Fresh air does not smell of fragrance

Frisk luft lukter ikke av parfyme.


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Masced against scent – Katarina Persson and Ritva Pyykkönen – Haparandabladet

Read in Haparandabladet:

“HAPARANDA SWEDEN: The many scents that are all around us – and that we put on ourselves, becomes the moment pure terror for people with hidden disability fragrance hypersensitivity.

– Being oversensitive is not visible – but we hope to increase knowledge and awareness of others, says Katarina Persson and Ritva Pyykkönen, both teachers in Haparanda, to Haparandabladet.

A visit to the store can suddenly end up with swollen throat, itchy eyes flowing – and in the worst cases, difficulty breathing. Now, at Christmas, it is not easier. – It is horrible and absolutely crazy that there be perfume in almost all products.”

http://hbwebben.se/maskerade-mot-dofter-som-gor-dem-sjuka/


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Severe allergy, food, people and busses – Eidissen – klikk.no

Read on Klikk.no today

“The family Eidissen all suffer from asthma, eczema and severe allergies – against including eggs, fish, nuts, strawberries, latex and insect stings. Five of the six family members go with epinephrine syringes Epipen and Jext – in case they go into allergic shock.

Hard to take a bus

All the children have allergies, asthma and eczema, from mild to very severe. Also bearing animals and perfume creates problems for four children family. We must get off the bus and enters into a dog. The same applies to fish. Once there was a kid who had a hot fish cake onto the bus. Then we had the right away. Breathing problems we have may even be life threatening, says mum Marit Eidissen.

Bus tours are rare and must be prepared.”

http://www.klikk.no/foreldre/helse/article876229.ece

If all bus Companies were strikt on not allowing Food on the busses, no fragrance, no animals and cleaned all busses fragrance free we would have come a long way in making Public transportation available to most People.


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Boy died from asthma attack – Ryan Gibbons – lfpress.com

A boy Ryan Gibbons was not allowed to carry his inhalor With him at School and died from a asthma attack.

“Sandra Gibbons knew something needed to change when her son Ryan, 12, died after an asthma attack at his school in Straffordville last year (2012).

Ryan wasn’t allowed to carry his inhaler with him at school, Gibbons said. So she started a petition to require school boards to adopt standardized asthma plans.

Gibbons’ petition garnered more than 1,500 signatures. The bill passed second reading with all-party support at Queen’s Park this week. The government has an obligation to ensure that (when) kids are at school that they have the safest environment possible.

It would also allow asthmatic students to carry a reliever inhaler at all times, with a doctor’s approval.

“There will be, of course, discretion,” Yurek said. “You’re not going to have a four-year-old carrying around their own puffer.”

Asthma is well known to be a Deadly disease if not treated properly with medicine and avoiding what makes the person ill. It is a shame that the School and People in generally do not respect it as such. Here a boy died from other Peoples ignoranse and overruling a persons needs.
And why a four year old can not carry his own puffer to use whenever the kid needs it is for me not understandable. I have asthma myself and I know that sometimes you do not have the possibility to run all over a School yard to get the teacher to get Your medicine, you must have it there and then, not later. Asthma medicine should be taken at once one feel a problem evolving, not wait 10 minitues to half an hour or more. The puffer is a life saviour and should be handled as such and carried With oneself eat all times. It should not even be a matter of questioning it.

I get upset, sad, angry and a lot more and tears are coming. I have a question for all wanting to deny a person having asthma their puffer:

– Would you deny a heart patient to wear his heart medicine?

It should be a human right to have ones medicine at hand at all times.

We have sertant organs that is crusual for living: heart, lungs, kidneys, liver, stomach, brain a.s.o. Without those organs functioning we are no more. Medicine helps the organ function so if you deny the person having or using their medicine they die.

Rest in Peace Ryan
Annelie

Read the Whole story:
http://www.lfpress.com/2013/12/06/jeff-yureks-private-members-bill-would-require-asthma-policy-at-schools


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Allergy to rosin, perfume, mold, sensitivity two fragrance and tobacco – Doris – livsbild.se

At Livsbild.se Doris tells us about her eczema she lived With for years since she was 18 years old, and from the doctors were prescribed lotions and Hydrocortisone. Her Eczema got worse and worse, and many years later they made a allergy test on her. They found out that she was allergic to rosin, neomycin, bensocain och hydrocortisone.

Rosin is made from trees like pine and is used in a varaity of products like pine soap, detergents, soap, shampoo, paper, glue, mascara, paired talk gaskets in dentistry, rubber, latex, staple, patches, colored pencils, inks, labels, floor and furniture polish, chewing gum, gelatine, some varieties of ice cream, modeling clay, wax, waxes, paints / varnishes, putties, stove polish, flycatcher, perfume and much more.

Think of it, substances put in products you use on Your body that is highly alllergenic.

She tells us that newspapers, especially newly printed, can not be too close as they will give her trouble breathing. Perfume and cigarette smoke gives her more difficult to breathe. Since she is also mold allergy, which means that she knows instantly if there is mold in a local, and have difficulty breathing and his eyes begin to itch and drain. To have this allergy means she, besides struggling to avoid subjects also had endured ridicule. And she says

“- Did I choose, I would of course not wanted to have this allergy and asthma. Yes, there are some who would choose this or any other allergy at all?”

http://www.livsbild.se/Livsberattelser/Vad-17-ar-kolofoniumallergi/

Allergy to rosin, perfume, mold, sensitivity two fragrance and tobacco – Doris – livsbild.se


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Developed MCS / SHR – Ingvor Näsmyr – vf.se

Article from vf.se 2013-05-30

“Fragrance Sensitivity Over overturned life as she knew it

Freshly washed sheets. An expensive perfume. Cozy scented candles.
For Ingvor Näsmyr, just like most others, belonged to such a life’s joys. But last year she was diagnosed with sensory hyperreactivity – and everything was upside down.
– A trip to town and I will be lying in two days, she says.

For Ingvor Näsmyr it is deadly serious.

Since last year, when the problems escalated and she finally got her diagnosis, she has been put on all their habits and start thinking three steps ahead.

– Just to clean up the house took forever. One such thing as plastic things that one can not think spreading any particular smell, I can be completely floored by.

On the kitchen table is a little flower not spread any scent, otherwise the plastic flowers in the windows. The new clothes she buys, she washed a few times with chemical-free, odorless detergent before she can use them. All creams, soaps and other personal care products have been carefully selected to work.

And that’s just at home.

As soon Ingvor open the front door, she risks figuratively being knocked out by fragrance hitting her.

– There are so many things you never thought of before. Everything from a fire debris a block away to the washing and waxing the car. Riding a bus is a gamble. Standing in line at the store, I dare not any longer. You become so limited, almost isolated. But sometimes I am not able to be at home and the I go into town anyway.

The consequence? Almost certainly, she is lying in two days, with strong flu aches and extreme tiredness in the body.

