. Just a little needed to tipping it over the wrong way. It’s hard to explain to someone who has not experienced it themselves, but it feels much like; Imagine that you have a fire you will ignite, there is a little flare and it is either to burn or die out, and that’s just the way it is now that the smallest can make the asthma worsen, so I have to take medicine to not be hurt worse. Normally I manage myself using a regular inhaler to take away small problems and have good breath with PEF 500, but not now because of this perfume. And even cooking food can be a worsening problem since it gives away cookery fumes, but one have to eat. Heavy medication and sick leave.

Update Sunday, 11 September 2016

Day 10: Woke up this morning with very much lung congestion and constriction, to explain what it sounded like; almost like a car having starting problems, the dense raspy sound when the car does not get air and the feeling is as if the lungs were filled with insulating material. I have gotten worsening again. The drugs I have does not do the job good enough so I have to go to the doctor again tomorrow.

You have to understand that asthma is not like a light headache you can just take a pill for and everything will be over. The inflammation that are in the lungs of allergens and irritants caused by content ones health can not tolerate stick for several days. It is an inflammation of the lung airways and as known inflammation takes long time to go away. So please show consideration!

Update Monday, 12 September 2016

Day 11: I went to my doctor and was ordained stronger and more medicine plus lung x-ray at the hospital. I told my doctor that the medicine I get at the hospital works better so now I take Atrovent 2.0 ml 0.25 mg / ml to be mixed with my Ventoline 2.5 ml of 2 mg / ml and inhaled – and lungs are X-rayed.

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In addition he said, “-NO WORK THIS WEEK!” and put me on sick leave to the end of the week.

Something positive I spotted at the hospital was this:

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It is wonderful to find that ones hospital is tuff. Note says;

“Hello!!
Do you believe the cigarett butt (you throw away) removes itself???!!! SMOKE FREE!!!”

I can only applaud them. 👍👏👏👏👏👏👏

Update Tuesday, September 13 2016

Day 12: This night I have actually been able to sleep the whole night through, finally! I woke up at 0700. I believe it is the new medicine. I am still coughing and it is coming mucus when I cough but the new medicine helps a lot.

Today’s medicine doses: 20 mg Prednisolone, 10 mg Singulair, 10 mg Ceterizin, 2 x Symbicort Forte 320/9 (also in the evening), Acetylcystein Sandoz 200 mg, 2,5 ml 2 mg / ml Ventoline mixed with Atrovent 2,0 ml 0,25 mg / ml inhalation every 4th – 5th hour, and in addition the Ventoline when needed, and this I will have to take from now on, til I get symtom free.

Though I have a serious voice issue. One need air to be able to talk okay, and having an asthma attack one is also affected on the voice. Since I still have breathing issues even though I have new medicine, my voice is affected. This video was recorded today right before taking a new dose of medicine after 5 hours. The video is subtitled in English, if it does appear directly, please press the subtitle card at the lower right corner of the video. Learn more about asthma, constricted airways and the voice here:

Update Wednesday, 14 September 2016

Day 13: I have been able to scale down a bit on Ventoline, I think it is thanks to the new Atrovent that I have received, it got a longer duration. The asthma cools off but  I am not well yet (eg. Symtom free when asthma is chronic).

I have not slept well last night, the increased drug dosage has given me the side effects of dry mouth, I woke up several times a night and been dry as a desert in the mouth and have had to get up to eat and drink something to stop it.

I must increase Symbicort Forte 320/9 to 3 x 2 doses a day, it is the preventive medicine.

The voice is still not good, but I cough not as much and bad anymore, at least not as long as I take medicine. But man am I blue under my eyes, this has been a hart time.

Maybe it goes right way now?

Update Thursday, 15 September 2016

Day 14: I still takes the same medicines, but I took an extra dose of Atrovent + Ventoline last night (ie a total of 5 doses instead of 4), and it seems as if it works. This morning when I woke up coughing I only coughed more easy but I was very dry in the mouth because of the side effects of the medicine. Though, when medication decreases in strength after a few hours when I get a burning experience in the lungs and harder to breathe, to explain how the burning sensation feels like; it is as if I have throat burn in the lungs. The burning sensation decreases in strength when I take medicine. I get in between doses of medication heavy breathing, and when I was at the store today it was bad, and my voice bar not and it was difficult to talk. Tonight I have “throat burn” in the lungs, not so hard time to breathe, I have just taken more medicine. But it seems as if the medication is doing its job when I slowly being better than I was, so I’ll take a extra dose this night as well. 5 times a day is really more than the doctor said I should take, but 4 is too little, to help myself so I take 5. The extra dose I take at night because otherwise there will be too many hours without inhalation during the night. I’m going to the doctor tomorrow again. I am not well yet.

Update Friday, 16 September 2016

Day 15: Today I was at the doctor, he listened to the lungs, it was done spirometry, and I will be remitted to a specialist. I am still very sensitive in my asthma for slightest impact. Because of that it is dangerous to go too long on Prednisone it is now removed from my medicines. I continue as usual with the other medicines. I am on sick leave ’til 26.9.

Update Saturday, 17 September 2016

Day 16: I woke up at 0600 and took all pills and Symbicort Forte 320/9 medication, and then and fell asleep again.

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Woke with heavy breathing and had to take inhalation. Before this happened, I have normally been able to just take some Symbicort Forte 320/9 and my asthma and allergy pills in the morning, now I have to use heavy emergency medicine before breakfast. I’m starting to worry that I  maybe have gotten a chronic deterioration by the chemical substances were sprayed into the air, wilI I have to have it like this in the future?

Update Monday, 19 September 2016

Day 18: I did not update yesterday, it has not happened much. I’ll still take Ventoline + Atrovent in addition to the usual dose of asthma and allergy medicines, because if I do not then I get easily deterioration. As long as I take medicine so it works. Though, I’m still very easily affected by irritants and allergens in the air, much more than before, so the doctor has decided that I should stay home until it has stabilized. Like this I have not had it before this happened, I was very sensitive, but it’s worse now. I was  also remitted by my doctor to a lung specialist in town, they called from lung specialist today, I have gotten an appointment on Friday.

If I have gotten permanent injury, whom should I report and sue? I can not let this go unnoticed. It is not okay it being like this in society, and what if I have gotten an injury that lower my ability to work? I can not help thinking of this.

Update Friday, 23 September 2016

Day 22: Today I went to the lung specialist as my GP Remitted me and it was a rewarding meeting in several ways. Firstly I got to do more breathing tests than I have ever done before, in fact, more thoroughly than it was done by the lung clinic when I was there a few years ago. In total the new lung clinic did 3 different breathing tests, spirometry and two others: one for normal calm breathing where I also should hold my breath for 7 seconds and then breathe again, and another test that simulated stair climbing with heavy breathing and full constriction (machine simulated breathing stopped and me had to breathe against it). Then I met the doctor who turned out to be the same doctor who remitted me to The Occupational Injury Department at Trondheim Hospital about 2008/2009, fun he was know from before.

Much chatting about asthma and what happened to me on September 2, which was why I was sent to him. Since I blogged last Monday the 19th of September, my breathing improved considerably and I have been able to cut out the inhalation of the strong Ventoline and Atrovent on a regular basis, now it’s only once in between i use it. Breathing tests I did showed that I have regained breathability. It sits on about 95% of 100% now, and it’s good, and I hope it gets even better. It should probably work if I stay away from everything, and that means all situations which means contact with what my health can not tolerate, and that means even people using fragrance and fragrance products. Now I take only my regular medication Symbicort Forte 320/9, Singulair, Ceterizin and a small dash with the regular inhaler, as I did before I got sick the September 2nd. Since Friday, I have only used the strong medicines 2-3 times, which is a major advance.

We also came to talk the doctor and I about Symbicort Forte, he said it contains a long time preventive working kind of Ventoline which is one of the components of Symbicort Forte. This was news to me. I also read earlier at Medicines Agency about Ventoline that if you have to take too much of Ventoline when the body can get used to the medication and then lose the effect.  I found that when I also take a large dose of Symbicort Forte containing a kind of long-acting Ventoline plus had to take such large quantities of the strong inhalation aerosol Ventoline, so had the body certainly had been given too much and cut out the effect of it, and that’s why I had to get Atrovent. Atrovent has helped me a lot. Thanks to Atrovent I’ve got track of it, and I could cut down on the amount Ventoline. Now I struggle no more with side effects. Asthma and the medical profession is more complicated than you think. Today I have just taken one single dose of Ventoline + Atrovent. If it continue as good as now the next few days then I’ll work on Tuesday. :)

What is fragrance?

Learn from Professor Anne Steinemann at Melbourne University (click the link for more info about her). It is easy to believe that the rules are better in Europe and Scandinavia, but the fact is that the industry is not required to tell you the contents of the hidden word perfume. This you find here:

I want a prohibition

I want it to be prohibited perfuming indoor air, and that it should be forbidden to wash with perfumed cleaning products and the use of spray bottles to clean where the public have access and else go. I am aming at that a ban would only strengthen the rights of us with asthma and other lung diseases, allergies, mcs, shr and other sensitivities. According to Universal Design and Accessibility Act § 9, and the UN declaration of Accessibility and Universal Design, it is already forbidden to use so that a prohibition in practice on scented products will only strengthen the laws already in place. It’s a hassle having to fight alone and opt for equality and availability to the Equality and Availability ombudsman every time there is such hinder as fragrance polluted air, so that we will not have to fight a daily battle, it should be availability also for us and we should not have to become sick.

Also read:

“Known health risks – It is already known that there is a link between the use of cleaning sprays and increased risk of asthma.” (in Norwegian)
For this article I can add my own experience: I used JIF spray cleaning products in my work as a cleaner from 2005 -2007 and it adds up and become a lot in 8 hours full time use. I was healthy and had no asthma when I started in the job and after two years I had developed asthma. I read so the safety data sheets for JIF manufactured and sold by LiIleborg AS, and there stood that it contains substances that can trigger allergies, so Lilleborg AS is lying in the article, they know very well that it is not harmless. This information is not given in the store, you have to find it in the product safety data sheets, and this is most likely true for most products. There were other things that were aerosol also that we used and so were there people who smoked too (I’ve never been smoking it was passive smoke). It was too much for my health. So dear ones who read, do think and care about yours and others health, I can sign that when you become sick in asthma then it is something that persist for life, and you will be sensitive to very much. So dear, take this seriously. And I refer you again to Husbanken.no information developed in cooperation with NAAF (in Norwegian).

And why do I share now this personal information? Because I want you to understand the seriousness.

In fresh air, I am healthy, and in polluted air I am ill, it is so really simple.

Fragrancing of the air is a violation of the law.

Annelie Molin

There is a Swedish law act against discrimination on disability in Sweden too;

Lack of accessibility is a form of discrimination. As of January 1, 2015 introduced a lack of accessibility as a new form of discrimination in the Discrimination Act. Lack of accessibility means that a person with a disability is disadvantaged by not having taken reasonable measures for accessibility to the person in question will be in a comparable situation to people without such disabilities.
The word disability replaced with “decreased function ability” in the discrimination Act, the Equality Ombudsman, the Education Act and the Act on the employment and hiring of workers.

◾(Prop. 2013/14: 198)
◾Act (2014: 958) on the amendment to the Discrimination Act (2008: 567)
◾Act (2014: 959) amending the Act (2008: 568) concerning Discrimination Ombudsman
◾Act (2014: 960) amending the Education Act (2010: 800)
◾Act (2014: 961) amending the Act (2012: 854) regarding the employment and hiring of workers.
Source: notisum.se/News.aspx?itemid=11999

What is universal design, accessibility and reasonable measures?

Sweden and the EU, together with 160 other countries have ratified the UN Convention on the Rights of Persons with Disabilities. This commitment means that states are responsible for implementing universal design, accessibility and reasonable measures.

