Fresh air does not smell of fragrance

Frisk luft lukter ikke av parfyme.


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MCS sufferer killed himself – dailymail.co.uk

Suicide, housebound, fragrance, smoke and chemicals

MCS sufferer sensitive to fragrance, smoke and other chemicals committed suicide by shooting himself.

This might be a posting a bit hard to chew, since it is a harsh reality posting. Being allergic and sensitive to fragrance can make you disabled. Those struggling the worst can not be among people and have to be housebound Continue reading


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MCS’s have less blood flow to the brain

MCS NEWS

Like for patients having fibromyalgia, MCS patients  have altered Cerebral blood flow.

“A lower baseline flow of blood to the brain is common. When these patients are exposed to perfumes and petrochemicals, they develop further decreases in blood flow to the brain.

MCS is an acquired and progressive neurological disease induced by exposure to chemical and fragrance products.

MCS is often misinterpreted as or compared to asthma and allergies, which generally cause only temporary inconvenience and can be treated and reversed with antihistamines. In most cases, neither asthma nor allergies impacts the ability to live a relatively normal life.

However, people with MCS suffer progressive and cumulative harm, cognitive impairment, brain changes, and end organ damage with exposure to even small amounts of the seemingly innocuous chemical and fragrance substances in the air.

Those with chronic symptoms show long-term reduced blood flow to the brain and reduced ability of the brain to take up a tracer substance. This indicates a neurotoxic metabolic abnormality consistent with toxic environmental exposures to pesticides and other chemicals.”

Fibromyalgia Sweden
http://fibromyalgi.sitedirect.se/1/1.0.1.0/96/1/?item=art_art-s1%2F62

IE-Resource and MCS America
http://www.ei-resource.org/columns/multiple-chemical-sensitivity/fibromyalgia-patients-have-altered-cerebral-blood-flow-to-the-brain/

http://mcs-america.org/index_files/MCS.htm


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Push for a More Fragrance-Free Environment – Marie Schmidt – latimes.com

Testimony of Marie Schmidt of Arcadia latimes.com

Qoute

“I start sneezing and my nose starts running the minute I smell them,” says Schmidt, whose respiratory system goes on red alert at the least whiff of scented products.

“It’s sort of like cigarette smoking,” she complains. “They are invading my privacy.”

Whether she realizes it or not, Schmidt is part of what could be the next big nationwide battle that pits individual rights against public health concerns: the push for fragrance-free environments.

“Ten years from now it will be politically incorrect to wear perfumes in public,” predicts Paul Imperiale, disability coordinator for the mayor’s office in San Francisco. That city’s fragrance-free plan, drafted in 1990, was never enacted.

With Americans now using perhaps a dozen scented personal-care products each day, fragrance foes’ basic argument is this: your right to wear these products ends where my chemical sensitivities begin.

Beyond perfume, activists for fragrance-free environments are targeting restaurant bathrooms with those pungent deodorizers, office buildings that use pesticides and astringent cleaning products, and the neighborhood mall, whose host of synthetic odors assault the nostrils, especially around the holidays.

“We are putting so much into our environment that people are getting sick. I don’t think it’s a matter of personal rights now, I think it’s a matter of everyone’s health,” says Joan Ripple, a consultant to state Sen. Milton Marks, who chaired a Senate Judiciary subcommittee on the rights of the disabled.”

“In public policy terms, this could be defined as an issue of handicapped access, just like having a wheelchair ramp into a church or public building,” Brown says. “To have services that aren’t fragrance-free is to deny services to a group of people whose population is growing every day.”

End Qoute

I should say I actually is about personal rights. The personal right to not have to get ill from others vanity, egoism and shallowness.

And you do not need to have MCS to suffer from other Peoples habits, you only need astma and allergy to get ill from it.

I think the fewer would serve nuts to a person allergic and sensitive to nuts, so why do you force Your fragrance on us who get ill from it? You invade and hurt Our Health. Stop it now!

http://articles.latimes.com/1994-12-15/news/ls-9400_1_scented-products


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MCS and knowledge

If you mention MCS many say they are nuts and it is all in their head. What is more true is that those who say it have no Clue and the reality is that those People saying this is way out of line.

