Annelie on asthma, humor, and the world.

I blog so that you can learn. Asthma is a handicap possible to overcome with Your help, learn why. Search the Testimonies, Go Fragrance Free archive and product testing.Collected knowledge through many years. Read "About site..". for more information.


Leave a comment

MCS and knowledge

If you mention MCS many say they are nuts and it is all in their head. What is more true is that those who say it have no Clue and the reality is that those People saying this is way out of line.

Today I read this article in the Danish newspaper Politiken.dk

MCS

A flower, diesel, which passes, or a napkin, that your daughter used once, where she got a hug from one perfumed lady.

More should there not that send those having MCS with symptoms of primary headache, dizziness, breathing problems and chronic fatigue – if you are striken by ​​suffering MCS, which in Danish called, “parfyme og kemikalieoverfølsomhed.

“We do not know exactly why and how it affects. Some patients have been exposed to a powerful chemicals exposure at work or have developed symptoms at some point, where they have felt themselves under very stressful situations over time, other patients recounts, that they have been  sensitive for Chemicals in the air since childhood.”, says Sine Skovbjerg, there is Research Leader at Videncenter for Duft- og Kemikalieoverfølsomhed.

“But we know from a questioning form that  17,000 Danes have ​​so severe symptoms, that it affects their lives and their work”, says Sine Skovbjerg.

The illness can affect anyone that is subjected to stong smells and scents, but can also affect People that have never been subjected to it., concludes medical director Søren Vesterhauge at Privathospitalet Hamlet.

“Generally 30-40 percent of population is specially tender over strong scents”, medical director Søren Vesterhauge, which was the first Danish physician that acknowledge fragrance and kemikalieoverfølsomhed (MCS) as a disease.

MCS stands for Multiple Chemical Sensitivity, and was introduced in the Medical literature in the United States in 1950’s. Some People got symptoms when they were subjected to gasses from pesticides, wax and rubber. In 1987 the illness got the name MCS, and in 2002 became acknowledged and by the Danish Environment Ministry, that such a disorder exists. However not yet classified With an illness code.

It is very wide and different what patient can not tolerate, and the extent to how much of smell and scnet and content of them affect them. Joint for them is that hypersensitive affect both their private and social, and their professional lives.

“It’s almost Impossible to get work, for whom want to employ a person that demand and need a scent free environment?”, asks Leader of Danish MCS association, Susanne Hemdorff.

Also in the private lives of those having MCS the illness have enormous consequences. Some must say goodbye to family or friends and neighbors, who is harmed by that person can not tolerate their fragrance. Life has to be turned on the head and everything accommodated to the illness, and Susanne Hemdorff know of several people who have taken their lives on reason of their isolation.

“Even at a Hospital one can experience the professionally personnel taking offence, because you  can not stand the smell, even though for Health reasons”, she says.

Nerves or immunity

MCS goes under a group af disorders, one in Medical world Call  ‘diffuse’. Basic meaning, one can see that people have it badly and have a lot of symptoms, which Doctors can not explain the or treat.

1 July 2012 MCS got its own diagnostic number and for the first time propriety. It was a long fight for patient holders.

“At the doctor they often were boarded with a cold shoulder and with a message, you have suffered, are you sure, that there is no hysteria?”, says Søren Vesterhauge.

By psychiatry has set MCS as a part af a major symptom complex, the functional disorders. Attempt of them to the process under a form of therapy. Without the large success or holding.

“MCS is for me a physical sickness, and over 500 patient, as I have met the last 20 years, seemed mentally normal. Although of course under stress, because none has believed them “, says Medical Director Søren Vesterhauge.

Today there are no treatment for MCS. At Danish Videncenter for Duft- og Kemikalieoverfølsomhed (MCS) attempt of researchers to find if  among other therapies,  mindfulness-based cognitive therapy helps? It is not published, but the Research Points at according to Skovbjerg that patient at least benefit from being able to better live with their symptoms.

“The therapy do not cure them, but it help them to better being able to live with their illness and symptoms and what it brings With it.”, says Skovbjerg.

The latest research also show that one can measure physical differences on MCS-Patient and people Without MCS.

»MCS patient central brain looks to react more strongly to pain, although their point of feeling pain do not seem to be different or lower than others. This we can measure. Also we have measured differences in their immune systems’, says Skovbjerg, which put weight on, that we do not yet know what these differenses mean clinically.

Center closes

Although Videncenter for Duft- og Kemikalieoverfølsomhed is the only place in Denmark where research is don on MCS the Parliament sanctioned in July that license holders do not prolong and therefore Closes  Videncenter for Duft- og Kemikalieoverfølsomhed Down by the end of this year.

“We are being failed as patients. It is disastrous for us, it widely, that the knowledge the Centre has built up for us is lost”, says Susanne Hemdorff from MCS Association, who have now started  a petition against the closure.