The application of universal design means that all new products, services, environments and applications designed to be used by all the greatest extent possible without the need for adaptation or specialized design. When developing new products, services, environments and programs target all people.

The point is that we as users have different functional capabilities and characteristics. In this way, we create a society where everyone can participate equally. Producers, authorities and companies can also achieve far more. Accessibility as a group is an entitlement. To create complete accessibility is an unconditional obligation of States to gradually remove existing obstacles in buildings, transportation, information and communications, including information technology and products and services aimed at the general public. Costs should not be an argument against this, the State has the responsibility to ensure protection against discrimination” HSO.se

#doftmaskin #duftmaskin #astma #allergi #astmaallergi #fragrancemarketing #scentmarketing #airfreshener #luftoppfrisker #parfyme #parfym #parfum #perfume #fragrance #duft #doft #luftforurensning #forurensning #luftförorening #förorening #airpollution #pollution

#scentmarketing #fragrancemarketing #airfreshener #luftoppfrisker #doft #parfyme #luftforurensning #forurensning #tilgjengelighet #TilgjengelighetslovenParagraf9 #lovbrudd #astma #allergi #astmaallergi #sensitivitet #CircleK med flere.


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Yoghurt og hodepine- #astma #allergi #sensitivitet – Yogurt and Headache 

(Scroll down for English and Swedish in that order)

Yoghurt og hodepine

En fortelling om mellommenneskelige relasjoner og konsekvensen av å legge byrden på den sjuke

Noen mennesker mener at astma, allergi og sensitivitet er helt den sjukes ansvar og de fraskriver seg eget ansvar ved å si at

Det er ditt ansvar å ta medisin. Jeg har rett å gjøre som jeg vil. Du skal ikke begrense meg.

Tenk deg at du får hodepine av yoghurt, likevel tar jeg og heller i deg yoghurt under tvang. Du sier til meg at jeg får hodepine av yoghurt, slutte! Jeg fortsetter å tvinge i deg yoghurt og sier at du får vel bare ta et hodepinepiller da, jeg gjør som jeg vil og har lyst og jeg liker å helle yoghurt i deg det er min rett! Du fortsetter å si at du får hodepine av yoghurt mens jeg fortsetter å helle i deg yoghurt og du medisinerer for å få mindre vondt, men jeg tar ingen hensyn fordi jeg synes det med yoghurt er bra, du får hodepine og må ta enda mer medisin. Og sånn går dagene… Og det er ikke bare jeg som syns yoghurt er bra og som syns du skal vise hensyn til at vi andre liker det, de forer deg også med yoghurt og du får bare mer hodepine. Da du ber om å slippe yoghurten og forklarer hvorfor da sier vi bare at da får du vel bare holde deg unna! Vi kan sitte her og du kan sitte langt der borte. Og du blir sittende aleine mens vi andre fortsetter som før, og tvangforer andre med yoghurt, og tar ikke hensyn. Du må leve i samfunnet. Du vil ikke være alene. Jeg og de andre som liker yoghurt fortsetter å tvangfore deg med yoghurt mens du får mer og mer vondt i hodet. Du tar så mye medisin mot din hodepine at du blir negative påvirket av medikamentene. Du får bivirkninger. Men vi fortsetter som før. Til slutt ender du opp på sjukehuset, kroppen klarer ikke mer.

Og da du sier fra at det ikke er greit da blir vi sure på deg fordi du verner om helsen, og vil hindre oss med yoghurten,  fordi du vil ikke ha hodepine hele tiden.

Sånn er det med astma, allergi og sensitivitet da du velger at din frihet og dine valg er viktigere enn andres helse.

Skjønner du nå?

In English

Yogurt and headache

A tale of interpersonal relationships and the impact of adding the burden on the sick

Some people think that asthma, allergies and sensitivity is the responsibility of the sensitive person and disclaims own responsibility by saying that

It is your responsibility to take medicine. I have the right to do whatever I want. You may not limit me.

Suppose you get a headache from yogurt, yet I take no consideration and force yogurt to your diet.  You say to me that I get headaches from yogurt, stop! I continue to force in you yogurt and says you’ll just have to take a headache pill then, I do what I want and I want and I like to pour the yogurt, it’s my right! You keep saying that you get headaches from yogurt while I continue to pour into you yogurt and you medicate to get less hurt, but I take no consideration because I think it with yogurt is good, you get headaches and have to take even more medicine. And so it goes day by day …  And it is not only I who think yoghurt is good and who think you should show respect to the rest of us who like yogurt, they feed you well with yogurt and you only get more headaches. When you request to drop the yogurt and explains why then we say that then you just stay away! We can sit here and you can sit far over there. And you will be alone while the rest of us continue as before force feeding others with yogurt and takes no account. You have to live in society. You do not want to be alone. I and the others who like yogurt continues to force-feed you with yogurt while you get more and more headaches. You take so much medicine for your headache so that you get negative influence of the drugs. You get side effects. But we will continue as before. Eventually you end up at the hospital, the body can take no more.

And when you say that it’s not okay then we get mad at you because you cherish your health, and will deny us with the yogurt, because you do not want to have headaches all the time.

So it is with asthma, allergies and sensitivity when you select your freedom and that your choice is more important than the health of others.

Do you understand now?

In Swedish

Yoghurt och huvudvärk

En berättelse om relationer och samspel mellan människor och konsekvenserna av att lägga bördan på de sjuka personen

Vissa människor tycker att astma, allergier och känslighet är den sensitiva personens ansvar och friskriver eget ansvar genom att säga att

Det är ditt ansvar att ta medicin. Jag har rätt att göra vad jag vill. Du ska inte begränsa mig.

Anta att du får huvudvärk av yoghurt, men jag häller i dig yoghurt under tvång. Du säger till mig att jag får huvudvärk av yoghurt, sluta! Jag fortsätter att tvinga i dig yoghurt och säger att du bara måste ta en huvudvärkstablett då om du plågas, jag gör vad jag vill och jag vill och jag gillar yoghurt och fortsätter att tvinga på dig yoghurt, det är min rättighet! Du säger att du får huvudvärk av yoghurt medan jag fortsätter att tvinga  i dig yoghurt och du medicinerar för att få mindre ont, men jag tar ingen hänsyn, eftersom jag anser att det med yoghurt är bra. Du får huvudvärk och måste ta ännu mer medicin . Och så fortsätter det dag för dag, dagarna i ända… och det är inte bara jag som tycker yoghurt är bra och som tycker du ska visa respekt för resten av oss som gillar det, de föder dig väl med yoghurt och du  få bara mer huvudvärk. När du begär att slippa yoghurt och förklarar varför då säger vi att du får väl bara hålla dig borta! Vi kan sitta här och du kan sitta långt där borta. Och du kommer att vara ensam medan andra fortsätter som förut, och tvångsmatar andra med yoghurt och tar ingen hänsyn. Du måste leva i samhället. Du vill inte vara ensam. Jag och de andra som gillar yoghurt fortsätter att tvångsmata dig med yoghurt och samtidigt får du mer och mer huvudvärk. Du tar så mycket medicin för din huvudvärk att du är negativt påverkad av medicinerna. Du får biverkningar. Men vi kommer att fortsätta som tidigare. Till slut hamnar du på sjukhuset för kroppen orkar inte ta mer.

Och när du säger att det inte är okej då vi bli arga på dig eftersom du vill vårda din hälsa, och vill hindra oss som gillar yoghurt, eftersom du inte vill ha huvudvärk hela tiden.

Så är det med astma, allergier och känslighet när du väljer din frihet och att ditt val är viktigare än andras hälsa.

Förstår du nu?


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Princess Märtha Louise of Norway sensitive to fragrance – aftonbladet.se

(Scroll down for English)

Prinsesse Märta Louise er meget sensitive mot parfyme

Som barn oppdaget Prinsesse Märtha Louise at hun ble sjuk da hun kom i kontakt med parfymer. I en artikkel i Aftonbladet.se forteller hun om hvordan hun ble kvalm da hun luktet på sin mors parfyme Chanel no. 5. I det livet hun levde som offentlig person var det hun som skulle ta initiativ til kontakt på offentlige møter og fester, sensitiviteten gjorde at hun ble genert og inadvendt, hun skammet seg over å være annerledes.

Å hele tiden måtte møte parfymerte personer har hele livet vært en utfordring og er det fortsatt.

Hun forsøkte i mange år late som hun var “normal” og slet med å bli sjuk av parfymer, å late som at hun var normal innebar å utsette seg og utstå parfymer og dermed bli sjuk og måtte late som at hun var frisk.

Da hun ble voksen fikk hun en diagnose og hun har det bedre fordi hun vet at hun ikke er rar. Hun sier hun bruker aldri parfyme.

Les artikkelen i Aftonbladet http://www.aftonbladet.se/nojesbladet/klick/article21072960.ab

In English

Princess Märtha Louise of Norway is highly sensitive against perfume

As a child discovered Princess Martha Louise that she was ill when she came in contact with perfumes. In an article in Aftonbladet.se she tells of how she was nauseous when she smelled on her mother’s perfume Chanel no. 5. In the life she lived as a public person, it was she who should take the initiative to contact the public meetings and parties, sensitivity meant that she was shy and withdrawn, she was ashamed to be different.

To be subjected to perfume on others has been a challenge all her life, and still is she says.

She tried for years to pretend that she was “normal” and struggled with getting sick from perfumes, to pretend that she was normal meant exposing herself and endure perfumes and thus become sick and had to pretend that she was healthy.

When she became an adult she got a diagnosis and she’s better because she knows that she is not weird. She says she never uses perfume, Princess Märta Louise is perfume free.

Read the article in Aftonbladet (Swedish) http://www.aftonbladet.se/nojesbladet/klick/article21072960.ab


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Hypothetically religiously

Incense

Incense in a Buddhist temple. (photo sanaakosirickylee.wordpress.com since I can not enter to take a photo myself.)

Incense in a Buddhist temple. (photo sanaakosirickylee since I can not enter to take a photo myself.)

Today we got the first Buddhist temple in Møre and Romsdal County, and that made me think of the issue asthma, allergy and Chemical Sensitivity when using a temple or church.

incense-and-icon-oodegrdotco

Incense in a Catholic church. (photo: oodegr.co since I can not go there take one myself)

Both Buddhists and Catholics use incense. Incense is known to admit substances to the air that is both carcinogenic and a cause of asthma attacks. For sensitive persons incense is just as bad as scented candles, tobacco smoke, exhaust and fragrance.

In a religious perspective use of incense would make the temple or church unavailable.

I know, if I would have been a Buddhist or a Catholic, I would not be able to go, so that makes me wonder, –  So how about you? What is your experience? Have you experienced the temple or church being unavailable to you because of bad indoor air from incense?

/ Annelie


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Allergy vaccination does it work for everyone and all kinds of allergies?

Allergen-specific immunotherapy

Allergen-specific immunotherapy ASIT, commonly called allergy vaccination is currently used to treat patients with allergic disease, such as allergic rhinitis (hayfever) and asthma caused by airborne allergens. It is the only form of treatment that enhances allergic symptoms, affect long-term disease progression in children and creates immunological tolerance to the allergen.
The treatment requires regular contact with health services for several years. SCIT begins with an escalation of allergen dose for 14 weeks. This is followed by a maintenance phase with return visits was sixth to eighth week over 3-4 years.
It is most common vaccine directed against birch and grass pollen-induced symptoms, mites are a common goal. Attempts are made to different kinds of food allergy. Milk, eggs and peanuts are the foods tested most to vaccinate against. Vaccination against cat allergy is frequent, while dogs and horses are much less common. The demand for dog and horse vaccinations, however, is palpable but the scientific evidence is insufficient and the clinical experience of the treatment effects varied. Today, this therapy is primarily for highly motivated patients where the allergen can not be avoided and pharmacological treatment, ie antihistamines or nasal steroids, does not provide adequate disease control.