Today I read this article in the Danish newspaper Politiken.dk

MCS

A flower, diesel, which passes, or a napkin, that your daughter used once, where she got a hug from one perfumed lady.

More should there not that send those having MCS with symptoms of primary headache, dizziness, breathing problems and chronic fatigue – if you are striken by ​​suffering MCS, which in Danish called, “parfyme og kemikalieoverfølsomhed.

“We do not know exactly why and how it affects. Some patients have been exposed to a powerful chemicals exposure at work or have developed symptoms at some point, where they have felt themselves under very stressful situations over time, other patients recounts, that they have been  sensitive for Chemicals in the air since childhood.”, says Sine Skovbjerg, there is Research Leader at Videncenter for Duft- og Kemikalieoverfølsomhed.

“But we know from a questioning form that  17,000 Danes have ​​so severe symptoms, that it affects their lives and their work”, says Sine Skovbjerg.

The illness can affect anyone that is subjected to stong smells and scents, but can also affect People that have never been subjected to it., concludes medical director Søren Vesterhauge at Privathospitalet Hamlet.

“Generally 30-40 percent of population is specially tender over strong scents”, medical director Søren Vesterhauge, which was the first Danish physician that acknowledge fragrance and kemikalieoverfølsomhed (MCS) as a disease.

MCS stands for Multiple Chemical Sensitivity, and was introduced in the Medical literature in the United States in 1950’s. Some People got symptoms when they were subjected to gasses from pesticides, wax and rubber. In 1987 the illness got the name MCS, and in 2002 became acknowledged and by the Danish Environment Ministry, that such a disorder exists. However not yet classified With an illness code.

It is very wide and different what patient can not tolerate, and the extent to how much of smell and scnet and content of them affect them. Joint for them is that hypersensitive affect both their private and social, and their professional lives.

“It’s almost Impossible to get work, for whom want to employ a person that demand and need a scent free environment?”, asks Leader of Danish MCS association, Susanne Hemdorff.

Also in the private lives of those having MCS the illness have enormous consequences. Some must say goodbye to family or friends and neighbors, who is harmed by that person can not tolerate their fragrance. Life has to be turned on the head and everything accommodated to the illness, and Susanne Hemdorff know of several people who have taken their lives on reason of their isolation.

“Even at a Hospital one can experience the professionally personnel taking offence, because you  can not stand the smell, even though for Health reasons”, she says.

Nerves or immunity

MCS goes under a group af disorders, one in Medical world Call  ‘diffuse’. Basic meaning, one can see that people have it badly and have a lot of symptoms, which Doctors can not explain the or treat.

1 July 2012 MCS got its own diagnostic number and for the first time propriety. It was a long fight for patient holders.

“At the doctor they often were boarded with a cold shoulder and with a message, you have suffered, are you sure, that there is no hysteria?”, says Søren Vesterhauge.

By psychiatry has set MCS as a part af a major symptom complex, the functional disorders. Attempt of them to the process under a form of therapy. Without the large success or holding.

“MCS is for me a physical sickness, and over 500 patient, as I have met the last 20 years, seemed mentally normal. Although of course under stress, because none has believed them “, says Medical Director Søren Vesterhauge.

Today there are no treatment for MCS. At Danish Videncenter for Duft- og Kemikalieoverfølsomhed (MCS) attempt of researchers to find if  among other therapies,  mindfulness-based cognitive therapy helps? It is not published, but the Research Points at according to Skovbjerg that patient at least benefit from being able to better live with their symptoms.

“The therapy do not cure them, but it help them to better being able to live with their illness and symptoms and what it brings With it.”, says Skovbjerg.

The latest research also show that one can measure physical differences on MCS-Patient and people Without MCS.

»MCS patient central brain looks to react more strongly to pain, although their point of feeling pain do not seem to be different or lower than others. This we can measure. Also we have measured differences in their immune systems’, says Skovbjerg, which put weight on, that we do not yet know what these differenses mean clinically.