Where then does the problem come from? Scientists are not completely agree, but the prevailing theory is that prolonged exposure to chemicals and strong odors increases the risk. Ingrid Näsmyr has worked in health care, and the final years at Ikea as a cleaner.

– It is clear that there are a lot of smells there. Furniture with flame repellants, customers that have perfume. It have not been able to work there, I have been full-time sick leave for six months now. At times it has been very hard, joy is the source of my lovely granddaughter Norah. Without her, I do not know how it would go.

What she wants is that ordinary people became aware of the disease. Ignorance is great, many are skeptical and do not understand the seriousness. Even at the health center staff may have fragrances that trigger reactions, says Ingvor.

– It would be so nice to just one day be able to walk around normally, without fear , says Ingvor Näsmyr”

Credits to vf.se

Read it in Swedish
http://www.vf.se/nyheter/karlstad/doftoverkansligheten-stallde-livet-pa-anda


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Airplane flight and perfume – Scott Gordon – kgw.com

Fragrance on a Airplane threat to Health and life.

From Kgw.com:

Scott Gordon was returning from a business trip on Sunday.  He was traveling by himself, on a flight from Phoenix to Seattle.

“My eyes started watering and my head started to pound and I just, it kept on hitting me, I kept on smelling it,” he said.

The smell he’s talking about was the perfume of someone on board the plane.

Gordon has always been overly sensitive to certain fragrances, and says this was one of the worst episodes he’s experienced in his life.

Read the article and view the video:
http://www.kgw.com/lifestyle/health/Man-passes-out-from-perfume-on-Seattle-flight-226304531.html


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Body spray and lung illness – Jade Tripp – cbc.ca

Body spray banned from school

Read in CBC.ca – Some boys have been dousing themselves in Axe, apparently believing commercials that show a young man applying the deodorant and being immediately hit on by beautiful women.

“They spray it all over their heads and their necks. They don’t realize how powerful the odour is,” said Grade 8 teacher Heather Touchie-Blakely.

“…a walking stink bomb, [which is] basically is what they are.”

Grade 7 student Jade Tripp, who suffers from cystic fibrosis, said the spray caused her to have a violent reaction.

“I couldn’t breathe. My ears were ringing and I was shaking and I had a fever. If I had a boyfriend and he wore Axe, I would not be attracted to him.”

Source: Qoute from:
http://www.cbc.ca/news/canada/body-spray-banned-from-n-b-school-1.558799


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Want perfume free busses – Hansen – nrk.no

Mrs Hansen is lung operated and get severe breathing problems from taking the bus due to passengers using perfume.

After a complaint the bus Company of Telemark in Norway is thinking of asking the passengers to cut Down on perfume use.

http://www.nrk.no/ostafjells/telemark/vurderer-parfymefrie-busser-1.6852255

http://www.tv2.no/nyheter/innenriks/oensker-parfymefrie-busser-2994320.html

Source NRK.no and TV2.no

My comment is that that is surtainly true it can be a big problem With passengers using perfume, but bus Companies should also consider using fragrance free cleaning.


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Living with MCS – Pia Alme’e Tordly – byavisatonsberg.no

Ms. Tordly lost her job after developing MCS  due to being subjected to mold in 2008. She became ill from Chemicals in buildings, cleaning agents, washing agents and any other Chemicals. Du to she get sick from bad building materials she even had to move several times during a few years and live With friends.

I found the article on her at her hubby’s public Facebook postings.

Read the Whole article in Norwegian:

http://www.byavisatonsberg.no/utgaver/404-2013/#/4/zoomed


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Acutely allergic to fragrance – Taylor Bidlake – cbc.ca

Taylor Bidlake goes to Fredericton High School, one waft of perfume could have serious consequences. Equipment in her bag is a bag of magnesium power, EpiPen and an air purifier.

Going to School and being around 1700 People wearing some fragrance is troublesome.

“Last year, I had two concussions because I passed out in the hallway and hit my head on the floor,”

Even though her school of 1,700 students has a scent-free policy, more than once, the content of the smell of perfume has crippled her. In December, seizures sent her to hospital.

Stepfather would like to see scent-free policies at schools enforced as strongly as peanut and other food allergies: “When a student’s health is being put at risk and their education is being affected, then they need to be able to follow through and make sure that policy is being enforced,”

Going to prom

‘I’m hoping that especially tonight that they do put announcements on because girls and guys like to wear to stinky stuff, apparently, to impress others people but I think it just stinks.— Taylor Bidlake, Leo Hayes High School graduate

All credits to Source and read more: CBCNews Health


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Introduce and state perfume policys in all workplaces – Lisa Billö

Interview in SVT Debatt:

Make and introduce policies for perfumes in all workplaces

“PERFUME FREE – Chemical intolerance is a hidden disability that affects up to one in three humans. But for those who can not tolerate such fragrances is difficult to ask other people to “adapt” – and many of my friends have opted out of friendship for the benefit of their perfumes. By abstaining perfumes at work and at school, we can reduce sick leave for all, writes Lisa Billö.

Becoming sick of perfume chemicals is a rapidly growing health problem. Whole 10-30 percent of the population is affected by some form of sensitivity to chemical agents, and more than three per cent are so severely injured that they greatly restricted in their daily lives.

Obvious things like grocery shopping in a business can mean long illness for me and others who are suffering from MCS, Multiple Chemical Sensitivity – or chemical intolerance, as it is also called. This means that you get sick of a low dose of chemicals, a handicap that makes it not free to reside in the community, among other things because of other people’s perfumes.

I can not sit on a bus with other people who use scented products, go to the movies, theater, restaurant, seek treatment or go to private parties and events.

Asking other people to “adapt” itself is hard. Many of my friends have opted out of our friendship in favor of their perfumes. My children are getting sick every day in school because of friends ‘and teachers’ perfumed products and fabric softeners. This means that they miss a lot of teaching. Once they are there, they have the same opportunity to benefit from the instruction as other children, because of the symptoms they get.

Because it is a hidden disability they are also met by questioning from the principal and staff.

In many of our members, have often ruined economy as a result of sickness, and even loss of service. In many cases it could have been avoided by understanding colleagues and surroundings. Most are doing well in a healthy environment and are then fully or partially working.

Living with MCS greatly affect an individual’s ability to school, work and livelihood, but also leads many times to the great social isolation.

Perfume contains 95-100 percent of synthetic chemicals, which means that even people who are not chemically intolerant or allergic adversely affected. Children are particularly vulnerable. Headache, nausea, difficulty concentrating, and fatigue are common symptoms.

As with tobacco smoking affected the environment, whether they want to or not, so-called passive perfumery. By abstaining perfumes in the workplace can not only avoid unnecessary sick leave but also reduce absenteeism and for all. Fragrances affect the environment even on the bus, in the store, school and other public places.

Fragrances can be found in deodorants, shampoos, hair styling products, shaving products, skin creams, detergents, fabric softeners and cleaning Products and such fragranced products. To all products are as good fragrance-free options.