Any treatment using vaccination against allergies must be done under the supervision of an allergy specialist, and it is  not adviced to do this on your own.

So far there is no vacination against sensitivity, asthma and allergy to perfumes and chemical products. Many people are mistaken that you can vaccinate against all allergies. This is wrong.

And it is wrong of the public to say when they put a asthma and allergy sick person to fragrance to say:

“I know you can train your allergy away. It is good for you to be subjected to fragrance, then you can train it away.”

This is nothing but abuse. When you put a person in the posistion to be forced to inhale the blend of chemicals, allergens and irritants their body can not tolerate it is like if you kick them in their body. You hurt them.

So please stop doing this.

Instead help their everyday struggle to stay healthy by going fragrance free in the public room.

Source: Asthma and Allergy Sweden – Allergy Facts 2015
http://allergiforskning.se/trycksaker/allergifakta-2014-15/#1/z


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Merry Christmas shut out

Happy Holidays?

Fresh-Air-For-All-Guests-Christmas It is this time of year when all families gather together and salubrate the holidays together, first Christmas and then New Years.

Invitations are sent and everyone is expected to come on the invitation like the host want it.

I am visiting in different asthma and allergy, and sensitivity fora online and read page up and page down about relatives inviting their kids, cousins, grandkids, siblings and other relatives to the holidays and everyone want to come, just they can not.

And why?

Family can sometimes be even worse than other friends in life, it seems like they are deaf to life and others needs. They want to be presentable and they want to make a cozy holidays for all and make a happy party – on their terms.

I then wonder why they are not listening to what their family and friends tell them about their asthma and allergies, that they can not be around cats, dogs, birds,, tobacco smoke, vaping, fragrance, air fresheners, incense, scented candles, and can not eat a range of different things. Many allergies are even airborne so if any of the things they are allergic to is there they get sick from breathing.

I read about families who invite to holidays and parties and demand to have the gathering at their home even though they know and have been told many times their friends or family members are sick from their animals, fragrance products, tobacco smoke (second and third hand), vaping and some food, fragrance, aftershave and other things. They are told all year-long and every year at Christmas and New Years that the family member is sick from these things, still it is like the host behave like they are thick in the head. Either they have a hearing problem, or it must be they are either thick in their head and do not grasp for a moment what is the problem, or they just do not care.

But actually it should not have to be explained in detail what happens in the body when a person is exposed to allergens and irritants, it should be enough they are told the person get sick from it, and when told – Could you please come to our place instead? And could you please come fragrance free, smoke free, fur free, and bring no food or what ever the allergy and asthma is against? They should do that without hesitating, all for the cause and best for the person we all love who has allergies and asthma.

Every year it is the same thing, and every year I wonder what is wrong with these people? They say they love their family and friends, but still they seem to not care and go on hurting them.

In the end the person having asthma and allergies end up having a Christmas and New Years being sick, really sick, being on medication and having a bad health. All because some people do not listen.

It should be easy. They could just listen and do as asked of them for the greater good and good health of someone they claim to like and love, and someone they claim they care for.

If you claim these things, that you love and care for a person, please step up and show for real that it is true by showing it with your actions.

Caring about your loved ones should be more important than where and how you salubrate your Christmas and New Years.

Or your loved ones end up sitting alone at the Holidays, or getting really ill just because you do not care.

Read about asthma and allergy by looking through the menu, and links. Also read about testimonials, Go fragrance Free archives, and all the other knowledge. Take your time and be a better family and friend.

Please, let it be a Happy, including and Healthy Merry Christmas and Happy New Year for everyone.

Fresh-Air-For-All-MerryChristmas

/ Annelie


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MCS sufferer killed himself – dailymail.co.uk

Suicide, housebound, fragrance, smoke and chemicals

MCS sufferer sensitive to fragrance, smoke and other chemicals committed suicide by shooting himself.

This might be a posting a bit hard to chew, since it is a harsh reality posting. Being allergic and sensitive to fragrance can make you disabled. Those struggling the worst can not be among people and have to be housebound Continue reading


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Allergic to a World Full of Cats? – Linda Sepp and

Cat allergy vs. MCS. As always Linda Sepp and her friends nail it. And I must say, You do not have to have MCS to have to endure this, the only thing you need is asthma. Read it and get some understanding for the problem. Please, click the link to Linda Sepp site and read the whole story.

Seriously "Sensitive" to Pollution

Warning: This post contains many photos of cats.

What follows is something I thought was a great response by Kristine Kruszelnicki  to someone who trivialized her MCS and compared it to his cat allergy

(shared with her permission, and with many photos of cats added by me):

View original post 1,565 more words


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MCS’s have less blood flow to the brain

MCS NEWS

Like for patients having fibromyalgia, MCS patients  have altered Cerebral blood flow.

“A lower baseline flow of blood to the brain is common. When these patients are exposed to perfumes and petrochemicals, they develop further decreases in blood flow to the brain.

MCS is an acquired and progressive neurological disease induced by exposure to chemical and fragrance products.

MCS is often misinterpreted as or compared to asthma and allergies, which generally cause only temporary inconvenience and can be treated and reversed with antihistamines. In most cases, neither asthma nor allergies impacts the ability to live a relatively normal life.

However, people with MCS suffer progressive and cumulative harm, cognitive impairment, brain changes, and end organ damage with exposure to even small amounts of the seemingly innocuous chemical and fragrance substances in the air.

Those with chronic symptoms show long-term reduced blood flow to the brain and reduced ability of the brain to take up a tracer substance. This indicates a neurotoxic metabolic abnormality consistent with toxic environmental exposures to pesticides and other chemicals.”

Fibromyalgia Sweden
http://fibromyalgi.sitedirect.se/1/1.0.1.0/96/1/?item=art_art-s1%2F62

IE-Resource and MCS America
http://www.ei-resource.org/columns/multiple-chemical-sensitivity/fibromyalgia-patients-have-altered-cerebral-blood-flow-to-the-brain/

http://mcs-america.org/index_files/MCS.htm


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Push for a More Fragrance-Free Environment – Marie Schmidt – latimes.com

Testimony of Marie Schmidt of Arcadia latimes.com

Qoute

“I start sneezing and my nose starts running the minute I smell them,” says Schmidt, whose respiratory system goes on red alert at the least whiff of scented products.

“It’s sort of like cigarette smoking,” she complains. “They are invading my privacy.”

Whether she realizes it or not, Schmidt is part of what could be the next big nationwide battle that pits individual rights against public health concerns: the push for fragrance-free environments.

“Ten years from now it will be politically incorrect to wear perfumes in public,” predicts Paul Imperiale, disability coordinator for the mayor’s office in San Francisco. That city’s fragrance-free plan, drafted in 1990, was never enacted.

With Americans now using perhaps a dozen scented personal-care products each day, fragrance foes’ basic argument is this: your right to wear these products ends where my chemical sensitivities begin.

Beyond perfume, activists for fragrance-free environments are targeting restaurant bathrooms with those pungent deodorizers, office buildings that use pesticides and astringent cleaning products, and the neighborhood mall, whose host of synthetic odors assault the nostrils, especially around the holidays.

“We are putting so much into our environment that people are getting sick. I don’t think it’s a matter of personal rights now, I think it’s a matter of everyone’s health,” says Joan Ripple, a consultant to state Sen. Milton Marks, who chaired a Senate Judiciary subcommittee on the rights of the disabled.”

“In public policy terms, this could be defined as an issue of handicapped access, just like having a wheelchair ramp into a church or public building,” Brown says. “To have services that aren’t fragrance-free is to deny services to a group of people whose population is growing every day.”

End Qoute

I should say I actually is about personal rights. The personal right to not have to get ill from others vanity, egoism and shallowness.

And you do not need to have MCS to suffer from other Peoples habits, you only need astma and allergy to get ill from it.

I think the fewer would serve nuts to a person allergic and sensitive to nuts, so why do you force Your fragrance on us who get ill from it? You invade and hurt Our Health. Stop it now!

http://articles.latimes.com/1994-12-15/news/ls-9400_1_scented-products


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MCS and knowledge

If you mention MCS many say they are nuts and it is all in their head. What is more true is that those who say it have no Clue and the reality is that those People saying this is way out of line.

Today I read this article in the Danish newspaper Politiken.dk

MCS

A flower, diesel, which passes, or a napkin, that your daughter used once, where she got a hug from one perfumed lady.

More should there not that send those having MCS with symptoms of primary headache, dizziness, breathing problems and chronic fatigue – if you are striken by ​​suffering MCS, which in Danish called, “parfyme og kemikalieoverfølsomhed.

“We do not know exactly why and how it affects. Some patients have been exposed to a powerful chemicals exposure at work or have developed symptoms at some point, where they have felt themselves under very stressful situations over time, other patients recounts, that they have been  sensitive for Chemicals in the air since childhood.”, says Sine Skovbjerg, there is Research Leader at Videncenter for Duft- og Kemikalieoverfølsomhed.

“But we know from a questioning form that  17,000 Danes have ​​so severe symptoms, that it affects their lives and their work”, says Sine Skovbjerg.

The illness can affect anyone that is subjected to stong smells and scents, but can also affect People that have never been subjected to it., concludes medical director Søren Vesterhauge at Privathospitalet Hamlet.

“Generally 30-40 percent of population is specially tender over strong scents”, medical director Søren Vesterhauge, which was the first Danish physician that acknowledge fragrance and kemikalieoverfølsomhed (MCS) as a disease.

MCS stands for Multiple Chemical Sensitivity, and was introduced in the Medical literature in the United States in 1950’s. Some People got symptoms when they were subjected to gasses from pesticides, wax and rubber. In 1987 the illness got the name MCS, and in 2002 became acknowledged and by the Danish Environment Ministry, that such a disorder exists. However not yet classified With an illness code.

It is very wide and different what patient can not tolerate, and the extent to how much of smell and scnet and content of them affect them. Joint for them is that hypersensitive affect both their private and social, and their professional lives.

“It’s almost Impossible to get work, for whom want to employ a person that demand and need a scent free environment?”, asks Leader of Danish MCS association, Susanne Hemdorff.

Also in the private lives of those having MCS the illness have enormous consequences. Some must say goodbye to family or friends and neighbors, who is harmed by that person can not tolerate their fragrance. Life has to be turned on the head and everything accommodated to the illness, and Susanne Hemdorff know of several people who have taken their lives on reason of their isolation.

“Even at a Hospital one can experience the professionally personnel taking offence, because you  can not stand the smell, even though for Health reasons”, she says.

Nerves or immunity

MCS goes under a group af disorders, one in Medical world Call  ‘diffuse’. Basic meaning, one can see that people have it badly and have a lot of symptoms, which Doctors can not explain the or treat.

1 July 2012 MCS got its own diagnostic number and for the first time propriety. It was a long fight for patient holders.

“At the doctor they often were boarded with a cold shoulder and with a message, you have suffered, are you sure, that there is no hysteria?”, says Søren Vesterhauge.

By psychiatry has set MCS as a part af a major symptom complex, the functional disorders. Attempt of them to the process under a form of therapy. Without the large success or holding.

“MCS is for me a physical sickness, and over 500 patient, as I have met the last 20 years, seemed mentally normal. Although of course under stress, because none has believed them “, says Medical Director Søren Vesterhauge.

Today there are no treatment for MCS. At Danish Videncenter for Duft- og Kemikalieoverfølsomhed (MCS) attempt of researchers to find if  among other therapies,  mindfulness-based cognitive therapy helps? It is not published, but the Research Points at according to Skovbjerg that patient at least benefit from being able to better live with their symptoms.

“The therapy do not cure them, but it help them to better being able to live with their illness and symptoms and what it brings With it.”, says Skovbjerg.

The latest research also show that one can measure physical differences on MCS-Patient and people Without MCS.

»MCS patient central brain looks to react more strongly to pain, although their point of feeling pain do not seem to be different or lower than others. This we can measure. Also we have measured differences in their immune systems’, says Skovbjerg, which put weight on, that we do not yet know what these differenses mean clinically.