Please help!

Since I have asthma against the same stuff those having MCS get ill from I can totally relate to their problem. It is horrible getting ill from Things spread in the air, and if you can not get any help from the Medical side it is even worse. Everyone has to Breathe!

I have signed the petition. Please help by signing you too! Imagine if it was you or someone you love who got sick this way and had to live their lives like this. The only thing that can help those having MCS is reasearch to find out what to do about it, awareness and People caring. Please sign the petition.

http://www.skrivunder.net/bevar_mcsvidencenter_og_forbrugerkemidk

Source: http://politiken.dk/tjek/sundhedogmotion/sygdom/ECE2055523/duftsygdom-invaliderer-17000-danskere/


2 Comments

Congratulations all with MCS

Congratulations all my readers having MCS. From 1 of July 2012 MCS will have its own health diagnose code in the Danish Health Care and Social Security System. A little step forward for you all.

From Dagens Medicin:

“Characteristic of severe cases is that patients describe general symptoms, which often limit them in daily life. Often they describe reactions to multiple chemical substances, such as. perfumed care – and cleaning products, evaporation from recent publications and new furniture and exhaust.

Diagnosis code for fragrance – Chemical Sensitivity will be labeled ‘symptoms related to scents and chemicals’ (DR688A1) and placed under the main category DR688A ‘Medical unexplained symptoms’ in Healthcare Classification System (SKS).

Diagnosis is subject to the following five criteria:

  1. Patients related symptoms commonly occurring scents and chemicals (eg. Evaporation from scented products, fresh print and new home furnishings).
  2. Symptoms from the central nervous system is mandatory, for example. headache, dizziness, difficulty concentrating and fatigue. Also occurs frequently symptoms from other organ systems, such as. respiratory tract disorders, musculoskeletal system, or the gastrointestinal tract.
  3. Symptoms improve or disappear when exposure is removed.
  4. The condition is chronic (> 6 months).
  5. Symptoms accompanied by significant lifestyle – or functional impairments, for example. loss of business, work and social network.”

Source: Dagens Medicin


Leave a comment

Sensitivites like MCS acknowledged as work injury in Sweden

Since I have asthma and it is close to what those having MCS are experiencing having problems with cases of MCS and their issues intrests me a lot. Today I read a really important winning for MCS’s in Sweden. A man with the help of the Workers Unions lawyer won against the Swedish Social Security department called Försäkringskassan.

Congratulations all with MCS in Sweden because this is a winning for you all! A case won in court is a legal statement for all of you who may come in the same situation.

The case:
Qoute
(2012-11-22) LO-TCO Workers Rights Protection has won a case in the Kammarrätten court in Gothenburg where the issue was on appeal after a petrol drenching can be approved as a work injury and diagnoses TILT (chemical sensitivity) and MCS (multiple chemical sensitivity) can be work-related injury.

The goal is about a truck driver who has been awash in gasoline in connection with the accident. The man is a member of the Transport Workers’ Union. He was fully working for three years after the accident and then became completely incapacitated with severe disease symptoms. There was no medical documentation to substantiate complaints over three years.

An oral hearing was held in administrative law where witnesses substantiated member tale of trouble over the years until he became sick. Legal protection is invoked three expert opinions of specialists in occupational and environmental medicine. Insurance relied on their part, three specialists in occupational and environmental medicine to support that connection does not exist.

The Administrative Court found after the hearing that although the medical mechanisms of current symptoms are not fully scientifically understood so it seems more likely that the member illness and discomfort is more likely to be caused by the accident accident than not. The appeal was approved an occupational injury.

Försäkringskassan tried to overrule and appeal in Gothenburg to higher court, but them agreed with former ruling. These symptoms diagnoses have probably not been previously approved as a work-related injury.

Attorneys in the case was union lawyer Ulf Lejonklou.

End Qoute

Source: Union law site:

http://www.fackjuridik.com/foersaekringsraett/item/374-kemisk-%C3%B6verk%C3%A4nslighet-godk%C3%A4nns-som-arbetsskada


Leave a comment

1,230,100 people

(Scroll down for English)

1.230.100 personer

I begynnelsen av 2011 hadde Norge ca 4.920.400 innbyggere.

25% av disse har sensitiviteter som astma, allergi, lungesjukdom og andre sensitiviteter. 25% av 4.920.400 = 1.230.100 personer med astma, allergi og / eller andre overfølsomheter

I USA og andre land, er forbudet mot parfyme, forbud av bruk av parfymerte produkter, røyking også utendørs på offentlige steder som gangveier, fortau, torg, strender, parker områder rundt matutsalg og utendørs kafé, forbud mot dufter, røykelse , duft lys, etc., på offentlige steder og arbeidsplasser er allerede et faktum. Det er på tide at Norges innbyggere som har følsomhet også får tilgang til frisk luft uten allergener og irritanter som kan forebygges. Pollen kan vi ikke gjøre noe med da det kommer hvert år, og er ute av vår kontroll, men vi kan hindre folk å bli syk av parfyme og røyk. Det er ikke parfyme eller duftende produkter som gjør at du rengjør, men duften gjør flere hundre tusen mennesker syke hver dag. Det er mulig å friske deg selv duft fritt

Verden er full av alternative ikke-parfymerte produkter i dag av hva folk ikke blir syke av. Det er ingen unnskyldning lenger.