Besides chemicals in perfumes can also tobacco smoke, fabric softener, mold, emissions from building materials, inks, chemicals in electronic appliances, furniture and textiles, candles and car exhaust trigger symptoms. Common symptoms of MCS can be dizziness, nausea, brain fog, aches in muscles and joints, mucus in the throat, hoarseness, cough, nasal congestion, chest pain, palpitations, rash, fever, mood swings and depression.

MCS Sweden, the National Association for mold and chemicals damaged work for not more people will suffer and for those already injured will be staying in society on an equal basis with others.

Therefore we seek a perfume policy in all workplaces and schools, where employees are encouraged to use fragrance-free products.”

Lisa Billö, Founder MCS Sweden

Source: SVT DEBATT (Swedish original)

My point

Since I have asthma I can only agree with Lisa and all MCS affected that fragrance stinks.

Perfume-2013 is chemicals. Although it smells good so it’s chemicals. In perfume, we find among other synthetic musk (is on the EU blacklist), parabens (endocrine disruptors), toluene, formaldehyde (what you embalm dead with), benzol, methylchlorid, benzyl chloride, methyl ethyl ketone, methylene chloride, toluene and phthalates, etc.

The Environmental Health Association in Quebec, Canada: information at www.aseq-ehaw.ca:
“For some chemicals in perfumes can have serious health effects. Babies and children are most vulnerable as people who is suffering from chemical intoleranse Such as Environmental sensitivites and Chemical Sensitivities, and people recovering from cancer and other illnesses. “…” Perfumes are Considered to be the most consentrated form of fragrance. Fragrance … can be extracted from plants, flowers, and animals. Today … 80-95 percent of fragrance materials are synthetic and are derived from petroleum. … Some of the chemicals found in fragrances are: aldehydes, benzyl acetate, toluene, ethanol, acetone, benzene derivatives, formaldehyde, limonene, methylene chloride, methyl ethyl ketone, benzyl chloride and many others known to cause cancer, birth defects, infertility, nervous system damage, allergy symptoms, headaches, difficulty breathing, eye, nose and throut irritation and other injuries. … The brain is overpriced impacted by fragrances containing neurotoxic compounds. ”

The Sunday Times http://www.timesonline.co.uk tells us about scientists thathave found Cancer Causing chemicals in known perfume brands.
“SCIENTISTS have found high levels of a chemical blamed for Causing infertility in some of the best-known perfumes and cosmetics. Chanel No. 5, Christian Dior’s Poison, Eternity from Calvin Klein and Trésor by Lancôme, were among 34 toiletries found by a Swedish study to containers di-ethylhexyl Phthalate (DEHP) or other phthalates. ”

At Rodale http://www.rodale.com we can read
“The new research detected That the labels of popular perfumes do list harmful fragrance chemicals linked to sperm damage, hormone disruption which is linked to some cancers, thyroid disease, obesity, diabetes, and other serious health problems, reproductive toxicity, and allergy problems. The study was released on the heels of the President’s Cancer Panel report, Which Suggests environmental factors like hormone-disrupting chemicals in consumer products, plastics, and pesticides used on our food could be causing many more cases of cancer than initially believed. The … Cancer Panel report recommends That pregnant women and couples planning to’ve become pregnant avoid exposure to hormone-disrupting chemicals due to cancer concerns. These chemicals That May play a role in cancer were found in many of the fragrances Analyzed for this study. … “Secondhand scents Also included are a big concern. One person using a fragranced product can cause health problems for many others “second page:” Just because your favorite fragrance was not on the list does not mean it’s safe. In fact, harmful fragrance chemicals are used in thou sands of products and are Not Listed on the label. It seems like you shouldhave the right to know how These seemingly innocent perfumes and colognes are Affecting your health. But unfortunately, manufacturers do not have to list warnings or even the actual ingredients used in fragrance blends, on the label. And the problem isn’ta limited to perfumes and body sprays. We are blasted with harmful synthetic fragrances every day in the form of scented cleaners, hair sprays and dyes, air fresheners, candles, shampoos, soaps, perfumes, and body sprays. Research is finding thatmany of These scented products interfere with our hormones, Which Regulate how our bodily systems function. “One of the coalition members for this research was the Breast Cancer Fund. Read the whole story: http://www.rodale.com/perfume-ingredients

Perfume also contains chemicals that is suspected be the cause of cancer.

See list of IFRA https://anneliemolin.wordpress.com/2013/03/02/what-is-in-fragrance-the-content-of-perfume/

Very many of these chemicals is also found in tobacco smoke and some also in brake fluid.

For those who have MCS goes on the contents of that smell, more than the smell. This is also true for us who have asthma.

/ Annelie


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The scent mania makes ill personell

Airport smelled too good – staff sick

They had installed designer fragrance in the Tax Free area at Landvetter airport in December 2012 and it became too strong. Several of the staff got sick. Now the case is reported to the Swedish Work Environment Authority.

They installed four scent machines inside the duty-free shop. The machines went on maximum power and a risk assessment was not made.

After several of the staff had problems with dry eyes, nasal congestion, and nosebleeds hit Swedish Labour Inspection Authority alarm. Two of them were forced to take asthma medications.

Now, the employer must arrange health track and also arrange for odor source either be removed or the ventilation is enhanced.

Source: Expressen.se

I must say it is madness to install such scent puffing machines. It makes the area unavailable to those who already have asthma, allergy and sensitivity, and it also makes those not sensitive become ill. If someone have ones developed asthma in adult age it is for life. Those People here are maybe forced to change occupation now after the employer have gone over the limit of what their bodies can stand.

I myself can not enter a perfume store at all. And even less a store using fragrance marketing. A store with both perfume and scent marketing together is like hell ten times.

We are designed to Breathe air not fragrance.

Read more on reactions in a perfume store


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Asthma attacks are lonely and scary – Becky G

“Asthma attacks are not only frightening, but also extremely lonely experiences. When I’m in the midst of a crisis I can’t breathe enough to speak. I can’t tell anyone how scared I am. I can’t ask for anything I might want. There may be plenty of physical contact but it’s from professional carers and almost exclusively involves the touch of a stethoscope, the prod of a finger, the jab of a needle, invasive and painful blood tests. Of course I appreciate that this is all absolutely necessary in the attempt to keep me alive, but it’s all so impersonal and clinical … and lonely. What I crave for at these times is not only for my life to be saved, but also the gentle touch of a friend; the company of somebody who cares about me for me; someone to hold my hand; or just have someone be with me, sit with me, help me through by being there with me.” BeckyG  Source and read more..