Center closes

Although Videncenter for Duft- og Kemikalieoverfølsomhed is the only place in Denmark where research is don on MCS the Parliament sanctioned in July that license holders do not prolong and therefore Closes  Videncenter for Duft- og Kemikalieoverfølsomhed Down by the end of this year.

“We are being failed as patients. It is disastrous for us, it widely, that the knowledge the Centre has built up for us is lost”, says Susanne Hemdorff from MCS Association, who have now started  a petition against the closure.

Please help!

Since I have asthma against the same stuff those having MCS get ill from I can totally relate to their problem. It is horrible getting ill from Things spread in the air, and if you can not get any help from the Medical side it is even worse. Everyone has to Breathe!

I have signed the petition. Please help by signing you too! Imagine if it was you or someone you love who got sick this way and had to live their lives like this. The only thing that can help those having MCS is reasearch to find out what to do about it, awareness and People caring. Please sign the petition.

http://www.skrivunder.net/bevar_mcsvidencenter_og_forbrugerkemidk

Source: http://politiken.dk/tjek/sundhedogmotion/sygdom/ECE2055523/duftsygdom-invaliderer-17000-danskere/


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Introduce and state perfume policys in all workplaces – Lisa Billö

Interview in SVT Debatt:

Make and introduce policies for perfumes in all workplaces

“PERFUME FREE – Chemical intolerance is a hidden disability that affects up to one in three humans. But for those who can not tolerate such fragrances is difficult to ask other people to “adapt” – and many of my friends have opted out of friendship for the benefit of their perfumes. By abstaining perfumes at work and at school, we can reduce sick leave for all, writes Lisa Billö.

Becoming sick of perfume chemicals is a rapidly growing health problem. Whole 10-30 percent of the population is affected by some form of sensitivity to chemical agents, and more than three per cent are so severely injured that they greatly restricted in their daily lives.

Obvious things like grocery shopping in a business can mean long illness for me and others who are suffering from MCS, Multiple Chemical Sensitivity – or chemical intolerance, as it is also called. This means that you get sick of a low dose of chemicals, a handicap that makes it not free to reside in the community, among other things because of other people’s perfumes.

I can not sit on a bus with other people who use scented products, go to the movies, theater, restaurant, seek treatment or go to private parties and events.

Asking other people to “adapt” itself is hard. Many of my friends have opted out of our friendship in favor of their perfumes. My children are getting sick every day in school because of friends ‘and teachers’ perfumed products and fabric softeners. This means that they miss a lot of teaching. Once they are there, they have the same opportunity to benefit from the instruction as other children, because of the symptoms they get.

Because it is a hidden disability they are also met by questioning from the principal and staff.

In many of our members, have often ruined economy as a result of sickness, and even loss of service. In many cases it could have been avoided by understanding colleagues and surroundings. Most are doing well in a healthy environment and are then fully or partially working.

Living with MCS greatly affect an individual’s ability to school, work and livelihood, but also leads many times to the great social isolation.

Perfume contains 95-100 percent of synthetic chemicals, which means that even people who are not chemically intolerant or allergic adversely affected. Children are particularly vulnerable. Headache, nausea, difficulty concentrating, and fatigue are common symptoms.

As with tobacco smoking affected the environment, whether they want to or not, so-called passive perfumery. By abstaining perfumes in the workplace can not only avoid unnecessary sick leave but also reduce absenteeism and for all. Fragrances affect the environment even on the bus, in the store, school and other public places.

Fragrances can be found in deodorants, shampoos, hair styling products, shaving products, skin creams, detergents, fabric softeners and cleaning Products and such fragranced products. To all products are as good fragrance-free options.

Besides chemicals in perfumes can also tobacco smoke, fabric softener, mold, emissions from building materials, inks, chemicals in electronic appliances, furniture and textiles, candles and car exhaust trigger symptoms. Common symptoms of MCS can be dizziness, nausea, brain fog, aches in muscles and joints, mucus in the throat, hoarseness, cough, nasal congestion, chest pain, palpitations, rash, fever, mood swings and depression.

MCS Sweden, the National Association for mold and chemicals damaged work for not more people will suffer and for those already injured will be staying in society on an equal basis with others.

Therefore we seek a perfume policy in all workplaces and schools, where employees are encouraged to use fragrance-free products.”

Lisa Billö, Founder MCS Sweden

Source: SVT DEBATT (Swedish original)

My point

Since I have asthma I can only agree with Lisa and all MCS affected that fragrance stinks.

Perfume-2013 is chemicals. Although it smells good so it’s chemicals. In perfume, we find among other synthetic musk (is on the EU blacklist), parabens (endocrine disruptors), toluene, formaldehyde (what you embalm dead with), benzol, methylchlorid, benzyl chloride, methyl ethyl ketone, methylene chloride, toluene and phthalates, etc.

The Environmental Health Association in Quebec, Canada: information at www.aseq-ehaw.ca:
“For some chemicals in perfumes can have serious health effects. Babies and children are most vulnerable as people who is suffering from chemical intoleranse Such as Environmental sensitivites and Chemical Sensitivities, and people recovering from cancer and other illnesses. “…” Perfumes are Considered to be the most consentrated form of fragrance. Fragrance … can be extracted from plants, flowers, and animals. Today … 80-95 percent of fragrance materials are synthetic and are derived from petroleum. … Some of the chemicals found in fragrances are: aldehydes, benzyl acetate, toluene, ethanol, acetone, benzene derivatives, formaldehyde, limonene, methylene chloride, methyl ethyl ketone, benzyl chloride and many others known to cause cancer, birth defects, infertility, nervous system damage, allergy symptoms, headaches, difficulty breathing, eye, nose and throut irritation and other injuries. … The brain is overpriced impacted by fragrances containing neurotoxic compounds. ”

The Sunday Times http://www.timesonline.co.uk tells us about scientists thathave found Cancer Causing chemicals in known perfume brands.
“SCIENTISTS have found high levels of a chemical blamed for Causing infertility in some of the best-known perfumes and cosmetics. Chanel No. 5, Christian Dior’s Poison, Eternity from Calvin Klein and Trésor by Lancôme, were among 34 toiletries found by a Swedish study to containers di-ethylhexyl Phthalate (DEHP) or other phthalates. ”

At Rodale http://www.rodale.com we can read
“The new research detected That the labels of popular perfumes do list harmful fragrance chemicals linked to sperm damage, hormone disruption which is linked to some cancers, thyroid disease, obesity, diabetes, and other serious health problems, reproductive toxicity, and allergy problems. The study was released on the heels of the President’s Cancer Panel report, Which Suggests environmental factors like hormone-disrupting chemicals in consumer products, plastics, and pesticides used on our food could be causing many more cases of cancer than initially believed. The … Cancer Panel report recommends That pregnant women and couples planning to’ve become pregnant avoid exposure to hormone-disrupting chemicals due to cancer concerns. These chemicals That May play a role in cancer were found in many of the fragrances Analyzed for this study. … “Secondhand scents Also included are a big concern. One person using a fragranced product can cause health problems for many others “second page:” Just because your favorite fragrance was not on the list does not mean it’s safe. In fact, harmful fragrance chemicals are used in thou sands of products and are Not Listed on the label. It seems like you shouldhave the right to know how These seemingly innocent perfumes and colognes are Affecting your health. But unfortunately, manufacturers do not have to list warnings or even the actual ingredients used in fragrance blends, on the label. And the problem isn’ta limited to perfumes and body sprays. We are blasted with harmful synthetic fragrances every day in the form of scented cleaners, hair sprays and dyes, air fresheners, candles, shampoos, soaps, perfumes, and body sprays. Research is finding thatmany of These scented products interfere with our hormones, Which Regulate how our bodily systems function. “One of the coalition members for this research was the Breast Cancer Fund. Read the whole story: http://www.rodale.com/perfume-ingredients

Perfume also contains chemicals that is suspected be the cause of cancer.

See list of IFRA https://anneliemolin.wordpress.com/2013/03/02/what-is-in-fragrance-the-content-of-perfume/

Very many of these chemicals is also found in tobacco smoke and some also in brake fluid.

For those who have MCS goes on the contents of that smell, more than the smell. This is also true for us who have asthma.

/ Annelie


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Producers logics

When talking to manufacturers of consumer products like cleaning products, washing products and air fragrance one get amazed about their logics. They very much like to claim their products are safe so they ensure the consumers they are safe to buy their products.

In a discussion With the Norwegian company Lilleborg at their Facebook page Lilleborg Roadshow I found this statement:

 Lilleborg Roadshow Friday 10 May 2013 12:02
“We record huge commitment of a few individuals around perfume. This discussion is not new, Lilleborg has repeatedly been in contact with the same people, and we wish here to reiterate our view: We focus strongly that our products are safe to use. We are subject to stringent regulations which set clear requirements for what ingredients we can use and we have a strong focus on consumer safety when developing new and existing products. In order to meet consumer desires, we offer products both with and without perfume. We spend considerable resources with market research to ensure that our products meet consumer needs at all times. We use the equivalent of resources in product development to ensure safe, quality products according to a very extensive regulations that are harmonized with European legislation. ”

My comment on it to Lilleborg: “If you are so keen on that your products are safe then I wonder why for example Jif Baderom contain fragrances and Chemicals that the HSE (Health Safety and Environment) data say is allergenic for sensitive individuals. That is if you have hereditary history of allergy either you know it or not you can get allergy outbreak using it. But You tell nothing about this at the bottle when you buy it in the store. To know about the allergy risk you must have the safety data sheet and read the very finely tuned text. You know it contains perfumes that are allergenic but you do not stop using it. It is irresponsible if you ask me. You expose customers and their users to the risk of allergy and claim that you care about the safety of their customers. This I want a good explanation to. ”

To the fact: I am one of those who have used this JIF Baderom toilet cleaning spray and have gotten allergies. We used it at work. And after getting sick I read all the fine print about all the products we used at work in the safety data sheet and found that JIF Baderom is not safe! I have the safety data sheet at home. Those data sheet information you do not get as a private person shopping in the grocery store A product one can get allergies from or that make asthma break out is not safe. That is pure and clear logic. I find this way of thinking of the manufacturers are fantastic! As long as they can claim the Law say it is ok to use the content, even when they know it can cause allergy, they continue using it.

They know it is not safe, and still they state to all consumers they care about their safety. I find it stupid, arrogant and uncaring. What do you think?

Copy of original text in Norwegian:
“Vi registrerer stort engasjement fra et par enkeltpersoner rundt parfyme. Denne diskusjonen er ikke ny, Lilleborg har gjentatte ganger vært i dialog med de samme personene, og vi ønsker her å gjenta vårt syn:
Vi har høyt fokus på at våre produkter skal være trygge i bruk. Vi er underlagt strenge regelverk som setter tydelige krav til hvilke ingredienser vi kan benytte, og vi har høyt fokus på forbrukersikkerhet når vi utvikler nye og eksisterende produkter. For å møte alle forbrukerønsker, tilbyr vi produkter både med og uten parfyme. Vi bruker betydelig med ressurser på markedsundersøkelser for å sikre at våre produkter møter forbrukernes ønsker og behov til enhver tid. Vi bruker tilsvarende med ressurser i vår produktutvikling for å sikre trygge kvalitetsprodukter i henhold til et meget omfattende regelverk som er harmonisert med europeisk regelverk.”

My comment in Norwegian: Annelie Molin “Om dere nå er så opptatt av at produktene skal være trygge da lurer jeg på hvorfor f.eks. Jif Baderom innholder stoffer som iflg HMS datablad er allergiframkallende for disponerte personer. Dvs har du arvelige anlegg for allergi enten du vet det eller ikke så kan du få allergiutbrudd ved å bruke det. Men dette står det ingenting om på flasken da du kjøper denne i butikken. For å få vite det må du ha HMS produktdatabladet og lese det meget finstilte. Dere vet det innholder stoffer som er allergiframkallende (1,2-benzisotiazolin-3-on) men dere slutter ikke å bruke det. Ansvarsløst spør du meg. Dere utsetter kundene og brukerne deres for risiko for allergi og påstår så at dere bryr dere om sikkerheten til kundene deres. Dette vil jeg ha en god forklaring på.