Center closes

Although Videncenter for Duft- og Kemikalieoverfølsomhed is the only place in Denmark where research is don on MCS the Parliament sanctioned in July that license holders do not prolong and therefore Closes  Videncenter for Duft- og Kemikalieoverfølsomhed Down by the end of this year.

“We are being failed as patients. It is disastrous for us, it widely, that the knowledge the Centre has built up for us is lost”, says Susanne Hemdorff from MCS Association, who have now started  a petition against the closure.

Please help!

Since I have asthma against the same stuff those having MCS get ill from I can totally relate to their problem. It is horrible getting ill from Things spread in the air, and if you can not get any help from the Medical side it is even worse. Everyone has to Breathe!

I have signed the petition. Please help by signing you too! Imagine if it was you or someone you love who got sick this way and had to live their lives like this. The only thing that can help those having MCS is reasearch to find out what to do about it, awareness and People caring. Please sign the petition.

http://www.skrivunder.net/bevar_mcsvidencenter_og_forbrugerkemidk

Source: http://politiken.dk/tjek/sundhedogmotion/sygdom/ECE2055523/duftsygdom-invaliderer-17000-danskere/


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Introduce and state perfume policys in all workplaces – Lisa Billö

Interview in SVT Debatt:

Make and introduce policies for perfumes in all workplaces

“PERFUME FREE – Chemical intolerance is a hidden disability that affects up to one in three humans. But for those who can not tolerate such fragrances is difficult to ask other people to “adapt” – and many of my friends have opted out of friendship for the benefit of their perfumes. By abstaining perfumes at work and at school, we can reduce sick leave for all, writes Lisa Billö.

Becoming sick of perfume chemicals is a rapidly growing health problem. Whole 10-30 percent of the population is affected by some form of sensitivity to chemical agents, and more than three per cent are so severely injured that they greatly restricted in their daily lives.

Obvious things like grocery shopping in a business can mean long illness for me and others who are suffering from MCS, Multiple Chemical Sensitivity – or chemical intolerance, as it is also called. This means that you get sick of a low dose of chemicals, a handicap that makes it not free to reside in the community, among other things because of other people’s perfumes.

I can not sit on a bus with other people who use scented products, go to the movies, theater, restaurant, seek treatment or go to private parties and events.

Asking other people to “adapt” itself is hard. Many of my friends have opted out of our friendship in favor of their perfumes. My children are getting sick every day in school because of friends ‘and teachers’ perfumed products and fabric softeners. This means that they miss a lot of teaching. Once they are there, they have the same opportunity to benefit from the instruction as other children, because of the symptoms they get.

Because it is a hidden disability they are also met by questioning from the principal and staff.

In many of our members, have often ruined economy as a result of sickness, and even loss of service. In many cases it could have been avoided by understanding colleagues and surroundings. Most are doing well in a healthy environment and are then fully or partially working.

Living with MCS greatly affect an individual’s ability to school, work and livelihood, but also leads many times to the great social isolation.

Perfume contains 95-100 percent of synthetic chemicals, which means that even people who are not chemically intolerant or allergic adversely affected. Children are particularly vulnerable. Headache, nausea, difficulty concentrating, and fatigue are common symptoms.

As with tobacco smoking affected the environment, whether they want to or not, so-called passive perfumery. By abstaining perfumes in the workplace can not only avoid unnecessary sick leave but also reduce absenteeism and for all. Fragrances affect the environment even on the bus, in the store, school and other public places.

Fragrances can be found in deodorants, shampoos, hair styling products, shaving products, skin creams, detergents, fabric softeners and cleaning Products and such fragranced products. To all products are as good fragrance-free options.

Besides chemicals in perfumes can also tobacco smoke, fabric softener, mold, emissions from building materials, inks, chemicals in electronic appliances, furniture and textiles, candles and car exhaust trigger symptoms. Common symptoms of MCS can be dizziness, nausea, brain fog, aches in muscles and joints, mucus in the throat, hoarseness, cough, nasal congestion, chest pain, palpitations, rash, fever, mood swings and depression.

MCS Sweden, the National Association for mold and chemicals damaged work for not more people will suffer and for those already injured will be staying in society on an equal basis with others.