I read this today and I feel it is like hitting the head of a nail. So accurate. I have not experienced being close to death yet like Becky has, but a asthma attack is anyhow a frightening experience and one feel helpless, lonely and in need of support and help. Scary and frightening, the feeling of helplessness when the airways in the lung tighten, and the feeling of the lungs strangeling you from within your body. It is the feeling of your body turning on you, and your own medicine do not help, and whatever you do it do not help. Being dependend on the relief from emergency treatment. The lonely feeling from being frightened, helpless and hurting. One in a way become like when one was sick as a child, in need of help, relieve, support and a hug. Fixing the asthma attack is a great thing, but a stroke on the back, a kind smile, a understanding look, a kind hand and maybe even a warm hug would be a blessing and a energizer. But often when it happens one only get treatment, that of course is both wonderful and a blessing, but then one is lonely going home, and the body still tired from the attack, every muscle tired, the body tired, the soul tired, feeling relieved and at the same time sad for having to struggle with it. No one holding a arm around the sholders, stroking the back asking how it is. Just go home to sleep.

The need of not feeling lonely. Just a little bit of love.

While at the same time extremely happy to have gotten help, relieve, and gotten better.

Annelie


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5 Year old with fragrance allergy – Sophie – huffingtonpost.com

“Before her mom enrolled her five-year-old daughter, Sophie, in ballet classes at the local recreation center she went to the ballet studio to sniff around. Literally.

For some, the symptoms of a fragrance allergy involve skin irritation. For Sophie, the symptoms are a little more serious. An encounter with perfumes, a laundry vent wafting scented detergent, most cleaning products, or air fresheners, not to mention shampoos, moisturizers, or sunscreens, can send her to the emergency room with respiratory problems.”

Her mom went to the ballet school to check out if it was safe for her daughter to go to school there, but found there had to be changes done before sending her to school.

“She spoke with the staff about the cleaning regime, and learned that the floor was routinely washed with a scented product. After some discussions, the rec center staff agreed to wash the floors of the ballet studio with water on the morning of Sophie’s class, and also asked the teacher to refrain from wearing scented products on the class day.”

“Allergic reactions to fragrance are common, and appear to be on the rise. Many fragrances are factory-made from petroleum. Some are engineered to grow stronger over time (such as some laundry detergent fragrances, designed to fight the smell of dirty clothes). Fragrance allergens commonly used in cleaning products include limonene, Hexyl cinnamal, citronellol, butylphenyl methylpropional, linalool, geraniol, and benzyl Salicylate.”

“Sophie is home-schooled. She can’t go to Target, Walmart, or Marshalls, because of the fragrances there. The family can’t travel by airplane or stay in hotels, so they go car camping to get away. Even having relatives visit is difficult, as many hotels use plug-in air fresheners that linger on clothes and trigger reactions in Sophie. And every time Sophie goes to the hospital for breathing problems, there are a myriad of other artificial fragrances in hand sanitizer and other products that can trigger Sophie’s allergies.”

Source and read more: Huffingtonpost.com

Since I know first hand what it is like being sensitive and get respiratory problems from fragrance I can only say: – I know what Sophie is going through and I can only say to you all:

THINK BEFORE YOU STINK!

 


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A community diagnosis of symptoms – by MD Aage Hegge Hansen

A community diagnosis of symptoms

MD Aage Hegge Hansen “As the first Norwegian doctor publicly (including on NRK) declared battle against perfume pollution, I have via the web come in contact with patients all over the world.

My contacts have strengthened me in theory that it is the fragrance of hygiene products that are hazardous to health, hygiene is not in itself, as some here at home has believed.

When the fourth of Norwegian adolescents with asthma, it is in reality a national disaster. This gives asthma including increased risk of fatal COPD later in life. But modern asthma therapy is so effective that patient and doctor can easily forget disease is so dangerous degree and that the best treatment is still trying to find the reasons for getting rid of asthma. Unfortunately, few people seem to be interested in it.

It is not many years ago since smokers could freely wide in all arenas. People with sensitive lungs could protest as much as they wanted, the smoke was a legal product that was lit where you found it for good. This is no longer, the health argument has trumped all other arguments, and now tobacco is rolled back using the law. It will thus soon become marginalized as a public health problem.

Now the perfume used is the main challenge, something most people are able to recognize at the individual level. If person A on the job stinks so strongly of perfume, that person B gets sick from it and are not able to be there anymore – it is then that B must quit his job, or is it A, which must begin to meet up with odor-free clothes? I would think that B’s claim of fresh air should be considered more legitimate than A’s desire to use perfume, in unlimited quantity, anywhere and anytime.

Perfume emissions primarily from clothing, hair and skin of the user, but also sits in the house and car interiors, which one gets secondary degassing up to months and years. The gases are causing a number of “conditions” as Sick Building Syndrome (SBS), Building Related Illness (BRI) and Multiple Chemical Sensitivities (MCS). Primary and secondary perfume degassing has become so dominant  cause of disease, and gives such a typical view on the matter, depending on the degree of exposure and time exposed, it may be appropriate to define a separate syndrome; Perfume Related Illness (PRI).

Regardless, perfume and tobacco smoke two sides of the same contamination issue, and perfume use is so extensive now in 2011, that the whole body of society may be said to be sick and perfume damaged, in addition to that they are already and still tobacco damaged. The difference is that while damages to health du to tobacco is under consideration, with the Tobacco Act as medicine, no perfume injuries is taken up for discussion even in the responsible departments and organisations.
With the honorable exception of Asthma and Allergy Association, which at the congress in 2010 adopted a policy of smoke-and Fragrance-free public space. It is the only sensible from a public health perspective.” MD Aage Hegge Hansen, Norway

Read the original article in Norwegian


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Whiff of perfume could kill me – Lord Simon – dailymail.co.uk

Interviu with Lord Simon in House ofthe House of Lords:

Whiff of perfume could kill me

“Like five million other people in this country (UK), I suffer from asthma. In my  case, allergic reactions to perfumes, tobacco smoke and chemical fumes have  forced me to make huge changes to the way I live.

The last time I went to the cinema, for example, was to see Crocodile Dundee  in 1986, and I can’t remember when I last sat in a crowded restaurant, or took a  train or bus.

Any of these “normal” activities will expose me to triggers which could set  off a potentially fatal attack. Just the slightest whiff of a woman’s perfume,  some aftershave or someone’s cigarette can bring on an attack in 20 seconds, and  leave me fighting for breath.

Three years ago, I collapsed and needed oxygen simply because a Baroness tried  to sit beside me after washing her hair that morning with a perfumed shampoo.

And last October it even caused a sitting of the House to be adjourned. I was Deputy Speaker that day when a message was handed across the chamber.  It was on a piece of faintly perfumed paper – and I inhaled a tiny whiff of the  scent.

In an instant, I was gasping for breath, as the bronchioles – the small  airways that carry air in and out of the lungs – became inflamed and  swollen.

As a result of my condition, nothing is left to chance. I have an oxygen tank  and mask in my office at the House of Lords, another in my bedroom at home and  one behind the driver’s seat of my car.

Although I live a full and very active life, asthma has changed my existence  beyond measure. I can no longer fly or travel on public transport. I cannot stay  in a hotel in case a smoker is in the room next door, or the pillowcases contain  residues of dry cleaning fluid.