Safety Data Sheet (Norwegian)

P1080013


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May MCS Awarness month

May is the MCS awarness month. To raise awarnes for a illness making sensitive People ill all around the world.

  MAY 30 IS THE FRAGRANCE FREE DAY!
Make this day a day when you join in and do not use fragrance products. Go to the store and find scent free alternatives and you will be amazed. Make this day a day for all sensitive out there having MCS, ASTHMA and other lung diseases and ALLERGY, and make the world a place where it is possible to go out without getting ill from the fumes of perfume.

Thank You!

https://www.facebook.com/photo.php?fbid=10200990465785774&set=oa.130644103797059&type=1&theater

MCSawarness day may 30

Source: Lisa Billö

I support this. What is good for those with MCS is good for us having asthma.

/ Annelie


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Congratulations all with MCS

Congratulations all my readers having MCS. From 1 of July 2012 MCS will have its own health diagnose code in the Danish Health Care and Social Security System. A little step forward for you all.

From Dagens Medicin:

“Characteristic of severe cases is that patients describe general symptoms, which often limit them in daily life. Often they describe reactions to multiple chemical substances, such as. perfumed care – and cleaning products, evaporation from recent publications and new furniture and exhaust.

Diagnosis code for fragrance – Chemical Sensitivity will be labeled ‘symptoms related to scents and chemicals’ (DR688A1) and placed under the main category DR688A ‘Medical unexplained symptoms’ in Healthcare Classification System (SKS).

Diagnosis is subject to the following five criteria:

  1. Patients related symptoms commonly occurring scents and chemicals (eg. Evaporation from scented products, fresh print and new home furnishings).
  2. Symptoms from the central nervous system is mandatory, for example. headache, dizziness, difficulty concentrating and fatigue. Also occurs frequently symptoms from other organ systems, such as. respiratory tract disorders, musculoskeletal system, or the gastrointestinal tract.
  3. Symptoms improve or disappear when exposure is removed.
  4. The condition is chronic (> 6 months).
  5. Symptoms accompanied by significant lifestyle – or functional impairments, for example. loss of business, work and social network.”

Source: Dagens Medicin


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Human Canaries and Friendship

Even asthma

Even for asthma sensitivity for small dozes are there. A person with asthma reacts on dozes 0,02 ppm. So I you have just a little on, it may be to much. Best is to go fragrance free. Then you do not bather anyone.

Ichigo Ichie

In addition to many of the health issues I’ve talked about in this blog, one of the major conditions that has increasingly affected my daily life is my extreme sensitivity to fragrances and certain chemicals.  People with sensitivities like me, and others diagnosed with “multiple chemical sensitivity (MCS)” are referred to as “canaries.”  We are human canaries.  The name “canary” comes from a past practice of miners who would take the birds into the mines with them as an animal sentinel, to provide advanced warning of danger.  Canaries are more sensitive to toxic gases than humans, so if the bird stopped singing, got sick, or died, the miners would know they needed to escape the mine or use protective gear before they were affected.

Low levels of fragrances and chemicals that most people probably wouldn’t notice, will make me very sick, so sick that I could be…

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What Multiple Chemical Sensitivity is not

Learn what MCS is not. Those who have MCS is normal people with a physical disorder.

Multiple Chemical Sensitivity

 

MCS is not having an increased sense of smell. That’s hyperosmia.

MCS is not finding the smell of perfume or other chemicals unbearable. That’s probably the olfactory equivalent of being sensitive to noise or light.

MCS is not getting anxious or panicking when you smell a chemical or believe you are being exposed to one. That’s anxiety or phobia.

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Sensitivites like MCS acknowledged as work injury in Sweden

Since I have asthma and it is close to what those having MCS are experiencing having problems with cases of MCS and their issues intrests me a lot. Today I read a really important winning for MCS’s in Sweden. A man with the help of the Workers Unions lawyer won against the Swedish Social Security department called Försäkringskassan.

Congratulations all with MCS in Sweden because this is a winning for you all! A case won in court is a legal statement for all of you who may come in the same situation.

The case:
Qoute
(2012-11-22) LO-TCO Workers Rights Protection has won a case in the Kammarrätten court in Gothenburg where the issue was on appeal after a petrol drenching can be approved as a work injury and diagnoses TILT (chemical sensitivity) and MCS (multiple chemical sensitivity) can be work-related injury.

The goal is about a truck driver who has been awash in gasoline in connection with the accident. The man is a member of the Transport Workers’ Union. He was fully working for three years after the accident and then became completely incapacitated with severe disease symptoms. There was no medical documentation to substantiate complaints over three years.

An oral hearing was held in administrative law where witnesses substantiated member tale of trouble over the years until he became sick. Legal protection is invoked three expert opinions of specialists in occupational and environmental medicine. Insurance relied on their part, three specialists in occupational and environmental medicine to support that connection does not exist.

The Administrative Court found after the hearing that although the medical mechanisms of current symptoms are not fully scientifically understood so it seems more likely that the member illness and discomfort is more likely to be caused by the accident accident than not. The appeal was approved an occupational injury.

Försäkringskassan tried to overrule and appeal in Gothenburg to higher court, but them agreed with former ruling. These symptoms diagnoses have probably not been previously approved as a work-related injury.

Attorneys in the case was union lawyer Ulf Lejonklou.

End Qoute

Source: Union law site:

http://www.fackjuridik.com/foersaekringsraett/item/374-kemisk-%C3%B6verk%C3%A4nslighet-godk%C3%A4nns-som-arbetsskada


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What is good…

What is good for those with MCS is good for us with Asthma and Allergy.

26. mai is the day for an event in London, Canada.

Where and when?

Saturday May 26th from 2-3pm at the Mary Campbell Co-op at 587 Talbot Street. This will be a nut and scent free event. Email us with any questions or to volunteer. www.scentfreelondon.weebly.com

~o~

“The best style is the style you don’t notice.” Somerset Maugham

Be stylish without scent.


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I did not realise before I quit – by Henning Nørholm Simonsen

This is the true story by Henning Nørholm Simonsen :

“Med tobak jeg var selv ryger en gang men da jeg blev syg jeg blev ved med at ryge. Først da jeg hold op med at ryge og opdagede at jeg blev 80% mere rask forstod jeg problemet. Pasiv rygning er lige så skadelig som rygning for KOL, Astma, Bronkitisk, MCS, lungebetændelse o.s.v. som det er at folk ryger.” – Henning Nørholm Simonsen

In English

“About tobacco, I was even smoking once, but when I got sick I kept on smoking. Only when I did stop smoking I discovered that I was 80% more healty and I finally understood my problem. Second hand smoking is as harmful as smoking for COPD, th, Bronchitis, MCS, pneumonia, etc. as it is that people smoke. ” – Henning Nørholm Simonsen


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Fragrance, scent, nausea and migrane – by Smellinc

This is a true story told by Smellinc. She prefer to go under a hidden name.

Fragrance Free Girl

Fighting for odorless air, calling
attention to the perfume obsessed,
and challenging the long
established scent industry.

I got my first migraine when I was 23 years old. I didn’t understand what it was or why I was sick. There was a crushing headache accompanied with nausea and incredible sensitivity to light and sound. It started with a few that year and then grew to a couple a month by the time I was 28.

One of the ways to try to control migraine headaches is to learn what triggers them. It is different for every person. Most triggers I can control like eating well and getting a good night’s sleep. The hardest trigger for me to deal with is fragrances.

One whiff of certain fragrances and I can feel the tingling sensation starting in my brain. The pain may not hit me until hours later. I believe my nervous system gets overly stimulated by certain chemicals/scents and a migraine reaction begins. Sometimes it is mild and I can function. Sometimes it can be so severe I am useless and have to crawl into bed until it goes away.

I have learned to live a fragrance free life. My husband does too. Most of my close friends and family try not to wear fragrances when spending time with me. It is impossible to go through the rest of day to day life without encountering fragrances. I am constantly trying to find new ways to cope.

I love to travel. When people are worrying on a plane it is usually because they are afraid of flying…. I worry about whether the person sitting next to me will be wearing perfume. On one trip a person sprayed air freshener mid-flight. I was so sick by the time we got off the plane my day was ruined. People have no idea that spraying scents in confined spaces isn’t just rude, it is harmful.

I would like to live in a world with more fragrance free products. I would like people to be aware of how their fragrances affect others and themselves. I would love to know which chemicals in the fragrances are the ones causing my issues. Until then be kind and leave the perfume behind.

Fragrance free girl and blogger,
Smellinc

http:// smellinc.wordpress.com

Thank you for sharing Smellinc :)


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I want a perfume ban – Eli Vatle Sundsbak – bt.no

Translation in English further down

Vil forby parfyme

BT artikkel “- En dråpe for mye er nok til å bli syk, sier allergiker Eli Vatle Sundsbak, som blir dårlig av godlukt.

Røyken er borte fra utelivet. Det neste kan bli parfymen. Mange blir syke av godlukten, og parfymen bør bort fra det offentlige rom. Det mener både Astma- og Allergiforbundet og Landsforeningen for Hjerte- og Lungesyke.

Skyr folkemasser Eli Vatle Sundsbak skyr store selskaper, handlesentre, taxfreeforretninger, og andre steder hvor hun vet hun kan treffe masse folk.

– Kommer jeg for nær en som har dynket seg med fransk parfyme, kan et migreneanfall være på vei, sier den 71 år gamle pensjonisten.

Eli Vatle Sundsbak lider av parfymeallergi. Gjennom årene er det blitt en del selskaper hun har måttet forlate i hui og hast på grunn av parfymeduft.

Snu i døren Da Vatle Sundsbak var yrkesaktiv, kunne det skje at hun måtte snu i døren på jobben fordi hun tilfeldigvis hadde sittet i nærheten av en parfymebruker på bussen.

– Flimring for øynene er første faresignal. Får jeg ikke frisk luft, slår hodepinen inn. Da er det ingen annen utvei enn å gå hjem å legge seg, sier hun.

Hjemme best Vatle Sundsbak er derfor ikke så ofte å se på kafeer og restauranter. Hun trives best hjemme.”

Kilde: http://www.bt.no/nyheter/lokalt/Vil-forby-parfyme–2613358.html

Jeg er enig i at parfymerte passasjerer er en helseplage, ikke bare for allergiske og astmatiske sjåfører som meg selv, men også for medpassasjerere. Busselskapa, tog-, trikk- og tunnelbaneselskapa kunne også gjøre noe for oss som sliter med parfymeallergi og vaske vognene innvendig med parfymefrie vaskemidler. Bedrifter og butikker kunne forby ansatte å bruke parfyme i arbeidstida.

In English

From news article in BT.no

Will ban perfume

BT “- A drop too much is enough to get sick, says perfume allergic Eli Vatle who get sick from the perfume use.

The smoke is gone from the nightlife. The next could be perfume. Many are sick from perfume, and perfume should be away from the public. It says both the Norwegian Asthma and Allergy Association and the Norwegian National Association for Heart and Lung.

Avoids crowds Eli Vatle Sundsbak shuns large gatherings and party, shopping malls, duty free shops and other places where she knows she can take a lot of people.

– When I get too close to someone who has doused them with perfume, a migraine is coming, says the 71 years old pensionist.

Eli Vatle Sundsbak suffer from perfume allergies. Over the years there have been a number of happenings she has had to leave in a hurry because of the perfume fragrance.

Turn around in the door When Vatle Sundsbak was working, it happend that she had to turn in the door at work because she happened to have been near a perfume user in the bus.