Therefore we seek a perfume policy in all workplaces and schools, where employees are encouraged to use fragrance-free products.”

Lisa Billö, Founder MCS Sweden

Source: SVT DEBATT (Swedish original)

My point

Since I have asthma I can only agree with Lisa and all MCS affected that fragrance stinks.

Perfume-2013 is chemicals. Although it smells good so it’s chemicals. In perfume, we find among other synthetic musk (is on the EU blacklist), parabens (endocrine disruptors), toluene, formaldehyde (what you embalm dead with), benzol, methylchlorid, benzyl chloride, methyl ethyl ketone, methylene chloride, toluene and phthalates, etc.

The Environmental Health Association in Quebec, Canada: information at www.aseq-ehaw.ca:
“For some chemicals in perfumes can have serious health effects. Babies and children are most vulnerable as people who is suffering from chemical intoleranse Such as Environmental sensitivites and Chemical Sensitivities, and people recovering from cancer and other illnesses. “…” Perfumes are Considered to be the most consentrated form of fragrance. Fragrance … can be extracted from plants, flowers, and animals. Today … 80-95 percent of fragrance materials are synthetic and are derived from petroleum. … Some of the chemicals found in fragrances are: aldehydes, benzyl acetate, toluene, ethanol, acetone, benzene derivatives, formaldehyde, limonene, methylene chloride, methyl ethyl ketone, benzyl chloride and many others known to cause cancer, birth defects, infertility, nervous system damage, allergy symptoms, headaches, difficulty breathing, eye, nose and throut irritation and other injuries. … The brain is overpriced impacted by fragrances containing neurotoxic compounds. ”

The Sunday Times http://www.timesonline.co.uk tells us about scientists thathave found Cancer Causing chemicals in known perfume brands.
“SCIENTISTS have found high levels of a chemical blamed for Causing infertility in some of the best-known perfumes and cosmetics. Chanel No. 5, Christian Dior’s Poison, Eternity from Calvin Klein and Trésor by Lancôme, were among 34 toiletries found by a Swedish study to containers di-ethylhexyl Phthalate (DEHP) or other phthalates. ”

At Rodale http://www.rodale.com we can read
“The new research detected That the labels of popular perfumes do list harmful fragrance chemicals linked to sperm damage, hormone disruption which is linked to some cancers, thyroid disease, obesity, diabetes, and other serious health problems, reproductive toxicity, and allergy problems. The study was released on the heels of the President’s Cancer Panel report, Which Suggests environmental factors like hormone-disrupting chemicals in consumer products, plastics, and pesticides used on our food could be causing many more cases of cancer than initially believed. The … Cancer Panel report recommends That pregnant women and couples planning to’ve become pregnant avoid exposure to hormone-disrupting chemicals due to cancer concerns. These chemicals That May play a role in cancer were found in many of the fragrances Analyzed for this study. … “Secondhand scents Also included are a big concern. One person using a fragranced product can cause health problems for many others “second page:” Just because your favorite fragrance was not on the list does not mean it’s safe. In fact, harmful fragrance chemicals are used in thou sands of products and are Not Listed on the label. It seems like you shouldhave the right to know how These seemingly innocent perfumes and colognes are Affecting your health. But unfortunately, manufacturers do not have to list warnings or even the actual ingredients used in fragrance blends, on the label. And the problem isn’ta limited to perfumes and body sprays. We are blasted with harmful synthetic fragrances every day in the form of scented cleaners, hair sprays and dyes, air fresheners, candles, shampoos, soaps, perfumes, and body sprays. Research is finding thatmany of These scented products interfere with our hormones, Which Regulate how our bodily systems function. “One of the coalition members for this research was the Breast Cancer Fund. Read the whole story: http://www.rodale.com/perfume-ingredients

Perfume also contains chemicals that is suspected be the cause of cancer.

See list of IFRA https://anneliemolin.wordpress.com/2013/03/02/what-is-in-fragrance-the-content-of-perfume/

Very many of these chemicals is also found in tobacco smoke and some also in brake fluid.

For those who have MCS goes on the contents of that smell, more than the smell. This is also true for us who have asthma.