I can’t go to the theatre, restaurants or the cinema. My wife, has had to change every brand of shampoo, deodorant and make-up which  she used to use.

Any guests to our country home are given a list of strict instructions about what they can and cannot wear.”

Souce and Read more: dailymail.co.uk


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My story – Eve – detoxthebodymcs.com

From Eve’s site:

Eve’s story

“The physical aspects are frightening and debilitating and the social consequences are sad, infuriating and humiliating. So many people just assume you are a complainer or a hypochondriac, when you are just trying to stay alive. I learned to suffer in silence(and further damaged my body) because people would be offended if I suggested something they used was toxic. After a while, I realized that I would just have to piss people off and let them think or say what they want.

I just want to give you a little background: I was always a healthy conscious, actively exercising and well-eating, so I was sensitive to chemicals, and maybe a few years ago, perfumes started bothering me. All of a sudden, in my gym and my workout class, people’s perfumes and fabric softener started bothering me, making me feel so sick, so  that I couldn’t stand to stay in the room anymore. I was left with a headache, disorientation and gasping for breath. Over a short period of time, wherever I went, the chemicals everywhere just bothered me—gave me headaches, made me grouchy, made me spacey, make me tired, hurt my lungs, and just made me feel awful.

If I went to the park and the chlorine from the fountain would hurt my lungs. If I was on the sidewalk, I could smell people’s perfume through the windows. Those little pine tree air fresheners made it impossible to ride in a taxi. I had an asthma attack working out on a polluted day and that was the beginning of my lungs being damaged. Once I was sickened by some  ‘aroma therapy’ (“organic” from China ) so that I could hardly even manage to put a sentence together.”

Read more at Eve site.

Source: Eve’s site


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Human Canaries and Friendship

Even asthma

Even for asthma sensitivity for small dozes are there. A person with asthma reacts on dozes 0,02 ppm. So I you have just a little on, it may be to much. Best is to go fragrance free. Then you do not bather anyone.

Ichigo Ichie

In addition to many of the health issues I’ve talked about in this blog, one of the major conditions that has increasingly affected my daily life is my extreme sensitivity to fragrances and certain chemicals.  People with sensitivities like me, and others diagnosed with “multiple chemical sensitivity (MCS)” are referred to as “canaries.”  We are human canaries.  The name “canary” comes from a past practice of miners who would take the birds into the mines with them as an animal sentinel, to provide advanced warning of danger.  Canaries are more sensitive to toxic gases than humans, so if the bird stopped singing, got sick, or died, the miners would know they needed to escape the mine or use protective gear before they were affected.

Low levels of fragrances and chemicals that most people probably wouldn’t notice, will make me very sick, so sick that I could be…

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Intolerans to perfume – Pia Tordly – Tv2.no

Pia Tordly lives in Sweden and suffers from MCS that is a Environmental inhibition. This is a translation from a interviu with her in TV2.no published on 3. May 2012.

Qoute

Can not tolerate perfume – had to move 10 times in one year

Pia Tordly get sick from perfumes, chemicals and fumes. More and more affected by the disease MCS an Environment Inhibition.

– Not being believed is the worst, says Pia Aimée Tordly (43). For I know how I am feeling. Having severe pain and to know that tonight I might get major breathing problems, also I will not be believed as well. It is terrible!

Started with molds
It all started in 2008 when Pia Aimée Tordly moved into a new apartment in the city of Tønsberg.

– After only 3-4 days I got major difficulty breathing, and middle of the night, I just had to get out of the flat, says Pia.

Later it turned out that the apartment was attacked by mold, and the pain went over when she moved to another apartment.

Moved ten times in one year
But two years later in 2010 the breathing problems came back when Pia bought a new apartment.

– After a few days I was so sick that I had to move. There I was extremely upset because I had bought my dream apartment with jacuzzi and everything, she says.

It was the start of her life’s most hard years. In 2010, she moved in and out of 10 different apartments.

Stayed in the car
– Sometimes I just had to get out at the minute. So I ended up both on the couch with friends or sleeping in the car, says Pia.

Mysterious Disease
At Home with Pia and her partner are all products and body care products fragrance-free.

Pia suffer from a mysterious illness MCS. There is no public diagnosis, but those who claim to have this disease can tolerate neither perfume or other chemicals or gases from building materials. It is therefore they are most affected struggling to find houses to live in.

– Now I live with my partner in Sandefjord. Here is my refuge, says Pia, who shows us around in a totally odorless apartment. She does not know why she is not responding to materials in this particular condo, but is happy to have a place to stay.

The disease has made her poor
Since Pia has had to sell houses very fast, she has lost a lot of money. She also had to quit the project manager job in Oslo, because she can not commute by train.

– I can not be in public places because of the perfume intolerance, says Pia who now live on the rehabilitation money.

Pia would like to return to work. But she can not be in the waiting room at the employment office. So she waits in the car for a vented room is ready.

– I want to return to work

The disease has cost Pia much and she misses many things from her old life. She was active salsa dancing, practiced Taekwondo and loved to socialize.

– It takes on the feel that everyone should pay attention to me about my illness all the time. But I’d really like to return to work. When I stay away from perfume and chemicals, I am the perfectly healthy, she explains.

End Qoute

Article in Norwegian TV2,no
http://www.tv2.no/gmn/taaler-ikke-parfyme-maatte-flytte-10-ganger-paa-ett-aar-3771247.html

 


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Perfume affect health – Mette Kalleberg – Aftenbladet.no

(For norsk les link til Aftenbladet herunder)

Mette Kalleberg lives in Norway and she get sick from perfume, both first hand, second hand and third hand.

Article in Norwegian Aftenposten. Published: 06 June 2011 12:49 Updated: 06 June 2011 13:05

Article translated in English:

Qoute

Perfume affect health

Mette Kallenberg can not tolerate perfume smell. It is far from easy in a world where everything smell of fragrance.

Chemical environmental intolerance experts call it. For 44-year-old Mette Kallenberg implies the condition make that she can not associate with people who smell of detergents, shampoo or perfume. There are few places she can stay indoors, and even at her home condo in Sandnes she risks the neighbor’s laundry sends dangerous scents to her.

So little is needed to make a bad day
– It takes so little, that’s the problem. One time I was sick from a student who herself was perfume free, but who had given his father a hug before he went in the morning – with a chin full of aftershave, she said.

Physician and Professor Kjell Aas do not call people with illnesses like Mette Kalleberg a patient, she is a person in risk. Professor Kjell Aas is one of few medical specialists in Norway who has been involved in environmental inhibition studies.

– Chemical Environmental Intolerance is a form of environmental inhibition, as compared with the cases of allergies and pronounced manifestations of hypersensitivity, and asthma. As long as they are in the right environment, it is appropriate to call them “person at risk”, but they are the patients when the environment is wrong, he says.

