If you mention MCS many say they are nuts and it is all in their head. What is more true is that those who say it have no Clue and the reality is that those People saying this is way out of line.
Today I read this article in the Danish newspaper Politiken.dk
A flower, diesel, which passes, or a napkin, that your daughter used once, where she got a hug from one perfumed lady.
More should there not that send those having MCS with symptoms of primary headache, dizziness, breathing problems and chronic fatigue – if you are striken by suffering MCS, which in Danish called, “parfyme og kemikalieoverfølsomhed.
“We do not know exactly why and how it affects. Some patients have been exposed to a powerful chemicals exposure at work or have developed symptoms at some point, where they have felt themselves under very stressful situations over time, other patients recounts, that they have been sensitive for Chemicals in the air since childhood.”, says Sine Skovbjerg, there is Research Leader at Videncenter for Duft- og Kemikalieoverfølsomhed.
“But we know from a questioning form that 17,000 Danes have so severe symptoms, that it affects their lives and their work”, says Sine Skovbjerg.
The illness can affect anyone that is subjected to stong smells and scents, but can also affect People that have never been subjected to it., concludes medical director Søren Vesterhauge at Privathospitalet Hamlet.
“Generally 30-40 percent of population is specially tender over strong scents”, medical director Søren Vesterhauge, which was the first Danish physician that acknowledge fragrance and kemikalieoverfølsomhed (MCS) as a disease.
MCS stands for Multiple Chemical Sensitivity, and was introduced in the Medical literature in the United States in 1950’s. Some People got symptoms when they were subjected to gasses from pesticides, wax and rubber. In 1987 the illness got the name MCS, and in 2002 became acknowledged and by the Danish Environment Ministry, that such a disorder exists. However not yet classified With an illness code.
It is very wide and different what patient can not tolerate, and the extent to how much of smell and scnet and content of them affect them. Joint for them is that hypersensitive affect both their private and social, and their professional lives.
“It’s almost Impossible to get work, for whom want to employ a person that demand and need a scent free environment?”, asks Leader of Danish MCS association, Susanne Hemdorff.
Also in the private lives of those having MCS the illness have enormous consequences. Some must say goodbye to family or friends and neighbors, who is harmed by that person can not tolerate their fragrance. Life has to be turned on the head and everything accommodated to the illness, and Susanne Hemdorff know of several people who have taken their lives on reason of their isolation.
“Even at a Hospital one can experience the professionally personnel taking offence, because you can not stand the smell, even though for Health reasons”, she says.
Nerves or immunity
MCS goes under a group af disorders, one in Medical world Call ‘diffuse’. Basic meaning, one can see that people have it badly and have a lot of symptoms, which Doctors can not explain the or treat.
1 July 2012 MCS got its own diagnostic number and for the first time propriety. It was a long fight for patient holders.
“At the doctor they often were boarded with a cold shoulder and with a message, you have suffered, are you sure, that there is no hysteria?”, says Søren Vesterhauge.
By psychiatry has set MCS as a part af a major symptom complex, the functional disorders. Attempt of them to the process under a form of therapy. Without the large success or holding.
“MCS is for me a physical sickness, and over 500 patient, as I have met the last 20 years, seemed mentally normal. Although of course under stress, because none has believed them “, says Medical Director Søren Vesterhauge.
Today there are no treatment for MCS. At Danish Videncenter for Duft- og Kemikalieoverfølsomhed (MCS) attempt of researchers to find if among other therapies, mindfulness-based cognitive therapy helps? It is not published, but the Research Points at according to Skovbjerg that patient at least benefit from being able to better live with their symptoms.
“The therapy do not cure them, but it help them to better being able to live with their illness and symptoms and what it brings With it.”, says Skovbjerg.
The latest research also show that one can measure physical differences on MCS-Patient and people Without MCS.
»MCS patient central brain looks to react more strongly to pain, although their point of feeling pain do not seem to be different or lower than others. This we can measure. Also we have measured differences in their immune systems’, says Skovbjerg, which put weight on, that we do not yet know what these differenses mean clinically.
Although Videncenter for Duft- og Kemikalieoverfølsomhed is the only place in Denmark where research is don on MCS the Parliament sanctioned in July that license holders do not prolong and therefore Closes Videncenter for Duft- og Kemikalieoverfølsomhed Down by the end of this year.
“We are being failed as patients. It is disastrous for us, it widely, that the knowledge the Centre has built up for us is lost”, says Susanne Hemdorff from MCS Association, who have now started a petition against the closure.
Since I have asthma against the same stuff those having MCS get ill from I can totally relate to their problem. It is horrible getting ill from Things spread in the air, and if you can not get any help from the Medical side it is even worse. Everyone has to Breathe!
I have signed the petition. Please help by signing you too! Imagine if it was you or someone you love who got sick this way and had to live their lives like this. The only thing that can help those having MCS is reasearch to find out what to do about it, awareness and People caring. Please sign the petition.