/ Annelie


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Producers logics

When talking to manufacturers of consumer products like cleaning products, washing products and air fragrance one get amazed about their logics. They very much like to claim their products are safe so they ensure the consumers they are safe to buy their products.

In a discussion With the Norwegian company Lilleborg at their Facebook page Lilleborg Roadshow I found this statement:

 Lilleborg Roadshow Friday 10 May 2013 12:02
“We record huge commitment of a few individuals around perfume. This discussion is not new, Lilleborg has repeatedly been in contact with the same people, and we wish here to reiterate our view: We focus strongly that our products are safe to use. We are subject to stringent regulations which set clear requirements for what ingredients we can use and we have a strong focus on consumer safety when developing new and existing products. In order to meet consumer desires, we offer products both with and without perfume. We spend considerable resources with market research to ensure that our products meet consumer needs at all times. We use the equivalent of resources in product development to ensure safe, quality products according to a very extensive regulations that are harmonized with European legislation. ”

My comment on it to Lilleborg: “If you are so keen on that your products are safe then I wonder why for example Jif Baderom contain fragrances and Chemicals that the HSE (Health Safety and Environment) data say is allergenic for sensitive individuals. That is if you have hereditary history of allergy either you know it or not you can get allergy outbreak using it. But You tell nothing about this at the bottle when you buy it in the store. To know about the allergy risk you must have the safety data sheet and read the very finely tuned text. You know it contains perfumes that are allergenic but you do not stop using it. It is irresponsible if you ask me. You expose customers and their users to the risk of allergy and claim that you care about the safety of their customers. This I want a good explanation to. ”

To the fact: I am one of those who have used this JIF Baderom toilet cleaning spray and have gotten allergies. We used it at work. And after getting sick I read all the fine print about all the products we used at work in the safety data sheet and found that JIF Baderom is not safe! I have the safety data sheet at home. Those data sheet information you do not get as a private person shopping in the grocery store A product one can get allergies from or that make asthma break out is not safe. That is pure and clear logic. I find this way of thinking of the manufacturers are fantastic! As long as they can claim the Law say it is ok to use the content, even when they know it can cause allergy, they continue using it.

They know it is not safe, and still they state to all consumers they care about their safety. I find it stupid, arrogant and uncaring. What do you think?

Copy of original text in Norwegian:
“Vi registrerer stort engasjement fra et par enkeltpersoner rundt parfyme. Denne diskusjonen er ikke ny, Lilleborg har gjentatte ganger vært i dialog med de samme personene, og vi ønsker her å gjenta vårt syn:
Vi har høyt fokus på at våre produkter skal være trygge i bruk. Vi er underlagt strenge regelverk som setter tydelige krav til hvilke ingredienser vi kan benytte, og vi har høyt fokus på forbrukersikkerhet når vi utvikler nye og eksisterende produkter. For å møte alle forbrukerønsker, tilbyr vi produkter både med og uten parfyme. Vi bruker betydelig med ressurser på markedsundersøkelser for å sikre at våre produkter møter forbrukernes ønsker og behov til enhver tid. Vi bruker tilsvarende med ressurser i vår produktutvikling for å sikre trygge kvalitetsprodukter i henhold til et meget omfattende regelverk som er harmonisert med europeisk regelverk.”

My comment in Norwegian: Annelie Molin “Om dere nå er så opptatt av at produktene skal være trygge da lurer jeg på hvorfor f.eks. Jif Baderom innholder stoffer som iflg HMS datablad er allergiframkallende for disponerte personer. Dvs har du arvelige anlegg for allergi enten du vet det eller ikke så kan du få allergiutbrudd ved å bruke det. Men dette står det ingenting om på flasken da du kjøper denne i butikken. For å få vite det må du ha HMS produktdatabladet og lese det meget finstilte. Dere vet det innholder stoffer som er allergiframkallende (1,2-benzisotiazolin-3-on) men dere slutter ikke å bruke det. Ansvarsløst spør du meg. Dere utsetter kundene og brukerne deres for risiko for allergi og påstår så at dere bryr dere om sikkerheten til kundene deres. Dette vil jeg ha en god forklaring på.