Mette Kalleberg’s state can easily be confused with extreme allergies. The symptoms are similar, and Kallenberg has, like many others having MCS, also some allergies. However, the difference is significant, not only cause. While allergies can be detected by simple tests, MCS which only shows up in subjective symptoms.

Disturbance
– We are talking about a disorder of the inner chemistry, a biochemical disorder. We have a wonderful system, where cells make chemicals that are sent to other cells. It is a fabulous but fragile system. Actually, it’s amazing that we are not sick all of us, says Kjell Aas.

There are few figures on the extent of the chemical environment intolerance in Norway. Kjell Aas has been in contact with about a hundred people who are affected, in Denmark it is believed that as many as 17,000, one-half percent of the population, are seriously ill from perfumes and content of other smells.

Health Directorate collaborates with medical Kjell Aas a book Environmental inhibition, which are these days. Children and Family Affairs provides financial support, and the book will be right on the Internet, available to all.

– I hope the right people in Norwegian Social Security Dep, Nav will read it, said Professor Kjell Aas.

Chemical environmental intolerance is actually no recognized diagnosis in Norway, unlike in some states in the U.S. and Canada, and in Germany and Austria. For Kallenberg and others in her situation, it offers challenges.

– I have been fully and partially on sick leave since 2004, which means that I have been on rehabilitation and reintegration, and now I’m on it called rehabilitation money. Nav will consider my so called capacity for work, but the thing is that in an environment where I was not exposed, I am completely healthy and able to work, while I was in a different environment is completely disabled. I am 100 percent the mercy of my environment, and it has been almost impossible to find the right one, because employers are unable to provide for me, she says.

She has managed to get to a perfume and odor-free working environment, fortunately, thanks to colleagues who would like to contribute. Kallenberg is a graduated preschool teacher, and has additional training as a music therapist with 23 percent position in a school in Sandnes. There, she works as a music therapist and special educator for multi handicapped children, in a department where no perfume either themselves or their clothes, and where all cleaners are fragrance-free.

– I can not praise my colleagues enough, which makes it possible for me to work, she smiles.

End Qoute

I think everyone should be like Mette Kalleberg’s colleagues.

Article in Norwegian Aftenbladet.no:
http://www.aftenbladet.no/nyheter/lokalt/Godlukt-pa-helsa-los-2820006.html


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Perfume and Air pollution – Or Second hand fragrance

(Scroll down for English) This is a sticky post, scroll Down for newer blogposts.

Parfyme en luftforurensning – eller Passiv parfyme

Ved en yrkesskade i 2007 fikk jeg astma og er blitt meget plaget pga kjemikalier og herunder bland annet parfyme og tobakk. Parfyme av idag er ikke blomster, men i hver parfyme er både benzenprodukter, alkoholer, løsemidler, ftalater, kjemikalier m.m. og mange av de er både kreftframkallende, allergiframkallende, irriterende for hud, slimhinner og luftveiene m.m. Luftveiene strekker seg helt ned i bronkiene i lungene og ut til Alveolene som er de som transporterer oksygen til blodet og resten av kroppens organer. Luften vi puster inneholder også alt som fordamper, støver og avgassing fra alt omkring oss, inkludert fra mennesker. Alt går videre ut i blodet. Røyk er idag et kjent slik fenomen med avgassing, men det de ferreste tenker over er avgassing fra parfyme / etterbarberingsvann og parfyme i parfymerte produkter, så kalte luftoppfriskere, signaturdofter (fragrance marketing), parfymerte rengjøringsprodukter m.m. Dette er en forurensning av luften med kjemikalier som irriterer luftveiene, og spesielt for sensitive hvilke inkluderer de med lungesjukdom. Visste du forresten at astma og allergi teller som handikap og er omfattet av Diskriminerings- og tilgjengelighetsloven? Continue reading


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Dirty people and asthma – a bus driver with Arriva – aoh.dk

(Scroll down for English)

Urenslige folk og astma, fungerer det?

I dag ble jeg fortalt fra en venn om en artikkel i en avis i Danmark aoh.dk om en kvinne som kjørte bussen med Arriva når en gammel mann kom inn stinkende av gammel svette og skitt. Kvinnen som har astma ble syk fra mannens stank (les avgassing av dårlig hygiene) og fortalte ham om å gå av bussen. Denne saken endte opp i avisen der folk var rasende på kvinnen fordi hun ikke lot den gamle mannen reise på grunn av hennes helse.

Ældre lugtende mand smidt af bussen

“Buschauffør hos Arriva beskyldes for usmagelig afvisning af gangbesværet og svagtseende mand. En ældre, gangbesværet og svagtseende mand blev i mandags udsat for en særdeles nedværdigende behandling på Busterminalen i Herning. En kvindelig buschauffør afviste brutalt manden med den besked, at han lugtede og derfor ikke kunne komme med bussen. Selv om manden bad om hjælp, fik han ingen – før en passager i bussen hjalp manden hen på en af terminalens bænke.” aoh.dk

Hva er der da å si om dette?

Man kan kanskje synes det var urettferdig og jeg kan se at det oppleves som ille for den som blir avvist. Men i samfunnet er man sammen med andre mennesker, og man må holde styr på seg. Hvis en person ikke klarer å ta seg av sin egen personlige hygiene da må vedkommende få hjelp til det. Det er ikke lov å være til plage for andre på bussen. Som sjåfør får man høre klager fra passasjerer om slike ting. Man er ikke aleine på bussen.

Astma er ikke et sjelden sykdom. Om lag 300 millioner mennesker har astma verdensomspennende (tall fra WHO 2011), og jeg har det også. Jeg er også en bussjåfør, akkurat som den damen som jobber i Arriva i Danmark, og dette med folk som er så skitne at de stinker lange veier fra gamle svette er et vanlig helseproblem for en person med astma. Hennes tilfelle er på ingen måte sjelden eller unik. Det kan oppleves som urettferdig å nekte mannen å reise, men det er like urettferdig å måtte bli sjuk av andre, det er ikke slik man skal måtte ha det. Og folk har blitt nektet å reise av samme grunn uten at sjåføren er blitt sjuk av det. Jeg vet om spesifikke tilfeller der friske sjåfører har nektet passasjerere adgang av samme grunn, dårlig hygiene, med omtanke om andre reisende.

Det er trolig ikke godt kjent at en person med dårlig hygiene kan føre til helseproblemer for en annen person, for eksempel en person med astma, men det er ikke desto mindre sant, jeg har faktisk opplevd det selv da en uteligger sto for nært at jeg fikk pustevansker av stanken.

Hva som skjer når en slik skitten person møter på bussen er at den astmatiske personen opplever svie i luftveiene og deretter tetter lungene seg og astmatiske personen får problemer med å puste. Jeg har opplevd dette selv mange ganger når passasjerene på bussen ikke har dusjet på lenge. Spesielt ille var det en gang en hjemløs person sto nært meg som luktet som en gammel ikke vasket renovasjonsbil som stått lenge i varmen, med andre ord sterkt. Jeg fikk pustevansker. Gammel svette inneholder ofte også rester av parfyme og tobakksrøyk. Svette er en kjemisk blanding, du kan lese om innholdet til ren svette her.   Dette er ikke noen nyhet. Muligens at personer med manglende kunnskap ikke vet.