– Flickering of the eyes is the first danger signal. If I can not get fresh air, it turn into the headache. Then there is no other option than to go home to bed, she says.

Home best Vatle Sundsbak is not so often seen in cafes and restaurants. She prefers home. ”

Source: http://www.bt.no/nyheter/lokalt/Vil-forby-parfyme–2613358.html

I agree that perfumed passengers is a health problem, not only for allergic and asthmatic drivers like myself, but also for fellow passengers. Bus companies, train, tram and metro companies could also do something for us who are struggling with perfume allergies and wash vehicles inside with perfume-free cleaning agents. Companies and shops could forbid their employees to use perfume at work.


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Strong scent inhibit many in the daily life

(Scroll down for English)

Fakta om parfyme- og duftoverfølsomhet

(NAAF.no : 17.06.2011)  “De fleste mennesker får umiddelbare assosiasjoner til noe velduftende eller positivt når de hører ordet ”parfyme”.  Denne reaksjonen er ikke allmenngyldig og noen vil både assosiere og reagere negativt på ”parfyme”. For denne gruppen mennesker kan en hel rekke dufter vi stilles overfor i hverdagen legge store begrensninger på det daglige liv. Disse menneskene har det vi kaller en miljøhemming.” (Norges Astma og Allergiforbund, NAAF.no)

Astma og andre lungsjukdommer er en av de grupper som hemmes av parfyme og andre sterke dufter. Den godlukten du tar på deg hver morgen er til besvær for litt over 370.000 – 1.2 millioner personer i Norge hver dag enten grunnet astma, KOLS eller annen sensitivitet. Da du tar trikken, bussen, toget eller går på butikken eller kjøpesentra er det veldig sannsynelig at du møter noen med astma. Ca 1 av 4 personer fra alder 0-100 har astma, og de fleste av disse –  om ikke alle –  blir syke av parfyme.

Parfyme er alt som er parfymert. De fleste tror at parfyme er det du har i parfymeflasken, men parfyme er i så mange produkter idag (år 2011)  at det ibland kan være en mare å unngå det. Parfyme er ikke noe man trenger for å holde seg ren. Parfyme er kun en dufttilsetning og gjør inget for å vaske deg, klærne dine, huset ditt, bilen din eller noe annet rent. Det du trenger for å holde deg og dine ting rene er kun såpen, og den kan du kjøpe parfymefri. Også deodorant finnes det parfymefri. Der er mange produkter på markedet som er frie for parfyme og da bidrar du også til å minke risikoen for at du selv blir allergisk og i tillegg gjør du hverdagen til alle astmatikere mye bedre.

Tenk deg f.eks. at bussjåføren din har astma. Ombord bussen går ca 400 parfymerte mennesker hver dag. Bussjåføren blir sjuk av parfyme, og med 400 parfymerte personer ombord bussen hver dag så er livet på jobb = å være sjuk. Bussjåføren får pustevansker og sliter med å puste, noe de fleste tar for gitt. Vi bare gjør det, puster, helt naturligt. For en astmatiker bør det også være naturlig å puste fritt uten problemer, men en hverdag sammen med parfymerte mennesker umuliggjør dette.

Hva er parfyme?

(NAAF) “Rent teknisk er parfyme et begrep som knyttes til en rekke kjemikalier, som enten kan fremstilles syntetisk eller utvinnes naturlig fra for eksempel planter i form av oljer eller vekstekstrakter. Kjemikaliene fordeler seg godt i luft, og våre neser oppfatter dem generelt som velduftende. Kjemikaliene tilsettes oftest til vanlige forbrukerprodukter for både å gi produktet en egenlukt eller en duftsignatur. I følge parfymebransjens eget organ IFRA har kosmetikkprodusentene i en frivillig tilbakemelding fra 2008 (transparency list) rapportert at det er ca 3200 stoffer som kan anvendes med formål å gi dufttilsatte produkter.” (Norges Astma og Allergiforbund, NAAF.no)

Menneskets sanser er laget for å beskytte oss mot det som er farlig for oss. Dårlig mat lukter vondt og vi vet at vi ikke bør spise det for å ikke bli syke. Høge lyder varsler at noe kan være farlig, vonde lukter varsler at noe kan være lite heldig for oss, eller sjukdom, og den sjette sans og erfaring sier oss gjerne når der er fare på ferde. Men hva når de farlige kjemikalier dufter godt, eller godlukt brukes for å skjule andre kjemikalier som ikke er gode for oss? Da lures sansene våres å tro at det er ufarlige stoffer vi har med å gjøre. De fleste av oss er gjerne også litt godtroende og tror det beste om produsenter fordi man kan jo ikke tro de vil oss noe vondt?

Allergi mot kjemikalier og parfyme

(NAAF.no) “Kosmetikkbransjen er lovpålagt (2011) å regulere bruken 26 parfymestoffer på grunn av sterke allergifremkallende egenskaper. Hyppig og uregulert bruk i kosmetikk har medført en større andel både av allergi og sensibilisering i befolkningen (dvs begynnende allergiutvikling). Reguleringen er ment å forebygge og til dels for å beskytte de sensibiliserte. EU har i kosmetikkdirektivet bestemt at 26 spesielt allergifremkallende parfymestoffer skal med på ingredienslisten til kosmetiske produkter og kroppspleiemidler som inneholder dem. Andre parfymestoffer får stå under samlebetegnelsen ”parfyme”. Alle de 26 allergifremkallende parfymestoffene har du dermed mulighet for å unngå. Mattilsynet i Norge gir deg en oversikt over de 26 stoffende og maksimale mengder som får inngå. Reguleringen av de 26 parfymestoffende gjelder utelukkende for kontaktallergi … I en studie fra 2007 (Dotterud & Smith-Sivertsen) rapporteres det at kontaktallergi mot denne gruppen av allergene parfymestoffer (fragrance mix) forekommer hos 1,8 % av befolkningen. Det blir presisert at dette tallet er noe høyere enn det man ser fra Danmark. Symptomer ved kontaktallergi kjennetegnes ved rødt, kløende utslett – tørr og flassete hud, med små blærer som kan gi væskende hudområder og skorpedannelser.”  (Norges Astma og Allergiforbund, NAAF.no)

(Naaf.no) “Kjemisk kontaktallergi kan også utvikles mot veldig mange andre kjemikalier enn parfyme (for eksempel hårfarger, såpe, konserveringsmidler, fargestoffer osv), og i motsetning til parfymekontaktallergi tilskrives kjemisk kontaktallergi hyppigst men ikke utelukkende fra yrkesskader der mennesker blir utsatt for større mengder kjemikalier enn man normal ville blitt i det daglige liv.”  (Norges Astma og Allergiforbund, NAAF.no)

Du har krav på å få vite hva der innholder i det du bruker. I mat er det pålagt å definere hva som er i et produkt helt ned til salt og andre vanlige innhold og innholdsfortegningen skal vise hva er mest av. Det som er mest av i et produkt skal stå først i innholdsfortegningen. Når gjelder parfymer er kun påkrevd at 26 stoffer (år 2011) må deklareres, og alt annet kan gå under parfyme. Det er ikke godt nokk. Også om et stoff i listene ikke ennå er gradert som allergiframkallende på huden så betyr det ikke nødvendigvis at der ikke er noen i verden som reagerer mot det. Produsenter er gjerne litt etterpå når det gjelder kunnskap om effekten av stoffene de tilsetter i produktene sine, og forskere på stoffene og kjemikaliene ligger gjerne i forkant, og da helst uavhengige forskere. Ofte er man gjerne etterpåklok og sier, “Det visste vi ikke da.” etter at flere er blitt sjuke. Og i noen tilfeller kan det også være at de unnlater å bry seg fordi det ville koste penger å finne en erstating eller forandring, eller i deres øyne vil endre effekten av produktet. Det er ikke godt nokk. Der er mange stoffer i produkter som ikke er gode for mennesket å bruke som har en effekt på produkter, jeg snakker da om ftalater og parabener f.eks, men ikke utelukkende disse. Der er masse å lese om dette på siter overalt i verdenen der uavhengige forskere advarer mot mange av stoffene i bl.a parfyme, parfymerte produkter og også andre stoffer og produkter. Det må også være lettere å leve etter føre vare prinsippet både hos forbrukere og produsenter. Jeg mener alt i et produkt skal deklareres. Da er det lettere for forskerstanden og folk flest å rope varsku, og å velge selv hva de ønsker å bruke. Det er langt fra kun kontaktallergi som lager problemer hos mennesker med allergi, astma og sensitiviteter. Produsenter skal ikke kunne gjemme seg bak et ord som ikke forteller noe annet enn at det dufter.

For astmatikere er det gjerne luftbåret det som utløser astmaattacker. Det betyr at alt som avdunster, sprayes eller på annen måte sprer seg i lufta kan være med på å gi astmaattacker. Det eneste som trenges er at den som har astma og blir utsatt for stoffet puster det inn for å få en astmaattack. Det beste for en astmatiker er ren naturlig luft og oksygen.

(Naaf.no) “I Danmark er det publisert en større vitenskapelig undersøkelse ”Forekomst av selvrapporterte symptomer og reaksjoner relatert til inhalasjon av luftbårne kjemikalier i en dansk befolkning”. Det ble plukket ut 6000 individer i alderen 18-69 år fra folkeregistret i en befolkning rundt stor-København til en spørreundersøkelse hvor de fikk tilsendt et spørreskjema om symptomer relatert til 11 alminnelig forekommende dufter og kjemiske stoffer samt om konsekvenser relatert til dem. Dufter og kjemiske stoffer inkluderte andre personers bruk av parfyme, rengjøringsmidler, oppløsningsmidler, friske trykksaker, nytt boliginventar, bløt plast eller gummi, nytt elektronisk apparatur, steke- og matos, utstøtning fra motorkjøretøy, tjæreprodukter samt røyk fra forbrenningsovner. Svarprosenten på denne undersøkelsen var på 71 % (4242 svar). 45 % av de som svarte oppgav de at de var sjenert/plaget av minst én av de alminnelig forekommende dufter og kjemiske stoffer som det ble spurt om. 27 % av  4242 personer var sjenert/plaget i en grad som var symptomutløsende. 17 %  av  4242 personer oppgav at reaksjonene fremkalt av dufter eller kjemiske stoffer hadde betydning for deres valg av personlige pleiemidler, andre for hvordan det ble gjort rent i deres hjem og for hvilke butikker de handlet i, sjenerte/plagede rapporterte at symptomer fremkaldt av dufter og kjemiske stoffer begrenset dem sosialt eller arbeidsmessig og flere oppgav, at symptomene hadde negativ innflytelse på begge disse forhold. Av de som svarte på undersøkelsen, oppgav respondentene at de hadde opplevd ubehag eller symptomer i relasjon til andres parfymebruk, at symptomene deres påvirket dem både sosialt og yrkesmessig, hvilket i en Dansk befolkning svarer til at ca. 17000 voksne danske mennesker.”  (Norges Astma og Allergiforbund, NAAF.no)

Ved en allergi reagerer kroppens immunforsvar når man utsettes for stoffer man har rukket å utvikle allergi for. Allergi spiller typisk en rolle ved f.eks. astma, pollenallergi (rhinitt) og eksem og kan bekreftes ved blodprøve eller en test på huden.

Risikanter

Miljøhemming er situasjonsbetinget. I miljøer som ikke inneholder noe av det som ikke tåles, er den berørte “frisk” i den meningen at den er symptomfri. Derfor kan i enkelte tilfeller betegnelsen ”risikant” brukes.

Er du rammet?