Safety Data Sheet (Norwegian)

P1080013


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May MCS Awarness month

May is the MCS awarness month. To raise awarnes for a illness making sensitive People ill all around the world.

  MAY 30 IS THE FRAGRANCE FREE DAY!
Make this day a day when you join in and do not use fragrance products. Go to the store and find scent free alternatives and you will be amazed. Make this day a day for all sensitive out there having MCS, ASTHMA and other lung diseases and ALLERGY, and make the world a place where it is possible to go out without getting ill from the fumes of perfume.

Thank You!

https://www.facebook.com/photo.php?fbid=10200990465785774&set=oa.130644103797059&type=1&theater

MCSawarness day may 30

Source: Lisa Billö

I support this. What is good for those with MCS is good for us having asthma.

/ Annelie


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Congratulations all with MCS

Congratulations all my readers having MCS. From 1 of July 2012 MCS will have its own health diagnose code in the Danish Health Care and Social Security System. A little step forward for you all.

From Dagens Medicin:

“Characteristic of severe cases is that patients describe general symptoms, which often limit them in daily life. Often they describe reactions to multiple chemical substances, such as. perfumed care – and cleaning products, evaporation from recent publications and new furniture and exhaust.

Diagnosis code for fragrance – Chemical Sensitivity will be labeled ‘symptoms related to scents and chemicals’ (DR688A1) and placed under the main category DR688A ‘Medical unexplained symptoms’ in Healthcare Classification System (SKS).

Diagnosis is subject to the following five criteria:

  1. Patients related symptoms commonly occurring scents and chemicals (eg. Evaporation from scented products, fresh print and new home furnishings).
  2. Symptoms from the central nervous system is mandatory, for example. headache, dizziness, difficulty concentrating and fatigue. Also occurs frequently symptoms from other organ systems, such as. respiratory tract disorders, musculoskeletal system, or the gastrointestinal tract.
  3. Symptoms improve or disappear when exposure is removed.
  4. The condition is chronic (> 6 months).
  5. Symptoms accompanied by significant lifestyle – or functional impairments, for example. loss of business, work and social network.”

Source: Dagens Medicin


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Sensitivites like MCS acknowledged as work injury in Sweden

Since I have asthma and it is close to what those having MCS are experiencing having problems with cases of MCS and their issues intrests me a lot. Today I read a really important winning for MCS’s in Sweden. A man with the help of the Workers Unions lawyer won against the Swedish Social Security department called Försäkringskassan.

Congratulations all with MCS in Sweden because this is a winning for you all! A case won in court is a legal statement for all of you who may come in the same situation.

The case:
Qoute
(2012-11-22) LO-TCO Workers Rights Protection has won a case in the Kammarrätten court in Gothenburg where the issue was on appeal after a petrol drenching can be approved as a work injury and diagnoses TILT (chemical sensitivity) and MCS (multiple chemical sensitivity) can be work-related injury.

The goal is about a truck driver who has been awash in gasoline in connection with the accident. The man is a member of the Transport Workers’ Union. He was fully working for three years after the accident and then became completely incapacitated with severe disease symptoms. There was no medical documentation to substantiate complaints over three years.

An oral hearing was held in administrative law where witnesses substantiated member tale of trouble over the years until he became sick. Legal protection is invoked three expert opinions of specialists in occupational and environmental medicine. Insurance relied on their part, three specialists in occupational and environmental medicine to support that connection does not exist.

The Administrative Court found after the hearing that although the medical mechanisms of current symptoms are not fully scientifically understood so it seems more likely that the member illness and discomfort is more likely to be caused by the accident accident than not. The appeal was approved an occupational injury.

Försäkringskassan tried to overrule and appeal in Gothenburg to higher court, but them agreed with former ruling. These symptoms diagnoses have probably not been previously approved as a work-related injury.

Attorneys in the case was union lawyer Ulf Lejonklou.

End Qoute

Source: Union law site:

http://www.fackjuridik.com/foersaekringsraett/item/374-kemisk-%C3%B6verk%C3%A4nslighet-godk%C3%A4nns-som-arbetsskada