Ikke møt opp på bussen skitten, men ikke møt opp på bussen dynket i parfyme heller. Kom på bussen parfymefri og ren. Det vil være bedre for alle, og også mer sunt for alle de med astma, både sjåfører og passasjerer.

Og selvfølgelig, det passer til alle steder i samfunnet. Ikke vær til plage for andre.

På forhånd takk, ved pennen om saken

Annelie

Kilde Artikkel i danske Alt om Herning aoh.dk
http://aoh.dk/artikel/%C3%A6ldre-lugtende-mand-smidt-af-bussen

Les også vitenskapelig artikkel om kroppslukt:
https://en.wikipedia.org/wiki/Body_odor

In English

People with bad hygiene, inpact on asthma?

Today I was told from a friend about an article in a newspaper in aoh.dk Denmark about a woman who drove the bus with Arriva when an old man entered stinking of old sweat and dirty. The woman who have asthma got ill from the man’s stench (read, off gassing) and told him to leave the bus. This case ended up in the local newspaper where people were furious about the woman not letting the old man travel due to her health.

Older smelling man showed away off the bus

Bus driver at Arriva accused of unsavory rejection of walking-impaired and partially sighted man. An elderly, mobility difficulties and partially sighted man was on Monday adopted an extremely degrading treatment at the bus terminal in Herning. A female bus driver refused the man with the message that he smelled and therefore could not get on the bus. Though the man asked for help, he got no help – before a passenger on the bus helped the man onto one of the terminal benches.” aoh.dk

What is there then to say about this?

One might think it was unfair and I can see that it is perceived as bad for those who are rejected. But society is one with other people, and you have to keep yourself in a way that you function with others. If a person fails to take care of their personal hygiene when he must get help. It is not allowed to be a nuisance to others on the bus. As a driver, you get to hear complaints from passengers about such things. One is not alone on the bus.

Asthma is not a rare illness. About 300 million people have asthma world-wide (figures from WHO 2011), and I have it too. I am also a bus driver, just like this woman in Denmark with Arriva, and this with people being so dirty they stink from old sweat from far is a health problem for a person with asthma. Her case is no way rare or unik. It may be perceived as unfair to deny the man to travel but it is equally unfair to have to be sick by others, it is not the way you should have to have it. And people have been denied travel for the same reason without the driver has been sick from it. I know of specific cases where healthy drivers have refused passengers access for the same reasons, poor hygiene, with consideration of other travelers.

It is probably not well-known that a person with bad hygiene can cause health problems for another person, for example a person with asthma, but it is non the less true. I have actually experienced it myself once when a (this time) homeless person was standing close to me and I got breathing problems from the stench. Also this sweat stench from others can hold rests of perfume, tobacco and more. The content of sweat is a chemical compound, read here.

What happens when such a dirty person enter the bus is that the asthmatic person get a sensation of burning in the airways and then the lungs tighten and the asthmatic person get trouble breathing. I have experienced this myself many times when passengers enter the bus without have showered in a long time.

Do not show up at the bus dirty, but do not show up at the bus drenched in perfume either. Do show up at the bus perfume free and clean. That will be nicer for everyone and also more healthy for all those with asthma, both drivers and passengers.

And of course, it fits to all places in society. Don’t be a pain.

Thank you, by the pen on the matter

Annelie

Article in the Danish Newspaper Alt om Herning aoh.dk
http://aoh.dk/artikel/%C3%A6ldre-lugtende-mand-smidt-af-bussen

Also read about body odor:
https://en.wikipedia.org/wiki/Body_odor


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Good manners, fragrance or stench – by Frøydis Karlsen

(Scroll down for English) 

Frøydis Karlsen er ei dame som blir sjuk av andre sitt parfymebruk. I denne artikkelen beskriver hun sine opplevelser.

Faksimilie av Frøydis Nilsen debattinnlegg i Aftenposten 5. november 2010.

Faksimilie av Frøydis Nilsen debattinnlegg i Aftenposten 5. november 2010.

In English

Good manners, fragrance or stench

Frøydis Karlsen is a woman who is sick of second fragrance use. In this article she describes her experiences.

“After having read the article by Aage Hegge Hansen in the newspaper on the 1. of October 2010, I felt I had to tell everyone about my difficulties with and views on perfume use.

I am allergic and react to perfume with breathing difficulties on most perfume. What for others is a nice scent, for me is a develish stench. When it comes to cleaning products and washing products including softeners I think it is totally meaningless to add fragrance (aka perfume) to them since they have absolutely no function for the result. I have heard of cases where people have been sent to hospital acute after use of fragrance products. I have also been in contact with Denofa and Lilleborg about fragrance products. I was told that is a rule in the EU agreement that states that some products has to be added fragrance. It is absolutely horrific that such agreement is made to add chemicals and fragrance that causes so many people distress and illness, and that in worst case can cause death.

Some days ago I went to a store in the Alta Amfi mall, and the lady behind the counter stanched of perfume. Luckily my errand there was brief so I could get out of there fast. My wish is that the shop owners forbid their employees to use perfume and perfumed products, aka fragrance and scent. It should be forbidden at work since it is absolutely unnecessary. It should be possible to use scent without bathing in it. That goes not only for women, but for men too. Such I call living stench bombs. I cannot say it is good manners to make other people ill.

Frøydis Karlsen”

 And she is so right this Frøydis Karlsen in Alta in Norway. There is no need to use perfume and scent, and make other people sick. What if it was you that became ill from others perfume use? It is everywhere and you cannot escape it. Lets start a new better way and cut the perfume use everywhere. And also remember that perfume comes hidden in other products too. Buy scent free products and limit the risk of making others ill.


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The grandest gift – by Annelie Molin

Den fineste og største gave du kan gi noen som blir sjuk av parfymer og kjemikalier er å begynne bruke kun parfymefrie produkter. Da gir du din venn helsen i gave. ♥

Den största och finaste gåvan du kan ge någon som blir sjuk av parfymer och kemikalier är att gå över till att använda bara parfymfria produkter. Då ger du din vän hälsan i gåva. ♥

The grandest and nicest gift you can give someone with sensitivity to fragrances and chemicals is to start using only fragrance free products. This is you giving your friend health as a gift. ♥

~ Var snill dele denne med dine venner.
~ Var snäll dela denna med dina vänner.
~ Please, welcome to share this with your friends.


Annelie


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Allergies can’t be that bad? or? – Vicky – thesun.co.uk

(Scroll down for English)

Mange mennesker tror allergi er bare en lett kløe eller svie. Og for de fleste er dette sant, men veldig mange har alvorlige reaksjoner. Derfor bør man ikke ta lett på allergier, du vet aldri hvor eller når du møter noen som er allergisk.