1.230.100 mennesker er i risikosonen for å  bli sjuke av bruk av parfyme og røyk bare i Norge. Du kan også legge til resten av verden, hvor mange du får da?

In English

1.230.100 persons

At the beginning of 2011 Norway had about 4,920,400 inhabitants.

25% of those have sensitivites like asthma, allergy, lung diseases and other sensitivites. 25% out of 4,920,400 = 1,230,100 people with asthma, allergies and/or other sensitivities.

In the U.S., and other countries, the ban on perfume, the ban of use of scented products, smoking even outdoors in public places like boardwalks, sidewalks, squares, beaches, parks areas around food stands and outdoor cafe’s, ban against fragrances, inscense, fragranced candles, etc., in public places and workplaces are already a fact. It is time that Norway’s inhabitants who have sensitivity also have access to fresh air without the allergens and irritants that are preventable. Pollen we can do nothing about, it come every year and is out of our control, but we can prevent people getting sick from perfume and smoke. It’s not the perfume or fragranced products that make you clean, but the fragrance makes several hundred thousand people sick every day. It is possible to freshen  your self scent free.

World is full of alternative non-fragranced products today of wich people do not get sick from. There are no excuse any more.

1,230,100 people the danger zone of getting sick from use of fragrance and smoke only in Norway. You may also add the rest of the world, how many do you get then?


Leave a comment

WHO about MCS – csn-deutschland.de

Platform created by WHO in order to get an ICD code for MCS and EHS

Meeting at WHO: in a few years MCS and EHS may be included in the International Classification of Diseases (ICD11)

Madrid, May 18, 2011. The National Committee for the Recognition of Multiple Chemical Sensitivity (MCS) and Electromagnetic Hypersensitivity (EHS), on 13rd May 2011, met Dr. Maria Neira, Director of Public Health and Environment of the WHO and other WHO officials. During the meeting, the WHO responsible for the development of the International Classification of Diseases (ICD) admitted that there was a controversy regarding the updating procedure of this classification.

Dr. Neira and her team explained that, up to the release of ICD 10, the National delegations from the Health Ministries were the only one engaged in the revision of the classification, but now the revision is open to public comment and anyone can actively participate and submit scientific evidence to promote new classifications of diseases for the ICD 11, which will be released in 2015. The WHO official also announced that the very first draft of the ICD 11 was going to be released on Monday 17th May.

The WHO created a virtual platform to engage the scientific community and the NGOs in the revision of the ICD 11 and this is supposed to guarantee a full transparency throughout the revision process. This new openness by WHO was applauded by the National Committee for the Recognition of MCS and EHS.

In order to get the inclusion of these two environmental disease in the new classification , the WHO officials pointed out that it is essential to present clear evidence about the diseases: etiology, pathophyisyology, diagnostic tests, etc.

Jaume Cortés, lawyer from the association Colectivo Ronda, explained on behalf of Committee, the evidence given by more than 200 legal compensation sentences won by MCS and EHS patients.

Dr. Julian Marquez, a neurophysiologist with extensive experience in these cases, presented a dossier about the scientific studies on MCS and EHS published in the recent years.

The Committee will actively participate in the platform created by WHO in order to get an ICD code for EHS and MCS, considering that the national versions of ICD 10 in Germany, Austria, Luxembourg and Japan already assigned a code to MCS.

For more information contact Sonia Ortiga: mail environmentalhealthcampaign @ gmail.com and telephone 645803417.

Related Articles:

Source: http://www.csn-deutschland.de/blog/en/platform-created-by-who-in-order-to-get-an-icd-code-for-mcs-and-ehs/

Learn more about MCS and what it is. Use Google translate and translate from Danish to English. http://mcs-danmark.dk/home/node/3

———————————————————————————————————

Commentary:

What people do not think of is that so many people suffer from perfume use, tobacco and other chemicals commonly used in the society. It sure smells nice with most perfumes, but it should not be nessecary to use perfume everyday. Perfume could as well be something used only for festivities, like in the old days. There are deodrants and personal hygiene products without perfume and unnessesary chemicals added that work just as well as other brands. So many suffer from allergies, asthma and also MCS that it is really a good thing World Health Organisation (WHO) put such on their agenda now, and that so many cares about this and work to make it happen. Environmental handicap is painful and cut people out from social happening and daily live. Well done everyone! Bless you!