“Professor Emeritus Kjell Aas er readktør på NAAFs nettside www.Allergiviten.no og www.Inneklima.com. Han har laget en spørreundersøkelse for å kartlegge miljøhemming. Foreløpig er det flest med kjemisk miljøintoleranse som har sendt svar. Det dreier seg om at mennesker blir syke av luftforurensninger og inneklima som de aller fleste tåler godt. De får hodepine, tørre og irriterte slimhinner, kvalme, unormal tretthet, problemer med konsentrasjon, oppfattelse og hukommelse og andre subjektive følelse av dårlig helse. Ikke få føler seg helt utslått med symptomer som kan minne om en slags forgiftning. ”

Har du astma, allergi, mcs, eller annen sensitivitet og sliter med å vistes i miljø der stoffer , avgassinger, parfymering brukes, eller rett og slett ikke kan være der, da har du miljøhemming.

Hvis du ikke ennå er rammet, tenk da på at veldig mange andre sliter med ditt eventuelle bruk av parfymer / godlukt og kjemikalier i hverdagen. Velg et uparfymert og kjemikaliefritt produkt så er du på god vei med på å gjøre hverdagen til meg og tusener av andre mye bedre!

På forhånd takk
Annelie

In English

Facts about perfume and fragrance sensitivity

(NAAF.no: 06/17/2011) “Most people get immediate associations with any aromatic or positively when they hear the word” perfume “. This reaction is not universal and there are poeple both associate and react negatively to ” perfume “. For this group of people, a whole series of fragrances we face in everyday life put severe restrictions on daily life. These people have what we call an environmental inhibition. “ (Norwegian Asthma and Allergy Association, NAAF.no)

Asthma and other lung diseases is one of the groups that are inhibited by perfumes and other strong scents. The scent you put on every morning either in form of perfume, cologne, after shave, deodorant, body spray or other perfumed products a little over 370,000 to 1,200,000 persons in Norway breathe in and get sick from every day either due to asthma, COPD, MCS or other sensitivities. When you take the tram, bus, train or go to the store or shopping centers, it is very likely that you meet someone with asthma/sensitivites. Approximately 1 in 4 people from age 0-100 have asthma, and most of these – if not all – are sick of perfume. In addition to them you have all those with other lung diseases and sensitivities.

Perfume is all that is perfumed (frangranced). Most people think that the perfume is what you have in the perfume bottle, but the perfume is in so many products today (year 2011) that at times it can be a nightmare to avoid it. Perfume is not something you need to keep themselves clean. Perfume is just a fragrance additive and do nothing for to wash yourself, your clothes, your house, your car or anything else. What you need to keep you and your stuff clean is just pure soap, and you can buy perfume free. There are many products on the market that are free of perfumes and then you are also helping to decrease the risk that you may become/get  allergic and also do the daily lives of all asthmatics much better.

Imagine for example… The bus driver have asthma. Aboard the bus is about 400 perfumed people every day. The bus driver is sick from perfume, and aboard the bus come 400 people scented every day, there is life on the job = being sick. Bus driver gets breathing difficulties and struggling to breathe, something most people take for granted. We just do it, breathe, naturally. For an asthmatic, it should also be natural to breathe freely without problems, but a day with perfumed people makes it impossible to do so. But fragranced people are everywhere in society so whatever one do or wherever one go, there it is.

What is the perfume?

(NAAF) “Technically perfume a term linked to a variety of chemicals, which can either be produced synthetically or obtained naturally from such plants in the form of oils or growth extracts. The chemicals are distributed well in air, and our noses perceive them in general as fragrant. The chemicals are added frequently for common consumer products for both to give the product a scent or a fragrance signature. According to the perfume industry’s own body IFRA has cosmetic manufacturers in a voluntary feedback from 2008 (Transparency list) reported that there are approximately 3200 substances that can be used for the purpose of give fragrance added products. “ (Norwegian Asthma and Allergy Association, NAAF.no)

The human senses are designed to protect us against that which is dangerous to us. Poor food smells bad and we know we should not eat it for not being sick. High noise signals that something may be dangerous, bad smells warn that something may be unfortunate for us, or illness, and the sixth sense and experience tells us when there is danger ahead. But what if the hazardous chemical smells good, or scent is used to hide other chemicals that are not good for us? When our senses are tricked to believe that it is harmless substances we are dealing with. Most of us are like a little gullible and believe the best about the producers because they can not believe they will do us any harm?

Allergy to chemicals and perfumes

(NAAF.no) “Cosmetics Industry is required by law (year 2011) to regulate the use of 26 fragrances because of the strong allergenic properties. Frequent and unregulated use in cosmetics has resulted in a greater proportion of both allergy and sensitization in the population (ie the onset of allergy development). The regulation is intended to prevent and partly to protect the sensitized. The EU has in the cosmetics directive specified that 26 particularly allergenic perfume substances to be included on the list of ingredients for cosmetic products and body care products that contain them. Other fragrances will be under the collective term “fragrance.” All the 26 allergenic fragrance substances you are thus able to avoid. Food Safety Authority in Norway gives you an overview of the 26 drug immediately and maximum amounts that can be included. The regulation of the 26 perfume substances shall apply exclusively for contact allergies … In a study from 2007 (Dotterud & Smith-Sivertsen) reported that contact allergy to this group of allergenic perfume substances (fragrance mix) occurs in 1.8% of the population. It is clear that this figure is slightly higher than that seen from Denmark. Symptoms of contact allergy is characterized by red, itchy rash – dry and flaky skin, with small bladders that can cause skin and exuding skorpedannelser. “ (Norwegian Asthma and Allergy Association, NAAF.no)

(Naaf.no) “Chemical contact allergy may also be developed against many chemicals other than perfumes (such as hair dyes, surfactants, preservatives, dyes, etc.), and unlike perfume contact allergy attributed to chemical contact allergy frequently but not exclusively from industrial accidents where people are exposed to larger quantities of chemicals than you normally would in everyday life. “ (Norwegian Asthma and Allergy Association, NAAF.no)

You are and should be entitled to know what are in the products you use. The food is required to define what is in a product right down to salt and other common content. That which is most of  in the product will be first in the table of content too. When it comes to perfumes / fragrance is only required that 26 substances (year 2011) must be declared, and everything else can go under perfume. It is not good enough since one fragrance hold several hundreds of chemicals. Note that the 26 substances is only those that is against contact allergies, and even if a substance in the lists are not yet classified as allergenic to the skin so it does not necessarily mean that there is no one in the world that reacts with breathing difficulties and other ways to it. And what about those who breathe it in, and it goes to the blood stream through the lungs? Manufacturers are usually a little later when it comes to knowledge about the effects of the substances they add in their products, and researchers in the drugs and chemicals is often in advance, and preferably independent researchers. Often, one is often wise after the event and says, “We did not know.” after several gotten sick. And in some cases it may be that they fail to care because it would cost money, or in their eyes it  will change the effect of the product. It is not good enough. There are many substances in products that are not good for man to use that has an effect on the products, I’m talking about phthalates and parabens such as, but not limited to these. There is plenty to read about this on sites all over the world where independent researchers warn against many of the ingredients of including perfumes and perfumed products and other substances and products. It should also be easier to live after the principle care before accident and illness, both producers and consumers. I mean everything in a product to be declared. This makes it easier for the research profession and people shouting warning and to choose for themselves what they want to use. It is far from only cantact allergy that give people who got allergies, astma and sensitivites problems. Manufacturers should not be able to hide behind a word that does not tell anything other than it got a scent and smells.

For asthmatics, it is usually airborne what triggers asthma attacks. It means that everything that evaporate, sprayed or otherwise spread in the air can help to provide asthma attacks. The only thing required is that those who have asthma and are exposed to the substance and breathe it in to get an asthma attack. The best for a asthmatic is pure natural air and oxygen.

(Naaf.no) “In Denmark, published a major scientific study” Prevalence of self-reported symptoms and reactions related to the inhalation of airborne chemicals in a Danish population. “It was selected 6000 individuals aged 18-69 years from the National Registry in a population around large-Copenhagen to a questionnaire where they were sent a questionnaire about symptoms related to 11 common occurring scents and chemicals and the consequences related to them. Fragrances and chemical substances included other people’s use of perfumes, detergents, solvents, fresh print, new residential furniture, soft plastic or rubber, new electronic apparatus, frying and cooking fumes, exclusion from motor vehicles, tar products and smoke from incinerators. The response rate for this survey was 71% (out of 4,242 persons responses). 45% of respondents provided that they was shy / suffering at least one of the most commonly occurring fragrances and chemicals that were asked. 27% of 4242 people were shy / harassed to a degree that was symptom-triggering. 17% of 4,242 persons provided that the reactions induced by scents or chemical drugs had influenced their choice of personal care products, others for how it was done purely in their homes and the stores they shopped in, shy / sufferers reported symptoms until cold of fragrances and chemicals limited their social or work activities and tasks, that symptoms had a negative influence on both of these conditions. Of those who answered the survey gave respondents that they had experienced discomfort or symptoms in relation to others’ perfume use, that their symptoms affected them both socially and professionally, which in a Danish population corresponds to that around . 17,000 adult Danish people. “ (Norwegian Asthma and Allergy Association, NAAF.no)

One should note that this is only 4242 persons out of over some millions people in a country. 47 % out of approximately 4.5 million people is… 2.115.000 persons.

In an allergic reaction the body’s immune system when exposed to substances they have managed to develop allergies to. Allergy plays a typical role for example. asthma, pollen allergy (rhinitis) or eczema and can be confirmed by blood test or a test on the skin.

In-risk-people

Environmental inhibition is situational. In environments that do not contain anything that is not tolerated, the person is concerned “healthy” in the sense that it is asymptomatic. Therefore, in some cases, the term “risikant” (in-risk-person) is used.

Are you affected?

“Professor Emeritus Kjell Aas with website http://www.Allergiviten.no and http://www.Inneklima.com. He has made a survey to determine the environmental inhibition. Currently, the majority of chemical environmental intolerance that have responded. It is about people become ill from air pollution and indoor air quality, which most other people can tolerate well. They get headaches, dry and irritated mucous membranes, nausea, unusual fatigue, difficulty with concentration, perception and memory and other subjective feelings of poor health. Do feel completely eliminated with symptoms which resembles a kind of intoxication. “

Do you have asthma, allergies, mcs, or sensitivity and are struggling to appeared in the environment where drugs, gave the singer, perfume ring is used, or simply can not be there, then you have the environmental inhibition.

If you have not yet been affected, think of that very many others are struggling with your potential use of perfumes / fragrances and chemicals in everyday life. Choose an unscented and chemical free product, you’re on your way to making life for me and thousands of other much better!

Thank you in advance
Annelie
a person with asthma


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Get sick from perfume – by May Helland – bt.no

Translated from BT.no:

BT 27.02.2011 – “Has she not managed to escape from the situation it ends with her ​​being bedridden with severe pain and unexplained fatigue. To describe the May Helland (52) what happens if she comes in contact with scented products, soaps, shampoos, lotions, smoke, and especially rinsing agents and fabric softeners.

Or people who have used any of this.

The nice lady receives BA in her garden. She lives with her ​​husband and one of their daughters. Two grown children have moved out, and she has two grandchildren.

– If just one has forgotten him and washed with regular soap, for example, at work, is enough for me to get a reaction. Hangs a neighbor their clothes to dry, I can get a reaction, but the biggest problem arises when I go to medical offices, hospitals and other public bodies I have to use. Other users “dress up” a little extra before they seek out such places. Restaurants, cinemas and public transport can I just forget.

THREE YEARS AGO

It started in autumn 2007. She started a new job and soon had the sore throat after sore throat.

– Nothing helped and penicillin made ​​no avail. I could not sleep, and I coughed my way through the day. Now I am in my third year as sick leave, and I live almost isolated in the home. I use large quantities of medicine, but even so I can not move freely in society.

May Helland has bachelor’s degree in psychology and master’s degree in management. She has lived an active life with career, sports and hobbies. Now she can, if she takes the mask with her, play golf. Outdoor there is usually good, but people who come to visit, including the carpenter to help with the rehabilitation of the house, “channeled” into if not previously made ​​aware of what can happen.”