Vicki fra England fikk et bisting i unge år og lever nå et hyperallergisk liv. Det kan vi lese om i The Sun. Vicki er allergisk mot alt i hverdagen, kjemikalier, inkl parfymer, tobakk og mange andre ting. En allergisk reaksjon kan gi en anafylaktisk sjokk og hun risikerer å dø av det.

Vicki beskriver selv:

«Jeg er redd en dag mine allergier vil drepe meg. “

“Det er for farlig å la noen i huset mitt, som selv den minste lukten av parfyme, røyk eller etterbarberingsvann vil forlate meg syk i flere dager.”

“Jeg er allergisk mot hundrevis av ting – det er lettere å fortelle folk hva jeg er ikke allergisk mot. Jeg er allergisk mot det moderne liv. “ Og med det mener hun kjemikalier.

I Norge er ca 1 million mennesker sensitive mot parfyme.

Les I am the most allergic woman in Britain.

Kilde: The Sun og NAAF

~o~

Den med full mage og den fastande syng ikkje same vise.

Jeg skulle ønske de gjorde det.

In English

Many people believe allergies are just a slight itching or burning. And for many, this is true, but there are many which have serious reactions. Therefore, do not take lightly allergies, you never know where or when you meet someone who is allergic.

Vicki from England got a bisting in young years and now live a hyper-allergic lives. This we can read about in The Sun. Vicki is allergic to everything in life, chemicals, including perfumes, tobacco and many other things. An allergic reaction can cause an anaphylactic shock and her risk of dying from it.

Vicki describes itself:

“I’m afraid one day my allergies will kill me. “

“It is too dangerous to let anyone in my house, as even the slightest scent of perfume, smoke or aftershave will leave me sick for days.”

“I’m allergic to hundreds of things – it’s easier to tell people what I’m not allergic to. I’m allergic to modern life.” And with that she means chemicals.

In Norway, about 1 million people are sensitive to perfume.

Read I am the most allergic woman in Britain.

Source: The Sun and NAAF

~o~

The fed one and the fasting one do not sing the same song.

I wish they were.


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How it really feels – by Karen Skålvoll

I have an online friend who got asthma with alpha1 antitrypsin deficiency. At her last blog entry she talks about what it really feels like having asthma with alpa1 and peoples habits and likes. It was so good explained that I asked her to allow me to post it here on my blog, and she was kind enough to allow it. So here my dear reader you can find out how it is to live with asthma with an alpha1 deficiency in additon. From my side: Having a “normal asthma” is just like that just except for the burning sensation and the dying lung. But even a person with an “ordianary asthma” can get damages to the lungs when exposed to stuff they get sick from, the lungs get hardened, and the illnesses symtomes can develop to become 24/7. It is therefore very important to any asthmatic – alpha1 or not – to avoid any what makes the asthmatic ill. Happy reading, and hopefully listening. – Annelie

How it really feels – by Karen Skålvoll

“It is certainly very difficult for those who are healthy to understand that we who are living with a serious lung disease react to fragrances others have chosen to take on. The fact that it burns the lungs, the mucus, painful spasms in the bronchi and is really just child’s play, because us with alpha 1, we get lung damage as well. Sometimes I am willing to pay the price to visit some of the world, but mostly I let it be. I stay home. Putting an injection of medicine to open to breathe is no fun, the heart races away with a pulse that is sky high and it is physically difficult to hold a glass, not talking about holding a pen or write.

When it comes to those with alpha 1 lacking the protein (alpha 1 antitrypsin) it is the alpha1 antitrypsin that protects the lungs, and we do not have that. This means that everything we breathe damages lung tissue much more than those who do not have this gene defect. A bit like in children who have not yet fully developed lung tissue (that you can read about here: children’s health in front of the staff’s vanity, indoor air quality, children and allergies) I have severe uncontrolled asthma on top of my Alpha 1 can be on any given day loss of life in an asthma attack because others have chosen to dress up. Arguments like, “I used just a little” or “only little won’t hurt anyone” or “it’s just soooo little..” or “I can not help it..” provoke sometimes even though I have gotten extremely hard bones in my nose eventually. The vanity of others will go in front of other people’s health, I think is directly frightening. Let everyone breathing fresh air that does not bathe in perfume, it is the best for children, allergy sufferers, those with lung diseases and, not least for most people.

Since I have alpha 1 I also feel on the psychological element in this. My lungs are damaged and get damaged more because of all those who smear themselves and spray themselves with so much, if I get an asthma attack I am simply promoted one step closer to death. It’s a brutal reality that is not spoken about. To smoke or use spray in one form or another close to some of alpha 1 is considered an abuse, because we get lung damage of the sort. The more we tell, the more we talk about this the more knowledge comes out of the public. I hope that future generations will not have to hear all the prattling that those who talk about freedom of perfume are selfish, they can only wear masks, they can stay home, etc. No, the only thing that counts is the information we need to be visible and we must have the courage to talk about the unpleasant consequences of others’ decorating.” – Karen Skålvoll

~o~

“He who Rejects change is the architect of decay. The only human institution Which Rejects progress in is the cemetary.”  – Harold Wilson

Source: http://livsreisen-mandalay.blogspot.de/2012/04/hvordan-det-egentlig-fles.html

Thank you for sharing Karen and for beautifully explaining to us all.

Don’t you know what astma is? Read about asthma and what it is..

Annelie


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Being young with bad asthma – Filippa

I just came in contact with a mom who got asthma, and got three children who got asthma. The youngest, Filippa, got such a bad asthma that she is at the hospital regulary. Her mom blogs about asthma to inform, and also blogs about their fight for their daughter and the fight to find what make her sick.

Please, visit her blog. Use a translater if you do not read Swedish.

http://blogg.mama.nu/ceciliasvensson/2011/07/04/min-dotter-ar-en-krigarprinsessa/

http://blogg.mama.nu/ceciliasvensson/

Thanks to Cecilia for charing such important knowledge. :)


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I did not realise before I quit – by Henning Nørholm Simonsen

This is the true story by Henning Nørholm Simonsen :

“Med tobak jeg var selv ryger en gang men da jeg blev syg jeg blev ved med at ryge. Først da jeg hold op med at ryge og opdagede at jeg blev 80% mere rask forstod jeg problemet. Pasiv rygning er lige så skadelig som rygning for KOL, Astma, Bronkitisk, MCS, lungebetændelse o.s.v. som det er at folk ryger.” – Henning Nørholm Simonsen

In English

“About tobacco, I was even smoking once, but when I got sick I kept on smoking. Only when I did stop smoking I discovered that I was 80% more healty and I finally understood my problem. Second hand smoking is as harmful as smoking for COPD, th, Bronchitis, MCS, pneumonia, etc. as it is that people smoke. ” – Henning Nørholm Simonsen