Comment: This is actually MCS they are talking about. MCS is one of the physical sensitivities that make people sick from perfume, smoke, chemicals, fumes and other scents.

Source: all credits to http://www.ba.no/nyheter/article5506665.ece


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From allergies to MCS – by Alena Jula

Alena Jula is a lady I know in person. She also was in the newspaper Bygdanytt.no in May 2011 and told her story of being allergic and having ecsema as a child, and when she grow older she got even more sick and it got worse all the time.

Health in each corner

The houses we live in is containing chemicals and pollutants. Alena Jula was sick from the indoor environment and needed a house that made her recovery.

People, their surroundings, ourselves is stuffed with chemicals every day. We lubricants them into the armholes in the morning, powdered them on the cheeks at lunch and wash the clothes with them in the evening. Chemical additive is found everywhere, and we think little of it. So it is not for Alena. She tolerate no chemicals, and are sick from your perfume.

– Do you notice anything? the reporter ask me and try duck in the door.
– Yes, I feel the fabric softener from your sweater, says Alena and holding on to a few meters distance.
– Such items must often be cleaned many times before the chemicals disappear. But it should be fine, I open some windows.

We have been showered with special soap and washed all the clothes in our fragrance-free detergent, but we slides still do not unmarked into the house at the top of Eide field on Valestrand.

Inside the house alone, the man Frank Erkelenz and the two smallest children, Isla and July. They have two more children, but they are at school.

– As a child I was plagued with allergies and eczema, says Alena. – But no one knew what was the problem. As I became older, it was worse. I struggled with pain in my head, I was dizzy, hot, I had migraines and nausea, and I often had infections. In short, I was sick more or less all the time.

But in 2005 came a turning point. On the Internet she found information about the chemical environment intolerance, and was confirmed this diagnosis by a physician. She stopped immediately with perfume, and was better from that moment.
Alena and Frank lived then in Germany, but this year is Frank offered a job in a Norwegian engineering company, and in the following year moved with his family to Sotra.

 – When I arrived I was examined at the neurological department at Haukeland, and they could confirm that it was the chemical environment of intolerance I suffered from.
– What treatment were they talking about?
– I got told to avoid environmental toxins as well as I could.

Alena had to in other words, fix the problem themselves. Well, not quite herself – when everything looked and felt the darkest it’s okay to be married to a German engineer. – We looked for a place to stay that did not made Alena sick, said Frank. – But all the house’s s built with a quantity of pollutants, so if we were ever to so many viewings we found no shelter Alena could live in. So we decided to build one ourelves.

It turned out to be easier said than done. The bought land, but no Norwegian contractors could deliver a house free of contaminants. Finally they had to turn to Germany for help. – They came from Germany with the finished modules, and spent five days to put up the house, says Frank. – The rest of the work we could do together with local entrepreneurs.

Now the house that is there, is free of toxins and waste gases, but Alena’s problem is not over because of that.

The world out there is still full of chemicals, and the mom of four children, can not go to the store, take part in public meetings, or go to visit people. In addition, family and visitors are bringing chemical contents of smells from school and work that stick to their person going home, and this is enough to make her sick.

– Also, the two oldest children of mine are being bothered by the perfume and chemicals, although not as much as me, says Alena. – The school has now ended with scented detergent, air spray, and that perfume usage from employees is reduced. It is not the meaning that pupils and adults not to be able to wash and make-up, but there are perfume-free alternatives to use. The changes from the school have done whatever our daily lives much better. We’ve had a good dialogue with the municipality, and they have been taking our problems seriously. But still there is a way to go before it gets completely well, and we depend on parents show respect and not let children use perfumed products.
– What do they in relation to neighbors and community?
– We try to inform about the disease, and asking people to take into account.
– And what do they do?
– Many show great understanding, while others believe that this is not their problem.

Alena says that the focus around the perfume and chemical additive is much greater in many other countries. – Take for example Canada. It has for many years been a ban on perfumes in all schools, kindergartens, health stations and jobs. Such laws are not only done out of respect for persons with asthma, allergies and chemical environmental intolerance, but is intended to protect everyone against chemical toxins. These substances are not good for any of us, even though not everyone is sick.

Alena is engaged and wants to challenge society to think differently about your body smells – The commercials lead us to believe that these scents are holy miraclecomponds that makes us unique and special. As if we should not be there without artificial scents? The perfumes holds often thousands of different chemicals. Today there are safe fragrance-free alternative when we should be dealing in shampoo, detergent and cosmetics.
Alena draws lines back to the 80th century, when people began to become aware of the dangers of passive smoking, and believe that society will experience the same awakening when it comes to perfume. – I am not handicapped in a way that people normally think of as handicapped. I can run and worked, but know I often is handicapped anyway. I want to encourage people to dare imagine and think again – think new. Will the scent free policy be taken into consideration and respect to children and adults with chemical environmental intolerance, asthma, eczema and allergies, then many will get back quality of life.

/ Alena Jula

The chemical environment intolerance
Kjell Aas is a professor of paediatrics, with over 300 scientific articles to his credit. He is a specialist in allergies and has been involved heavily in the health problems that Alena experience. Bygdenytt have asked him about the disease:
– What is the chemical environment intolerance?

– In short, this is an environmental inhibition. This means a hidden environment inhibition depending on the disability that is due to genetic or acquisitions malfunction in our enormously complex and complicated biochemistry.

– Chemical environmental intolerance is not an accepted diagnosis in Norway. Why?
– The condition is subjective symptom and can not yet diagnosed in a laboratory. Up to now have psykiatrar and psychologists claimed that it is a psychiatric illness. The claim is based on bad research that among other things, the perceived consequences of the condition as the cause. For us specialists on the case MCS it is probably and obvious that such a condition may easily lead to isolation, anxiety, depression, fear of places and churches where the air will be polluted by chemical compounds such as perfume, and thatit is not a psychiatric illness.
Perfumes contain substances that have just intervene in the relevant biochemical processes in which a malfunction in a way is self-driven and can provide long-term ailments. Personally I am surprised over how much the people getting sick in chemical environmental intolerance that I have had contact with, seems as mentally normal, despite the stress they live under.

– How widespread is this suffering?
– I have had contact with a hundreds of people who I call “in risks” – and not patients – since they are completely healthy when the environment is clean enough. But since this condition is not recorded in Norway, we do not know anything about how widespread this is in our country. It will continue as long as we do not have any medically diagnosed, in contrast to countries such as Germany and Austria.

– Where should people turn if they suspect they may be affected by this disease?
– The “in risks” have the problem that they can be misunderstood by both laymen and scholars. Some are lucky and meet the real doctors who listens with an open mind in relation to the mysteries of biochemistry. It is usually most likely to meet the understanding among a work medicines that look some cases start of occupational exposure.

– Those who wish to know more about the disease can go into www.inneklima.com a Norwegian site. But if you want you can translate it using an online translater such as for an example www.translate.google.com.

Published here at anneliemolin.wordpress.com with the approval of Alena Jula on 24. September 2011.

 


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Passed out because of perfume – Yvette Minter

This is from an article in the newspaper myfoxdetroit.com.

Detroit school secretary says perfume is making her sick

Worker Has Fragrance Allergy, Could Lose Job

“DETROIT (WJBK) – You won’t find any perfumes in Yvette Minter’s pantry. Four years ago, she developed a severe fragrance allergy and is hypersensitive to perfumes, colognes and cleaning supplies.

“It’s like clockwork every time. My head will start hurting,” she said. “Then the digestive system starts. I get weak.”

That’s what she claims happens every day when she goes to work as a secretary at Detroit’s Rutherford Academy.

When she worked at other school buildings, Minter says they put her in her own office, but not at Rutherford. She’s smack dab in the middle of the central office.

“I’m angry. Who wants to go to work sick every day?” Minter told us.

The overpowering odors were so bad on Monday that Minter passed out and was rushed to the hospital. Doctors diagnosed and recognize her medical issue. So does the American Disabilities Act, but Minter claims all that Detroit Public Schools has done to accommodate her is put up a sign telling people to refrain from using fragrances. It’s a sign that’s ignored.

“I called the ADA accommodator. She basically said it’s a personal issue and I just have to deal with it. So, go to work every single day with the possibility of falling out,” said Minter.

Consequently, Minter has gone home sick every day since school started. Instead of working with her, Minter believes the school is forcing her out. A disciplinary hearing has now been scheduled because she has missed too much work.

“I do have to work and have to pay my bills,” she said. “I have to survive, just like they have to survive,” she said.

Minter says a lawyer told her she has a very good case.

We contacted Detroit Public Schools and were told no comment.”

Source:
http://www.myfoxdetroit.com/story/18456401/detroit-school-secretary-says-perfume-making-her-sick

I can only say I understand her completely and also that her co-workers are bad friends. She get sick and nobody do anything to help her. That is a big BUH!


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1,230,100 people

(Scroll down for English)

1.230.100 personer

I begynnelsen av 2011 hadde Norge ca 4.920.400 innbyggere.

25% av disse har sensitiviteter som astma, allergi, lungesjukdom og andre sensitiviteter. 25% av 4.920.400 = 1.230.100 personer med astma, allergi og / eller andre overfølsomheter

I USA og andre land, er forbudet mot parfyme, forbud av bruk av parfymerte produkter, røyking også utendørs på offentlige steder som gangveier, fortau, torg, strender, parker områder rundt matutsalg og utendørs kafé, forbud mot dufter, røykelse , duft lys, etc., på offentlige steder og arbeidsplasser er allerede et faktum. Det er på tide at Norges innbyggere som har følsomhet også får tilgang til frisk luft uten allergener og irritanter som kan forebygges. Pollen kan vi ikke gjøre noe med da det kommer hvert år, og er ute av vår kontroll, men vi kan hindre folk å bli syk av parfyme og røyk. Det er ikke parfyme eller duftende produkter som gjør at du rengjør, men duften gjør flere hundre tusen mennesker syke hver dag. Det er mulig å friske deg selv duft fritt

Verden er full av alternative ikke-parfymerte produkter i dag av hva folk ikke blir syke av. Det er ingen unnskyldning lenger.

1.230.100 mennesker er i risikosonen for å  bli sjuke av bruk av parfyme og røyk bare i Norge. Du kan også legge til resten av verden, hvor mange du får da?

In English

1.230.100 persons

At the beginning of 2011 Norway had about 4,920,400 inhabitants.

25% of those have sensitivites like asthma, allergy, lung diseases and other sensitivites. 25% out of 4,920,400 = 1,230,100 people with asthma, allergies and/or other sensitivities.

In the U.S., and other countries, the ban on perfume, the ban of use of scented products, smoking even outdoors in public places like boardwalks, sidewalks, squares, beaches, parks areas around food stands and outdoor cafe’s, ban against fragrances, inscense, fragranced candles, etc., in public places and workplaces are already a fact. It is time that Norway’s inhabitants who have sensitivity also have access to fresh air without the allergens and irritants that are preventable. Pollen we can do nothing about, it come every year and is out of our control, but we can prevent people getting sick from perfume and smoke. It’s not the perfume or fragranced products that make you clean, but the fragrance makes several hundred thousand people sick every day. It is possible to freshen  your self scent free.

World is full of alternative non-fragranced products today of wich people do not get sick from. There are no excuse any more.

1,230,100 people the danger zone of getting sick from use of fragrance and smoke only in Norway. You may also add the rest of the world, how many do you get then?


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MCS – The Canary

The Canary bird was used to warn miners about mine gas that is poisonus, that is why the Canary is used as the sign for people with Multiple Chemical Sensitivity, MCS. Common chemicals in the environment make people with MCS  very sick, so sick that they in fact can die from it. This movie shows what MCS is. I am lucky I “only” got chemical asthma

I would like to share this link:

http://www.thecanaryreport.org/2008/10/09/short-film-to-document-housing-for-people-with-mcs/

More info at:
http://www.thecanaryreport.org/